scholarly journals The Effects of Situational Peers and Support Groups on the Well-Being of Grandmothers Raising Grandchildren

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 408-409
Author(s):  
Alexandra Jeanblanc ◽  
Carol Musil ◽  
Christopher Burant ◽  
McKenzie Wallace
Keyword(s):  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Online Support ◽  
Online Support Groups ◽  
Multigenerational Households ◽  
Grandmothers Raising Grandchildren ◽  
Need For Support ◽  
Group Engagement

Abstract Grandmothers raising their grandchildren face not only the demands of parenting, but the added burden of parenting a child they did not expect to raise. Similarly, grandmothers living in multigenerational households need to balance expectations and household/caregiving tasks across the generations. As part of a nationwide RCT designed to lessen the stress associated with the caregiving burden of raising grandchildren, we asked 342 grandmothers raising their grandchildren about their engagement with support groups and whether their social network included other grandfamilies. Here, we examine the effect of situational peers and support group engagement on grandmother’s stress, reward, social support, mental health, mindfulness, and resourcefulness. Of our sample, 53.8% (N=184) reported belonging to a support group. The majority of participants (138) belonged to online support groups on Facebook, 41 reported participating in in-person support groups, 3 belonged to both in-person and online support groups, and 8 did not respond. When asked whether and how well our participants knew other families like theirs, 31% (106) said they did not know any, 40.6% (139) knew of at least one, but not well, and 28.4% (97) said they had at least one friend with a family like her own. Knowing other families like their own affected self-appraised stress, but no other outcomes. Grandmothers participating in support groups had lower mindfulness scores, higher stress, and worse mental health scores than grandmothers not participating in support groups, possibly reflecting the higher need for support among those participants.

Investigation of the “alternative” effects of an online support group for mental health problems among Japanese adults: A cross-sectional study (Preprint)

2020 ◽  
Author(s):  
Osamu Kobori ◽  
Naoki Yoshinaga
Keyword(s):  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Help Seeking ◽  
Mental Health Problems ◽  
Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Usage Frequency

BACKGROUND Owing to the rapid development of social networking services, online support groups vary widely both in goal and structure. Several studies have shown the potential effectiveness of online support groups, such as reducing psychological distress (eg depression) among individuals with mental health problems. However, online support groups often do not aim at effectiveness regarding distress-relief-related outcomes. OBJECTIVE The U2plus.jp (hereinafter U2plus) is an online support group for individuals with depression; in it, people support each other in structured ways while engaging in simple cognitive behavioral therapy (CBT) exercises. This study aimed to examine if usage frequency of the U2plus functions are associated with decreased stigma and increased consumer. METHODS In total, 355 U2plus users took part in an online survey. They were asked what therapy they had ever received, how often they logged into it and used each of its functions, and completed the following questionnaires: The Patient Health Questionnaire-9 (PHQ-9), the Perceived Devaluation Discrimination Scale, and the General Help Seeking Scale. RESULTS Regarding the therapy they received, 89.3% (n=308) had been on medication for mental health problems, and 67.5% (n=233) had received psychotherapy or mental health counselling. Regarding the usage frequency, approximately 20% of the participants signed in to U2plus and used its functions more than once a week. The usage frequency of U2plus functions was not associated with perceived stigma. However, usage frequency of some functions was correlated to help seeking intentions from formal sources (eg doctors and psychologists). Moreover, 90% of the participants had a history of medication for their mental health. Additionally, the more depressed participants were, the more frequently they used U2plus. CONCLUSIONS It was suggested that online support groups may serve as an alternative treatment option for those who are already undergoing pharmacological treatment and are willing to seek help from whatever source they deem helpful.

scholarly journals The Public Health Impact and Policy Implications of Online Support Group Use for Mental Health in Singapore: Cross-Sectional Survey (Preprint)

2020 ◽  
Author(s):  
Kumarasan Roystonn ◽  
Janhavi Ajit Vaingankar ◽  
Boon Yiang Chua ◽  
Rajeswari Sambasivam ◽  
Saleha Shafie ◽  
...  
Keyword(s):  
Public Health ◽  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Mental Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Cross Sectional ◽  
Treatment Services

BACKGROUND The wide mental health treatment gap continues to pose a global and local public health challenge. Online support groups are on the rise and could be used to complement formal treatment services for mental health. OBJECTIVE This study aimed to examine the prevalence of online support group use and explore factors associated with the use in the general population using data from a national cross-sectional mental health survey in Singapore. METHODS Singapore residents aged 18 years and above participated in a nationally representative household survey in which the World Health Organization Composite International Diagnostic Interview 3.0 was administered by trained interviewers to examine the use of online support groups for mental health. Multiple logistic regressions were used to analyze the association of online support group use with various sociodemographic and health factors. RESULTS A total of 6110 respondents with complete data were included in this study. Overall, 10 individuals per 1000 adults (1%) reported seeking help from online support groups for their mental health problems. Compared to younger adults (those aged 18 to 34 years) and those with university education, individuals aged 50 to 64 years (<i>P</i>&lt;.001; OR 0.1, 95% CI 0.0-0.3) and those with preuniversity qualifications (<i>P</i>=.02; OR 0.1, 95% CI 0.0-0.8) were less likely to use online support groups for mental health, respectively. Participants with a Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) mental disorder were 6.8 times more likely (<i>P</i>&lt;.001; 95% CI 3.0-15.4) to use an online support group; in particular, individuals with major depressive disorder (<i>P</i>&lt;.001; OR 5.4, 95% CI 2.1-13.8) and obsessive compulsive disorder (<i>P</i>=.01; OR 3.5, 95% CI 1.3-9.7) were more likely to use an online support group for their mental health. CONCLUSIONS Online support groups could be used to complement formal treatment services, especially for mood and anxiety-related disorders. As online support group use for mental health issues may be more prevalent among younger people, early detection and accurate information in online support groups may guide individuals toward seeking professional help for their mental health problems.

scholarly journals The Public Health Impact and Policy Implications of Online Support Group Use for Mental Health in Singapore: Cross-Sectional Survey

10.2196/18114 ◽  
2020 ◽  
Vol 7 (8) ◽  
pp. e18114
Author(s):  
Kumarasan Roystonn ◽  
Janhavi Ajit Vaingankar ◽  
Boon Yiang Chua ◽  
Rajeswari Sambasivam ◽  
Saleha Shafie ◽  
...  
Keyword(s):  
Public Health ◽  
Mental Health ◽  
Support Groups ◽  
Support Group ◽  
Mental Health Problems ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Cross Sectional ◽  
Treatment Services

Background The wide mental health treatment gap continues to pose a global and local public health challenge. Online support groups are on the rise and could be used to complement formal treatment services for mental health. Objective This study aimed to examine the prevalence of online support group use and explore factors associated with the use in the general population using data from a national cross-sectional mental health survey in Singapore. Methods Singapore residents aged 18 years and above participated in a nationally representative household survey in which the World Health Organization Composite International Diagnostic Interview 3.0 was administered by trained interviewers to examine the use of online support groups for mental health. Multiple logistic regressions were used to analyze the association of online support group use with various sociodemographic and health factors. Results A total of 6110 respondents with complete data were included in this study. Overall, 10 individuals per 1000 adults (1%) reported seeking help from online support groups for their mental health problems. Compared to younger adults (those aged 18 to 34 years) and those with university education, individuals aged 50 to 64 years (P<.001; OR 0.1, 95% CI 0.0-0.3) and those with preuniversity qualifications (P=.02; OR 0.1, 95% CI 0.0-0.8) were less likely to use online support groups for mental health, respectively. Participants with a Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV) mental disorder were 6.8 times more likely (P<.001; 95% CI 3.0-15.4) to use an online support group; in particular, individuals with major depressive disorder (P<.001; OR 5.4, 95% CI 2.1-13.8) and obsessive compulsive disorder (P=.01; OR 3.5, 95% CI 1.3-9.7) were more likely to use an online support group for their mental health. Conclusions Online support groups could be used to complement formal treatment services, especially for mood and anxiety-related disorders. As online support group use for mental health issues may be more prevalent among younger people, early detection and accurate information in online support groups may guide individuals toward seeking professional help for their mental health problems.

Do online support groups help individuals affected by HIV/AIDS?: A systematic review of the quantitative and qualitative literature (Preprint)

2021 ◽  
Author(s):  
Neil Stewart Coulson ◽  
Heather Buchanan
Keyword(s):  
Systematic Review ◽  
Support Groups ◽  
Online Communication ◽  
Well Being ◽  
Qualitative Studies ◽  
Online Support ◽  
Illness Management ◽  
Online Support Groups ◽  
The Impact ◽  
Hiv Aids

BACKGROUND Online support groups provide opportunities for individuals affected by HIV/AIDS to seek information, advice and support from peers. However, if and how engagement with online support groups helps individuals affected by HIV/AIDS remains unclear. OBJECTIVE To systematically review the evidence (both quantitative and qualitative) around the benefits of online support groups for individuals affected by HIV/AIDS in terms of psychosocial wellbeing and/or illness management. In addition, the review sought to identify and describe any negative aspects experienced by individuals as well as the types of social support exchanged within such online groups. METHODS A systematic review of English language articles was undertaken using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Databases searched included Medline, PubMed, EMBASE, CINAHL, PsycINFO, CENTRAL (Cochrane Register of Controlled Trials) and SCOPUS. Key findings were critically synthesized using a narrative and thematic approach. RESULTS 22 papers met the inclusion criteria from an initial pool of 4501 abstracts. These papers included 5 quantitative, 2 mixed-methods and 15 qualitative studies published between 2007 and 2019. CONCLUSIONS Some cross-sectional and qualitative studies suggest there may be an association between engagement and a range of psychosocial processes and outcomes. However, studies with robust methodological designs are needed to definitively establish whether HIV/AIDS-related online support groups improve psychosocial well-being and/or illness management. Qualitative data highlights users can have negative experiences in terms of interpersonal conflict and the challenges of encountering negative content. In addition, there may be aspects of the internet-mediated nature of the online communication which compromise member experiences. Finally, HIV/AIDS-related online support groups are venues through which individuals can solicit support, most commonly informational or emotional support. Future research should seek to examine the impact of engagement with online support groups over time including appropriate control or comparison groups. CLINICALTRIAL N/A

Online Talk About Mental Health

2018 ◽  
Author(s):  
Joyce Lamerichs ◽  
Wyke Stommel
Keyword(s):  
Mental Health ◽  
Discourse Analysis ◽  
Support Groups ◽  
Mental Health Problems ◽  
Human Interaction ◽  
Online Support ◽  
Online Support Groups ◽  
Online Counseling ◽  
Computer Mediated ◽  
Mediated Discourse

There is a need to focus on research conducted on online talk about mental health in the domains of ethnomethodology, Conversation Analysis (CA), Discursive Psychology (DP), and Membership Categorization Analysis (MCA). We use the notion of “talk” in this article, as opposed to what could be considered a more common term such as “discourse,” to highlight that we approach computer-mediated discourse as inherently interactional. It is recipient designed and unfolds sequentially, responding to messages that have come before and building a context for messages that are constructed next. We will refer to the above domains that all share this view as CA(-related) approaches. A characterizing feature of interactional approaches to online mental health talk is their focus on in-depth analyses of relatively small amounts of data. With this focus at the center of their attention, they sit in the wider field of Discourse Analysis (DA), or Computer-Mediated Discourse Analysis (CMDA) who use language as their lens to understand human interaction. DA and CMDA research include a much wider set of both micro- and macro-analytic language-focused approaches to capture online discourse. Of all the CA(-related) work on online materials, a disproportionally large number of studies appear to deal with (mental) health talk. We aim to answer the question what the field of research on online mental health talk has yielded in terms of findings and methodologies. Centrally, CA (-related) studies of online mental health talk have aimed to grasp the actions people accomplish and the identities they invoke when they address their health concerns. Examples of actions in online mental health talk in particular are presenting oneself, describing a problem, or offering advice. Relevant questions for the above approaches that consider language-as-social-action are how these different actions are brought off and how they are received, by closely examining contributions such as e-mail and chat postings and their subsequent responses. With a focus on talk about mental health, this article will cover studies of online support groups (OSGs, also called online communities), and interaction in online counseling programs, mainly via online chat sessions. This article is organized as follows. In the historiography, we present an overview of CA(-related) work on online mental health talk. We discuss findings from studies of online support groups (OSGs) first and then move to results from studies on online counseling. The start of our historiography section, however, sets out to briefly highlight how the Internet may offer several particularly attractive features for those with mental health problems or a mental illness. After the historiography, we discuss what an interactional approach of online mental health talk looks like and focuses on. We offer examples of empirical studies to illustrate how written contributions to a forum, and e-mails or chat posts that are part of online counseling sessions are examined as interaction and which types of findings this results in. We conclude with a review of methodological issues that pertain to the field, address the most important ethical considerations that come into play when examining online mental health talk, and will lastly highlight some areas for future research.

scholarly journals GIVE A PIECE OF YOUR MIND: A CONTENT ANALYSIS OF A FACEBOOK SUPPORT GROUP FOR DEMENTIA CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S850-S850
Author(s):  
Jenny A Lagervall ◽  
Madeline R Lag ◽  
Sophie Brickman ◽  
Rebecca E Ingram ◽  
Leilani Feliciano
Keyword(s):  
Support Groups ◽  
Caregiver Burden ◽  
Support Group ◽  
Coping Strategy ◽  
Online Support ◽  
Online Support Groups ◽  
Dementia Caregivers ◽  
Caregiver Support ◽  
Emotional Tone ◽  
Grief Reactions

Abstract The online environment offers individuals a means of obtaining information, support, and social connection. Older adults are growing users of the internet1. Online support groups (e.g., Facebook groups) have been found to provide health-related information and encourage mental well-being2. They may be particularly advantageous for caregivers of individuals diagnosed with dementia, as it is difficult to leave loved ones with dementia alone. However, the mechanisms by which online support groups engage caregivers, and the content of support, have yet to be explored. In the current study, content from 100 posts from a private Facebook caregiver support group were evaluated for gender of post author, relationship to the person receiving care, distress, emotional tone, grief reaction, caregiver burden, and coping strategy. Results indicated that caregiver distress was associated with the presence of grief reactions, negative emotional tone, and higher caregiver burden. Utilizing venting as a coping strategy was associated with higher caregiver burden, similar to what is observed in a traditional in-person support group. Online communication for caregivers may provide an indication of caregivers’ psychological well-being, as specific coping strategies and grief reactions indicated higher levels of caregiver burden and distress. Research on interventions for dementia caregivers may benefit from a focus on online social support as a means of accessing caregivers and treatment delivery.

Ethics and Engagement in Communication Scholarship

2004 ◽  
pp. 174-202 ◽  
Author(s):  
Mary K. Walstrom
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Theoretical Framework ◽  
Online Support ◽  
Research Approach ◽  
Online Support Groups ◽  
Ethical Orientation ◽  
Ethical Challenges ◽  
Online Support Group ◽  
Ethical Concerns

This chapter asserts an engaged research approach that aims to meet the ethical challenges of public, online support group studies. First, the intrinsic ethical orientation of the theoretical framework undergirding this approach is detailed. Second, how this approach may guide qualitative-interpretive analyses of public, online support groups is explored. This section features two excerpts from a larger study conducted of one such group. Third, three additional features of engaged research that bolsters its capacity to address the ethical concerns of public, online support group studies are presented. The chapter with a call and rationale for future engaged research of such sites, stressing the benefits to research and support group communities alike.

Online Support Groups as a means of Chronic Pain Management for Patients with Genetic Disorders (Preprint)

2021 ◽  
Author(s):  
Sadaf Ashtari ◽  
Joseph Taylor ◽  
Kelsie Goff
Keyword(s):  
Chronic Pain ◽  
Pain Management ◽  
Information Extraction ◽  
Support Groups ◽  
Support Group ◽  
Rare Diseases ◽  
Online Support ◽  
Online Support Groups ◽  
Online Support Group ◽  
Ehlers Danlos Syndrome

BACKGROUND Rare diseases with symptoms that include chronic pain present a challenge for patients and providers to manage. Lack of experience with rare diseases may result in clinicians relying on general pain management strategies such as narcotics in circumstances where alternative forms of pain support may be available. OBJECTIVE In this research, we examine how patients extract information, and receive emotional support, through the use of an online support group. We develop a model to describe factors that both enhance and constrain the use of online support groups to engage with patients. METHODS This study uses path analysis to examine survey data related to participation in an online support group from patients managing Ehlers-Danlos Syndrome (EDS). RESULTS We present a model with excellent goodness of fit indices that exceed a CFI of .995, and an RMSEA value of less than .04. Our model presents nine hypotheses which are all supported. Our analysis of the data shows a significant value of all predicted paths with a p<.001. CONCLUSIONS Our findings demonstrate that a feeling of belonging, a willingness to share, and comfort with the technology that supports an online community are associated with patients reporting greater levels of information extraction and social support from online support groups. We further find that greater levels of concern regarding privacy and security of information were associated with lower levels of willingness to share and information extraction of patients from online support groups.

Exploring Member-Leader Behaviors and Interaction in an Online Support Group

2018 ◽  
Vol 49 (4) ◽  
pp. 452-474 ◽  
Author(s):  
Emily A. Paskewitz ◽  
Stephenson J. Beck
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Process Analysis ◽  
Online Support ◽  
Online Support Groups ◽  
Leader Behaviors ◽  
Online Support Group ◽  
Online Groups ◽  
Meaning Attribution ◽  
To Receive

Online support groups are a common way for people to receive social support. Utilizing online support sites allows members to connect with people in similar situations, without the need for geographic proximity. Many online groups rely on member-leaders, or individuals with personal experience, to lead groups. These member-leaders are often favored by members over professional leaders but often lack training in leadership. This project explored how member-leaders interact in an online support group. This article uses both interaction process analysis (IPA) and research on leader behaviors to understand how member-leaders communicate in online support groups. Results show that leaders primarily use task messages, with the majority of leader behaviors labeled as meaning attribution and use of self. Member-leaders primarily focused on perspective taking rather than discussion facilitation. An examination of the task and relational interaction profile in terms of leader behaviors is also explored.

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