scholarly journals Kinlessness and Social Isolation at the End of Life: Cross-National Comparisons

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 603-603
Author(s):  
Christine Mair ◽  
Katherine Ornstein ◽  
Feinian Chen

Abstract Nearly all older adults cross-nationally rely on close family members to facilitate care at the end-of-life, but recent demographic shifts toward declining fertility and marriage rates have yielded an unprecedented increase in older adults who lack traditional family ties (“kinless”). “Kinless” older adults may be at risk for social isolation, lack of caregiving options, and poorer end-of-life outcomes, and these risks may be buffered or exacerbated by social and economic resources as well as country context. Because the potential impact of “kinlessness” on end-of-life outcomes cross-nationally is unknown and virtually unstudied, this symposium composed of overlapping, interdisciplinary research teams investigate if and how “kinlessness” is associated with end-of-life outcomes cross-nationally. Mudrazija and Ornstein analyze a sample of older European adults (SHARE) to predict location of death (e.g., home deaths) by family size, living alone, and size of social network. Plick, Ankuda, and Ornstein examine a sample of older American decedents (HRS) to predict end-of-life outcomes (e.g., hours of care received, location of death). Mair, Ornstein, Aldridge, and Thygesen explore associations between family structure and multiple end-of-life outcomes (e.g., hospitalizations, ICU visits, medical treatment) among the population of decedents aged 50+ from Denmark. Finally, Mair, Ornstein, Calvo, Donoso, and Medina explore family structure, social isolation, loneliness, and end-of-life outcomes among a sample of older adults from 20 countries (Gateway to Global Aging). These papers will be discussed by Feinian Chen, a family sociologist and social demographer who specializes in cross-national comparisons of older adults’ family structures, country context, and health.

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 604-604
Author(s):  
Esteban Calvo ◽  
Christine Mair ◽  
Katherine Ornstein ◽  
Rosario Donoso ◽  
José Medina

Abstract Countries across the globe are experiencing declining rates of fertility and marriage, which present a distinct challenge for older adults’ social integration, well-being, and end-of-life care. However, older adults who are “alone” (e.g., no partner, no child) may not be lonely, and end-of-life risks faced by “kinless” older adults likely vary significantly by country context. Using harmonized, cross-national data from 20 countries (United States (HRS), England (ELSA), and European Union (SHARE)), we examine associations between family structure, loneliness, and end-of-life outcomes. Although “kinless” family structures are associated with greater loneliness in the pooled sample, the percent of “kinless” who report no signs of loneliness ranges from 7% (Greece) to 56% (Denmark). Family structure is associated with various end-of-life outcomes, and these associations vary by country—likely reflecting differences in healthcare structure. We discuss distinctions between “being alone,” “being lonely,” and “being without care” in light of cross-national variation.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 603-604
Author(s):  
Christine Mair ◽  
Katherine Ornstein ◽  
Melissa Aldridge ◽  
Lau Thygesen

Abstract Demographic changes that lead to “kinlessness” such as low fertility and low marriage rates are not a recent phenomenon for the countries of Northern Europe, such as Denmark. Characterized by small family sizes, high individualism, and a highly formalized healthcare system that is less dependent on family caregivers, Denmark presents a useful case study for the analysis of end-of-life outcomes among the “kinless.” We analyze the population of decedents aged 50 and older (N=175,755) using Danish civil registry data. Approximately 15% of those who died in Denmark had no living partner and no living child. Danish decedents’ family structures are associated with multiple end-of-life outcomes, including number of hospitalizations, ICU visits, and use of specific medical treatments—but not always in the direction hypothesized. Denmark’s highly formalized and individualized healthcare system may offer insight regarding healthcare reform in countries that have yet to complete the second demographic transition.


Author(s):  
Jennifer Ailshire ◽  
Margarita Osuna ◽  
Jenny Wilkens ◽  
Jinkook Lee

Abstract Objectives Family is largely overlooked in research on factors associated with place of death among older adults. We determine if family caregiving at the end of life is associated with place of death in the United States and Europe. Methods We use the Harmonized End of Life data sets developed by the Gateway to Global Aging Data for the Survey of Health, Ageing and Retirement in Europe (SHARE) and the Health and Retirement Study (HRS). We conducted multinomial logistic regression on 7,113 decedents from 18 European countries and 3,031 decedents from the United States to determine if family caregiving, defined based on assistance with activities of daily living, was associated with death at home versus at a hospital or nursing home. Results Family caregiving was associated with reduced odds of dying in a hospital and nursing home, relative to dying at home in both the United States and Europe. Care from a spouse/partner or child/grandchild was both more common and more strongly associated with place of death than care from other relatives. Associations between family caregiving and place of death were generally consistent across European welfare regimes. Discussion This cross-national examination of family caregiving indicates that family-based support is universally important in determining where older adults die. In both the United States and in Europe, most care provided during a long-term illness or disability is provided by family caregivers, and it is clear families exert tremendous influence on place of death.


2003 ◽  
Author(s):  
John T. Cacioppo ◽  
Louise C. Hawkley

Author(s):  
Stephanie Veazie ◽  
Jennifer Gilbert ◽  
Kara Winchell ◽  
Robin Paynter ◽  
Jeanne-Marie Guise

2020 ◽  
Author(s):  
Rachel Elizabeth Weiskittle ◽  
Michelle Mlinac ◽  
LICSW Nicole Downing

Social distancing measures following the outbreak of COVID-19 have led to a rapid shift to virtual and telephone care. Social workers and mental health providers in VA home-based primary care (HBPC) teams face challenges providing psychosocial support to their homebound, medically complex, socially isolated patient population who are high risk for poor health outcomes related to COVID-19. We developed and disseminated an 8-week telephone or virtual group intervention for front-line HBPC social workers and mental health providers to use with socially isolated, medically complex older adults. The intervention draws on skills from evidence-based psychotherapies for older adults including Acceptance and Commitment Therapy, Cognitive-Behavioral Therapy, and Problem-Solving Therapy. The manual was disseminated to VA HBPC clinicians and geriatrics providers across the United States in March 2020 for expeditious implementation. Eighteen HBPC teams and three VA Primary Care teams reported immediate delivery of a local virtual or telephone group using the manual. In this paper we describe the manual’s development and clinical recommendations for its application across geriatric care settings. Future evaluation will identify ways to meet longer-term social isolation and evolving mental health needs for this patient population as the pandemic continues.


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