Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis

Purpose The purpose of this paper is to explore the needs of people with cancer in advanced stages and to analyze factors that influence them. Design/methodology/approach A concurrent mixed-method design was used. Descriptive design was conducted in Ubon Ratchathani Province, Thailand. Data were collected from a convenience sample of patients with advanced cancer of any tissue or organ. Questionnaires were completed by 110 patients aged 60 years and above (response rate 110/130=84.6 percent). In-depth interviews were conducted with a total of eight patients. Content analysis of semi-structured interviews of a sub-sample was subsequently performed to better understand the real needs of patients with advanced stages of cancer at home setting. Findings The majority (77.5 percent) reported a preference to spend their final days at home. The four most common palliative care needs were more information about disease and medical treatment (98.2 percent), more treatment for pain (97.3 percent), health education for family caregivers (95.5 percent) and health volunteers visit at home (95.5 percent). Content analysis of the qualitative data suggested that patient needs health care providers to deliver open communication, pain management and provide psychosocial supports. Originality/value The result showed that patients-related variables are associated with the palliative care needs in patients with advanced stages of cancer. Communication skills and pain management are the key components to support the need for palliative care at home and to benefit the quality of life in terminally ill patients.

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Prevalence of unmet palliative care needs in adults with cystic fibrosis

Journal of Cystic Fibrosis ◽

10.1016/j.jcf.2019.11.010 ◽

2020 ◽

Vol 19 (3) ◽

pp. 394-401 ◽

Cited By ~ 1

Author(s):

Elizabeth T. Trandel ◽

Joseph M. Pilewski ◽

Elisabeth P. Dellon ◽

Kwonho Jeong ◽

Jonathan G. Yabes ◽

...

Keyword(s):

Cystic Fibrosis ◽

Palliative Care ◽

Care Needs ◽

Palliative Care Needs

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Nurses’ performance in palliative care: spiritual care in the light of Theory of Human Caring

Revista Brasileira de Enfermagem ◽

10.1590/0034-7167-2021-0029 ◽

2022 ◽

Vol 75 (1) ◽

Author(s):

Carla Braz Evangelista ◽

Maria Emília Limeira Lopes ◽

Solange Fátima Geraldo da Costa ◽

Patrícia Serpa de Souza Batista ◽

Marcella Costa Souto Duarte ◽

...

Keyword(s):

Palliative Care ◽

Content Analysis ◽

Qualitative Study ◽

Spiritual Care ◽

Structured Interviews ◽

Spiritual Dimension ◽

Nurses Role ◽

Theory Of Human Caring ◽

Process Elements ◽

Human Caring

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.

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Palliative Care for Adults with Cystic Fibrosis: A Systematic Review

10.1164/ajrccm-conference.2019.199.1_meetingabstracts.a4332 ◽

2019 ◽

Author(s):

M. Marmor ◽

A. Jonas ◽

E. Rad ◽

A. Mirza ◽

H.-N. Wong ◽

...

Keyword(s):

Systematic Review ◽

Cystic Fibrosis ◽

Palliative Care

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Palliative care and advances in cystic fibrosis: where now?

BMJ Supportive & Palliative Care ◽

10.1136/bmjspcare-2020-002292 ◽

2020 ◽

pp. bmjspcare-2020-002292

Author(s):

Brandy Johnson ◽

Seon Lee ◽

Dima Ezmigna

Keyword(s):

Cystic Fibrosis ◽

Palliative Care

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Perceptions of Palliative Care Nurses Related to Death and Palliative Care Practices

OMEGA - Journal of Death and Dying ◽

10.1177/0030222819890457 ◽

2019 ◽

pp. 003022281989045

Author(s):

Gülnur Temelli ◽

Birgül Cerit

Keyword(s):

Palliative Care ◽

Content Analysis ◽

Qualitative Interviews ◽

Care Practices

This study has been conducted with the purpose of identifying the perceptions of palliative nurses about death and determining palliative care practices. We conducted qualitative interviews with 23 palliative care nurses in Turkey. Content analysis was used in the evaluation of the data. Three themes have been identified about perception of death. Furthermore, three themes have been identified about palliative care practices. It was concluded that the palliative nurses perceive death as a natural and inevitable process and that as long as their working period increases, they become desensitized. It was identified that the participants generally perform the following procedures in palliative care practices.

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Young Adult with End-Stage Cystic Fibrosis: A Missed Opportunity for Implementing Timely Palliative Care

Journal of Nursing Practice Applications & Reviews of Research ◽

10.13178/jnparr.2019.0901.0904 ◽

2009 ◽

Author(s):

Sigrid Ladores ◽

Erin Currie ◽

Laura Debiasi ◽

Jessica Corcoran ◽

Marie Bakitas

Keyword(s):

Cystic Fibrosis ◽

Palliative Care ◽

Young Adult ◽

End Stage ◽

Missed Opportunity

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Palliative Care Information on Cancer Center Websites: A Content Analysis

International Journal of Radiation Oncology*Biology*Physics ◽

10.1016/j.ijrobp.2017.06.1863 ◽

2017 ◽

Vol 99 (2) ◽

pp. E526

Author(s):

G. Rebesco ◽

L.B. Vater ◽

Y. Schenker ◽

A.M. Torke ◽

G. Gramelspacher

Keyword(s):

Palliative Care ◽

Content Analysis ◽

Cancer Center ◽

Care Information

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Spirituality as an ethical challenge in Indian palliative care: A systematic review

Palliative & Supportive Care ◽

10.1017/s147895151500125x ◽

2015 ◽

Vol 14 (5) ◽

pp. 561-582 ◽

Cited By ~ 10

Author(s):

Joris Gielen ◽

Sushma Bhatnagar ◽

Santosh K. Chaturvedi

Keyword(s):

Systematic Review ◽

Palliative Care ◽

Content Analysis ◽

Spiritual Care ◽

Data Extraction ◽

Empirical Studies ◽

Well Being ◽

Three Dimensions ◽

Ethical Challenge ◽

Ethical Implications

AbstractObjective:Spiritual care is recognized as an essential component of palliative care (PC). However, patients' experience of spirituality is heavily context dependent. In addition, Western definitions and findings regarding spirituality may not be applicable to patients of non-Western origin, such as Indian PC patients. Given the particular sociocultural, religious, and economic conditions in which PC programs in India operate, we decided to undertake a systematic review of the literature on spirituality among Indian PC patients. We intended to assess how spirituality has been interpreted and operationalized in studies of this population, to determine which dimensions of spirituality are important for patients, and to analyze its ethical implications.Method:In January of 2015, we searched five databases (ATLA, CINAHL, EMBASE, PsycINFO, and PubMed) using a combination of controlled and noncontrolled vocabulary. A content analysis of all selected reports was undertaken to assess the interpretation and dimensions of spirituality. Data extraction from empirical studies was done using a data-extraction sheet.Results:A total of 39 empirical studies (12 qualitative, 21 quantitative, and 6 mixed-methods) and 18 others (10 reviews, 4 opinion articles, and 4 case studies) were retrieved. To date, no systematic review on spirituality in Indian PC has been published. Spirituality was the main focus of only six empirical studies. The content analysis revealed three dimensions of spirituality: (1) the relational dimension, (2) the existential dimension, and (3) the values dimension. Religion is prominent in all these dimensions. Patients' experiences of spirituality are determined by the specifically Indian context, which leads to particular ethical issues.Significance of results:Since spiritual well-being greatly impacts quality of life, and because of the substantial presence of people of Indian origin living outside the subcontinent, the findings of our review have international relevance. Moreover, our review illustrates that spirituality can be an ethical challenge and that more ethical reflection on provision of spiritual care is needed.

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