scholarly journals Perspectives on Dementia Service Use and Family Caregiving Among the Oneida Nation of Wisconsin

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 710-710
Author(s):  
Mary Wyman ◽  
Nickolas Lambrou ◽  
Debra Miller ◽  
Sunshine Wheelock ◽  
Florence Petri ◽  
...  
Keyword(s):  
Family Caregiver ◽  
Family Caregiving ◽  
Service Use ◽  
Care Service ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Dementia Care ◽  
Community Based ◽  
Caregiver Support ◽  
The Family

Abstract Prevalence of dementia among American Indian/Alaska Natives (AI/AN) is higher than in white populations, and AI/AN communities experience dementia care service gaps. This study explored perspectives within AI/AN communities regarding dementia, the family caregiver role, and home and community-based service use. Using tenets of Community-Based Participatory Research, qualitative interviews and a brief survey were conducted with 22 members of the Oneida Nation of Wisconsin (mean age 71 years, 73% female). Of the sample, 63.6% identified as a past or current family caregiver for a loved one with dementia. Awareness of services varied; 82% were aware of memory cafes, 75% knew of the caregiver support group, and 43% were familiar with dementia care specialist services. Thematic analysis revealed shared values of involving the family and community in dementia care, and offer guidance to support greater engagement in services. Implications for culturally-tailored service provision within AI/AN communities are discussed.

Innovating for Transformation in First Nations Health Using Community-Based Participatory Research

2018 ◽  
Vol 28 (7) ◽  
pp. 1036-1049 ◽  
Author(s):  
Grace Kyoon-Achan ◽  
Josée Lavoie ◽  
Kathi Avery Kinew ◽  
Wanda Phillips-Beck ◽  
Naser Ibrahim ◽  
...  
Keyword(s):  
First Nations ◽  
Participatory Research ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Study Data ◽  
Lessons Learned ◽  
Research Approach ◽  
Sustainable Change ◽  
Community Based ◽  
Participatory Research Approach

Community-based participatory research (CBPR) provides the opportunity to engage communities for sustainable change. We share a journey to transformation in our work with eight Manitoba First Nations seeking to improve the health of their communities and discuss lessons learned. The study used community-based participatory research approach for the conceptualization of the study, data collection, analysis, and knowledge translation. It was accomplished through a variety of methods, including qualitative interviews, administrative health data analyses, surveys, and case studies. Research relationships built on strong ethics and protocols to enhance mutual commitment to support community-driven transformation. Collaborative and respectful relationships are platforms for defining and strengthening community health care priorities. We further discuss how partnerships were forged to own and sustain innovations. This article contributes a blueprint for respectful CBPR. The outcome is a community-owned, widely recognized process that is sustainable while fulfilling researcher and funding obligations.

scholarly journals Utilization of Home and Community-Based Resources by Family Caregivers in a Native American Community

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 354-355
Author(s):  
Debra Miller ◽  
Sunshine Wheelock ◽  
Florence Petri ◽  
Elijah Metoxen ◽  
Nickolas Lambrou ◽  
...  
Keyword(s):  
Native American ◽  
Cultural Values ◽  
Family Caregivers ◽  
Alaska Native ◽  
Family Caregiving ◽  
Service Use ◽  
Community Based ◽  
Aging Research ◽  
Sources Of Knowledge ◽  
Service Type

Abstract Family caregiving is uniquely significant for elder care within American Indian/Alaska Native (AI/AN) communities. Compared to other populations, AI/AN older adults are disproportionately impacted by chronic conditions and AI/AN are more likely to be family caregivers. However, AI/AN are underrepresented in aging research. We describe a successful research partnership with the Oneida Nation of Wisconsin and report results of a recent survey of tribal members and affiliates (N=405), covering demographics of caregiving, awareness and use of home and community-based resources, and perceptions of factors impacting service use. Approximately 42% of respondents were current caregivers; of these, roughly one-third knew how to access various resources. Most common sources of knowledge were a health care/social worker or finding information on their own. Traditional cultural values were viewed as variably supportive of resource utilization, depending on service type. Implications for efforts to address disparities for AI/AN aging and support caregivers will be discussed.

scholarly journals Family Caregiver Support of Patient Self-Management During Chronic, Life-Limiting Illness: A Qualitative Metasynthesis

2020 ◽  
pp. 107484072097718
Author(s):  
Dena Schulman-Green ◽  
Shelli L. Feder ◽  
J. Nicholas Dionne-Odom ◽  
Janene Batten ◽  
Victoria Jane En Long ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Family Caregiver ◽  
Personal Characteristics ◽  
Self Management ◽  
Caregiver Support ◽  
Factors Affecting ◽  
The Family ◽  
Integral Role ◽  
Caregiver Role ◽  
Search Quality

Family caregivers play an integral role in supporting patient self-management, yet how they perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers’ processes to support patient self-management of chronic, life-limiting illness and factors affecting their support. Methods included a systematic literature search, quality appraisal of articles, data abstraction, and data synthesis to produce novel themes. Thirty articles met inclusion criteria, representing 935 international family caregivers aged 18 to 89 years caring for patients with various health conditions. Three themes characterized family caregivers’ processes to support patient self-management: “Focusing on the Patient’s Illness Needs,” “Activating Resources to Support Oneself as the Family Caregiver,” and “Supporting a Patient Living with a Chronic, Life-Limiting Illness.” Factors affecting family caregivers’ support included Personal Characteristics, Health Status, Resources, Environmental Characteristics, and the Health Care System. The family caregiver role in supporting patient self-management is multidimensional, encompassing three processes of care and influenced by multiple factors.

scholarly journals Scaling Up a Community-Based Exercise Program for Women in Difficult Life Situations in Germany—The BIG Project as a Case-Study

2021 ◽  
Vol 18 (18) ◽  
pp. 9432
Author(s):  
Annika Herbert-Maul ◽  
Karim Abu-Omar ◽  
Anna Streber ◽  
Zsuzsanna Majzik ◽  
Jeanette Hefele ◽  
...  
Keyword(s):  
Qualitative Interviews ◽  
Scale Up ◽  
Exercise Program ◽  
Community Based Participatory Research ◽  
Scaling Up ◽  
Participatory Methods ◽  
Community Based ◽  
Socially Disadvantaged ◽  
Disadvantaged Women

Scaling up community-based participatory research (CBPR) remains challenging. This case-study reports on how, and under which conditions, a CBPR project aiming at promoting exercise among socially disadvantaged women (BIG) scaled up at four project sites. As part of BIG, researchers support city administrations in implementing a participatory project to reach socially disadvantaged women for exercise. The case study was conducted in winter 2020 in southern Germany and is based on a co-creative process involving city administrators and researchers. Following Kohl and Cooley’s scaling up dimensions, scaling up BIG was investigated at the four sites using a mixed-method approach. Course registrations and offers were analysed, and qualitative interviews (n = 4) with administrative staff members were conducted and analysed using content analysis. The geographical coverage of exercise classes, the addressed groups, and the utilisation of participatory methods by city administrations are described. All four sites managed to scale-up project activities. Three of the four sites reported that further growth of the project was no longer possible due to limited resources. All sites attempted to reach a larger number of, and more diverse, women. One site managed to scale-up the use of participatory methods within the city administration. The following important facilitators for scaling up CBPR projects were reported: advertisements tailored to the needs of the addressed women, utilising participatory approaches, and equipping project coordinators with sufficient resources.

scholarly journals BURDEN OF FAMILY CAREGIVER

2016 ◽  
Vol 2 (1) ◽  
pp. 10-18 ◽  
Author(s):  
Faida Annisa
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Family Caregivers ◽  
Health Care Providers ◽  
Nursing Care ◽  
Family Caregiver ◽  
Negative Consequences ◽  
Care Providers ◽  
Community Based ◽  
The Family

Shifting from hospital-based care to community-based care involves the family as advanced caregivers to the patients with Schizophrenia at their home. Yet, they have need of knowledge and skill in caring the patients as well as support from health care providers and society. Family caregivers should be well-prepared to take care the patients with Schizophrenia at home since it gets some negative consequences on their physical, psychological, social, and financial. Nurse need to assess the factors that might influence the family caregivers to felling burden, and include the family caregivers into nursing care in which would not only to improve the patients’ mental health but the family caregivers as well.

Sign in / Sign up

Export Citation Format

Share Document