Perceptions of Palliative Care Nurses Related to Death and Palliative Care Practices

2019 ◽  
pp. 003022281989045
Author(s):  
Gülnur Temelli ◽  
Birgül Cerit

This study has been conducted with the purpose of identifying the perceptions of palliative nurses about death and determining palliative care practices. We conducted qualitative interviews with 23 palliative care nurses in Turkey. Content analysis was used in the evaluation of the data. Three themes have been identified about perception of death. Furthermore, three themes have been identified about palliative care practices. It was concluded that the palliative nurses perceive death as a natural and inevitable process and that as long as their working period increases, they become desensitized. It was identified that the participants generally perform the following procedures in palliative care practices.

2020 ◽  
pp. 026921632096649
Author(s):  
Kristin Bindley ◽  
Joanne Lewis ◽  
Joanne Travaglia ◽  
Michelle DiGiacomo

Background: Caring at end-of-life is associated with financial burden, economic disadvantage, and psychosocial sequelae. Health and social welfare systems play a significant role in coordinating practical resources and support in this context. However, little is known about social policy and interactions with public institutions that shape experiences of informal carers with social welfare needs at end-of-life. Aim: To explore ways in which palliative care and welfare sector workers perceive and approach experiences and needs of the carers of people with life-limiting illnesses who receive government income support or housing assistance, in an area of recognised socioeconomic disadvantage. Design: An interpretive descriptive study employed in-depth, qualitative interviews to explore participants’ reflections on working with carers of someone with a life-limiting illness. Data were analysed using the framework approach. Setting/participants: Twenty-one workers employed within three public services in Western Sydney were recruited. Results: Workers articulated understandings of welfare policy and its consequences for carers at end-of-life, including precariousness in relation to financial and housing circumstances. Identified resources and barriers to the navigation of social welfare needs by carers were categorised as personal, interpersonal and structural. Conclusions: Caring at end-of-life while navigating welfare needs was seen to be associated with precariousness by participants, particularly for carers positioned in vulnerable social locations. Findings highlighted experiences of burdensome system navigation, inconsistent processes and inequity. Further exploration of structural determinants of experience is needed, including aspects of palliative care and welfare practice and investment in inter-agency infrastructure for supporting carers at end-of-life.


2021 ◽  
pp. 1-9
Author(s):  
Saskia Hanft-Robert ◽  
Nadine Janis Pohontsch ◽  
Cornelia Uhr ◽  
Alexander Redlich ◽  
Franka Metzner

<b><i>Background:</i></b> The therapeutic alliance is considered to be one of the most important factors of psychotherapy and is a necessary requirement for a successful treatment in interpreter-mediated psychotherapy. <b><i>Patients and Methods:</i></b> Using interpreter-mediated guided interviews, 10 refugee patients who experienced interpreter-mediated psychotherapy were asked about factors influencing the development of a trusting therapeutic alliance in the triad. The analysis of the interviews followed the rules of content-structuring qualitative content analysis. <b><i>Results:</i></b> A total of 11 factors were identified which could be assigned to the interpreter, therapist, or patient. In the analysis, the central role of the interpreter in establishing a therapeutic alliance in the triad became particularly clear. <b><i>Conclusions:</i></b> Consideration of the factors that, from the patients’ perspective, influence the establishment and maintenance of a trusting alliance within the triad, as well as the recommendations for action derived from this for psychotherapists and interpreters can lead to an improvement in the therapeutic treatment of refugees.


2018 ◽  
Vol 32 (5) ◽  
pp. 342-351
Author(s):  
Panita Krongyuth ◽  
Pimpan Silpasuwan ◽  
Chukiat Viwatwongkasem ◽  
Cathy Campbell

Purpose The purpose of this paper is to explore the needs of people with cancer in advanced stages and to analyze factors that influence them. Design/methodology/approach A concurrent mixed-method design was used. Descriptive design was conducted in Ubon Ratchathani Province, Thailand. Data were collected from a convenience sample of patients with advanced cancer of any tissue or organ. Questionnaires were completed by 110 patients aged 60 years and above (response rate 110/130=84.6 percent). In-depth interviews were conducted with a total of eight patients. Content analysis of semi-structured interviews of a sub-sample was subsequently performed to better understand the real needs of patients with advanced stages of cancer at home setting. Findings The majority (77.5 percent) reported a preference to spend their final days at home. The four most common palliative care needs were more information about disease and medical treatment (98.2 percent), more treatment for pain (97.3 percent), health education for family caregivers (95.5 percent) and health volunteers visit at home (95.5 percent). Content analysis of the qualitative data suggested that patient needs health care providers to deliver open communication, pain management and provide psychosocial supports. Originality/value The result showed that patients-related variables are associated with the palliative care needs in patients with advanced stages of cancer. Communication skills and pain management are the key components to support the need for palliative care at home and to benefit the quality of life in terminally ill patients.


2018 ◽  
Vol 21 (3) ◽  
pp. 328-334 ◽  
Author(s):  
Daniel Low ◽  
Emily C. Merkel ◽  
Manoj Menon ◽  
Elizabeth Loggers ◽  
Henry Ddungu ◽  
...  

2019 ◽  
Vol 11 (24) ◽  
pp. 6947 ◽  
Author(s):  
Markus Kantsperger ◽  
Hannes Thees ◽  
Christian Eckert

This study applies an adapted approach of the traditional view on local participation in tourism development. First, the study mainly focuses on exploring the patterns behind participation instead of the reasons for participation. Second, a case is chosen that transcends the interest in researching participation in developing countries. Third, the study focuses on non-tourism related residents, an under-researched group of stakeholders. It is thus investigated how non-tourism related residents face the process of participation in tourism development and what the main barriers and drivers are in this regard. To discuss this issue, the study takes a closer look at the case of Bad Reichenhall, an Alpine Destination in Germany. 15 qualitative interviews are conducted with non-tourism related residents and further evaluated through a qualitative content analysis. The results underline that tourism represents a public domain that concerns all stakeholders of a destination. The typology derived throughout the study reflects the heterogeneity of non-tourism related residents, coming up with four types of non-tourism related residents facing participation in tourism development rather differently. Various barriers and drivers are revealed that impact non-tourism related residents from both a personal and general point of view. Non-tourism related residents turn out as a promising and important target group in the discourse of stakeholder participation in tourism development.


Author(s):  
Gema Serrano-Gemes ◽  
Isabel Gil ◽  
Adriana Coelho ◽  
Rafael Serrano-del-Rosal

The conspiracy of silence is extremely important due to both its high incidence and its consequences. This process usually occurs in situations of palliative care, or death; however, this concept is also mentioned in the literature linked to other contexts. Therefore, our objective was to study whether the conspiracy of silence may be extrapolated to the context of decision-making on the location of care in old age. To this end, we first analyzed the in-depth semi structured qualitative interviews conducted with older people, caregivers, and professionals, about decision-making on the location of care in old age. Subsequently, a comparative analysis was performed between the basic elements of the conspiracy of silence and this decision-making. Our findings revealed an avoidance process developed by all three groups. Furthermore, this decision-making presents similarities with the conspiracy of silence in the process of avoidance coping and denial that is developed. However, there are significant differences, as information is not withheld from the older person, who has an active attitude in the process of avoidance. Decision-making on the location of care in old age does not exactly match the conspiracy of silence process, but it does seem to correspond to a pact of silence.


2016 ◽  
Vol 41 (4) ◽  
Author(s):  
Héloise Boudon ◽  
Katharina Niemeyer

This article takes a closer look at the processes of transcultural adaptation by focusing on the French-Canadian television series Les Invincibles (Radio-Canada, 2005), which was adapted for the French-German cultural channel ARTE in 2010. Based on recent developments in adaptation studies, the authors discuss the question of fidelity as interseriality on two adaptation levels: production process and the diegetic world. Their interest lies in how this example of a multi-faceted, hybrid format impacts upon representations of identities and cultural specificities when it comes to its transcultural adaptation. In-depth, semi-structured, and qualitative interviews with producers and screenwriters are discussed within a content analysis of the episodes as well as a semiotic reflection on aesthetics and narrative aspects.Cet article propose une étude des processus d’adaptation transculturelle en se fondant sur l’analyse de la série québécoise Les Invincibles (Radio Canada, 2005), adaptée pour la chaîne franco-allemande ARTE en 2010. A l’appui des travaux récents dans les domaine des adaptation studies, nous discutons la question de la fidélité en tant qu’intersérialité sur deux niveaux d’adaptation: le processus de production ainsi que l’univers diégetique. Notre analyse porte sur les multiples facettes d’un format hybride et ses répercussions sur les représentations des identités et spécificités culturelles au moment de son adaptation transculturelle. Des entretiens semi-directifs et qualitatifs approfondis avec les producteurs et scénaristes sont confrontés à une analyse de contenu des épisodes ainsi qu’à une réflexion sémiotique sur les aspects esthétiques et narratifs.


2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Carla Braz Evangelista ◽  
Maria Emília Limeira Lopes ◽  
Solange Fátima Geraldo da Costa ◽  
Patrícia Serpa de Souza Batista ◽  
Marcella Costa Souto Duarte ◽  
...  

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.


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