scholarly journals Care Provider Behaviors That Shape Parent Identity as a “Good Parent” to Their Seriously Ill Child

2021 ◽  
Vol 2 (1) ◽  
pp. 113-121
Author(s):  
Marie L. Neumann ◽  
Meaghann S. Weaver ◽  
Blyth Lord ◽  
Lori Wiener ◽  
Pamela S. Hinds
2021 ◽  
pp. 019394592098479
Author(s):  
Katherine P. Kelly ◽  
Kathleen A. Knafl ◽  
Susan Keller ◽  
Pamela S. Hinds

We developed and applied metasynthesis methods to expand previously reported thematic descriptions of parents’ internal definition of “being a good parent to my seriously ill child” as part of a larger study to examine parenting of children with serious illness. Our systematic approach included: literature search, purposeful selection of grounded theories regarding parenting a seriously ill child, study summaries, mapping evidence of good parent themes onto structural elements of grounded theory, cross-study comparisons, and theoretical memoing to summarize analytic insights. Twenty-five grounded theory studies from 32 reviewed reports reflected multiple conditions (n=5), countries (n=10) and family members (n=386 families). We report a worked example of the processes used to extend the original good parent themes and detail our processes through one good parent theme. The methods we describe are a promising approach to extend thematic analysis findings and advance thematic expansions toward development of more formal theoretical syntheses.


2015 ◽  
Vol 169 (1) ◽  
pp. 39 ◽  
Author(s):  
Chris Feudtner ◽  
Jennifer K. Walter ◽  
Jennifer A. Faerber ◽  
Douglas L. Hill ◽  
Karen W. Carroll ◽  
...  

2014 ◽  
Vol 19 (4) ◽  
pp. 524-531 ◽  
Author(s):  
Cynthia Ward ◽  
Nel Glass ◽  
Rosemary Ford

This article reviews contemporary literature on home care of the seriously ill child with complex care needs and the sick child/parent dyad. The literature search revealed three major themes, namely the increasing acuity of child illness, the evolving role of the parent as care provider, and the health professional as care provider. While there is much known about the complexity of care of children and the role of family in that care, little is known about what families require in terms of support and sustenance during the long years of care provision.


2007 ◽  
Vol 177 (4S) ◽  
pp. 548-548
Author(s):  
Girish S. Kulkarni ◽  
Gina A. Lockwood ◽  
Andrew Evans ◽  
Arthy Saravanan ◽  
Michael A.S. Jewett ◽  
...  

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