scholarly journals Utilization of Home and Community-Based Resources by Family Caregivers in a Native American Community

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 354-355
Author(s):  
Debra Miller ◽  
Sunshine Wheelock ◽  
Florence Petri ◽  
Elijah Metoxen ◽  
Nickolas Lambrou ◽  
...  
Keyword(s):  
Native American ◽  
Cultural Values ◽  
Family Caregivers ◽  
Alaska Native ◽  
Family Caregiving ◽  
Service Use ◽  
Community Based ◽  
Aging Research ◽  
Sources Of Knowledge ◽  
Service Type

Abstract Family caregiving is uniquely significant for elder care within American Indian/Alaska Native (AI/AN) communities. Compared to other populations, AI/AN older adults are disproportionately impacted by chronic conditions and AI/AN are more likely to be family caregivers. However, AI/AN are underrepresented in aging research. We describe a successful research partnership with the Oneida Nation of Wisconsin and report results of a recent survey of tribal members and affiliates (N=405), covering demographics of caregiving, awareness and use of home and community-based resources, and perceptions of factors impacting service use. Approximately 42% of respondents were current caregivers; of these, roughly one-third knew how to access various resources. Most common sources of knowledge were a health care/social worker or finding information on their own. Traditional cultural values were viewed as variably supportive of resource utilization, depending on service type. Implications for efforts to address disparities for AI/AN aging and support caregivers will be discussed.

scholarly journals Perspectives on Dementia Service Use and Family Caregiving Among the Oneida Nation of Wisconsin

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 710-710
Author(s):  
Mary Wyman ◽  
Nickolas Lambrou ◽  
Debra Miller ◽  
Sunshine Wheelock ◽  
Florence Petri ◽  
...  
Keyword(s):  
Family Caregiver ◽  
Family Caregiving ◽  
Service Use ◽  
Care Service ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Dementia Care ◽  
Community Based ◽  
Caregiver Support ◽  
The Family

Abstract Prevalence of dementia among American Indian/Alaska Natives (AI/AN) is higher than in white populations, and AI/AN communities experience dementia care service gaps. This study explored perspectives within AI/AN communities regarding dementia, the family caregiver role, and home and community-based service use. Using tenets of Community-Based Participatory Research, qualitative interviews and a brief survey were conducted with 22 members of the Oneida Nation of Wisconsin (mean age 71 years, 73% female). Of the sample, 63.6% identified as a past or current family caregiver for a loved one with dementia. Awareness of services varied; 82% were aware of memory cafes, 75% knew of the caregiver support group, and 43% were familiar with dementia care specialist services. Thematic analysis revealed shared values of involving the family and community in dementia care, and offer guidance to support greater engagement in services. Implications for culturally-tailored service provision within AI/AN communities are discussed.

scholarly journals Development and Validation of a Community Assessment Tool for Diverse Rural Family Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 97-97
Author(s):  
Michael McCarthy ◽  
Morgan Lee-Regalado Hustead ◽  
Rachel Bacon ◽  
Yolanda Evie Garcia ◽  
Dorothy Dunn ◽  
...  
Keyword(s):  
Native American ◽  
Cultural Values ◽  
Family Caregivers ◽  
Assessment Tool ◽  
The United States ◽  
Initial Assessment ◽  
Community Assessment ◽  
Response Options ◽  
Rural Caregivers ◽  
Poor Outcomes

Abstract The aging of the United States population has led to an increase in the prevalence of Alzheimer’s Disease and Related Dementias (ADRD). Many individuals with ADRD receive care from family members and friends who, themselves, experience poor health outcomes. ADRD family caregivers from diverse backgrounds are frequently underserved by health and social service systems. However, research suggests that diverse caregivers possess culturally-based strengths that serve as protective factors against poor outcomes. This presentation reports findings from a study to develop and validate a community assessment of the needs, assets, and resources of rural Latinx and Native American ADRD family caregivers. Initial assessment items were based upon validated measures developed for diverse ADRD and comparable caregiver populations. A Delphi process was used to obtain ratings from a 9-member expert panel (ADRD policy makers, providers, and family caregivers) about the degree to which the assessment was: (1) inclusive of different cultural groups; (2) respectful of cultural values and norms; (3) comprehensive with respect to needs, assets, and resources, and; (4) relevant to the lived experiences of diverse rural caregivers. Experts also provided qualitative feedback about modifying phrases to make the assessment more relevant to diverse respondents, removing sections, and adding items and response options to better reflect rural life. After two formal rounds of review and multiple iterations, between 77% and 100% of experts agreed that all sections of the assessment met criteria. Findings highlight the benefits of a systematic process for developing and validating community assessments for diverse, rural populations.

scholarly journals Are the Elderly Perceived as a Burden to Society? The Perspective of Family Caregivers in Belgium and Kenya: A Comparative Study

2018 ◽  
Vol 30 (2) ◽  
pp. 124-131 ◽  
Author(s):  
Stefaan Six ◽  
Sophia Musomi ◽  
Reginald Deschepper
Keyword(s):  
Comparative Study ◽  
Coping Strategies ◽  
Cultural Values ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Interpretative Phenomenological Analysis ◽  
Well Being ◽  
The Elderly ◽  
Phenomenological Analysis ◽  
Semistructured Interviews

Introduction: It is estimated that 70% to 80% of informal care for frail and disabled elders is provided by family caregivers (FCGs). Aim: To better understand how caregiving for the elderly has affected FCGs lives and to compare the perspective of these caregivers in Belgium and Kenya. Method: Semistructured interviews were undertaken with 15 FCGs in Kenya and 15 FCGs in Belgium. Interpretative phenomenological analysis was used to identify themes. Results: Themes discovered in the experience of family caregiving included profile of the care receiver, impact of caregiving on the FCG, cultural values and norms, challenges in caregiving, coping strategies and caregiver well-being. Discussion: FCGs in both Kenya and Belgium identified experiencing serious concerns. In Kenya, the lack of resources and formal structures play a more important role than in Belgium. Despite this difference, culture-specific views and norms are paramount to explaining the FCG experience in the two countries.

scholarly journals Computer-mediated Focus Groups to Advance Aging Research: Challenges and Opportunities

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 842-843
Author(s):  
David Coon ◽  
Abigail Gomez-Morales ◽  
Phil Carll ◽  
Lourdes Cordova ◽  
Allison Glinka ◽  
...  
Keyword(s):  
Older Adults ◽  
Native American ◽  
Focus Groups ◽  
Family Caregivers ◽  
Rural Areas ◽  
Aging Research ◽  
Financial Barriers ◽  
Care Recipients ◽  
Computer Mediated ◽  
Challenges And Opportunities

Abstract When compared to in-person offerings, fewer focus groups to date have been conducted with user-friendly technologies to help reach diverse communities of older adults with chronic health conditions (e.g., Alzheimer’s disease, Type II diabetes, Parkinson’s) and the family caregivers and professional providers who assist them. The current project describes the adaptations needed to deliver successful computer-mediated focus groups via videoconference, thereby providing solutions to barriers faced by participants who often cannot attend in-person because they are housebound due to transportation or financial barriers, live in rural areas or reside too far from focus group offerings, or work full or part-time and face scheduling conflicts. During the pandemic, we successfully recruited diverse groups of family caregivers, care recipients, and professional providers into computer-mediated focus groups. Caregivers (83%) and care recipients (17%) between 34 to 90 years old (N=47) took part in the series of focus groups facilitated in English and Spanish (25.5%). Over 40% of participants self-identified as Hispanic or Latinx, Native American, or African American with roughly 15% attending from rural areas. Similarly, professional providers age 18 to 80 (N=25) attended separate groups in either English or Spanish (48%). Our results suggest that computer-mediated focus groups offer a unique opportunity to reach diverse samples of older adults, family caregivers, and their providers. These computer-mediated focus groups also offer the chance to learn novel ways to break barriers to health access by providing virtual reach capabilities for those facing health, transportation, work, or geographic barriers.

scholarly journals Disrupting the Status Quo: The New Normal of Family Caregivers’ Service Use

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 353-354
Author(s):  
Karen Moss ◽  
Verena Cimarolli ◽  
Karen Rose
Keyword(s):  
Native American ◽  
Family Caregivers ◽  
Support Groups ◽  
Family Caregiver ◽  
Service Use ◽  
Care Program ◽  
Supportive Services ◽  
Long Distance ◽  
New Findings ◽  
Supportive Service

Abstract Family caregivers are essential partners in chronic disease management for older adults. However, being a family caregiver can have negative mental and physical health consequences, making it important for some caregivers to rely on supportive services, either for themselves (e.g. support groups) or to get help with caregiving tasks (e.g. home care). Supportive service use by family caregivers is well documented; yet, this research has often not included specific subgroups of caregivers (e.g. the racially/ethnically, or geographically diverse). Hence, the purpose of this symposium is to share new findings from research on supportive service use in understudied caregiving populations. First, Dr. Cimarolli presents findings from a study on the types of supportive services long-distance caregivers use for themselves and the factors associated with supportive service use in this caregiver population. Then, Dr. Wyman reports findings from a survey on the use of home and community-based resources by family caregivers in a Native American community. Dr. Wright will share the results of a systematic review of self-care interventions designed for caregivers of African Americans living with dementia. Finally, Dr. Mavandadi presents the results of a study examining the effectiveness of a telephone-based, collaborative dementia care program for improving outcomes in caregivers of military veterans living with dementia. Dr. Karen Rose will discuss the implications of each of these study findings for the development and evaluation of supportive interventions for these specialized family caregiver groups.

A Typology of Caregiving Situations and Service Use in Family Carers of Older People in Six European Countries

GeroPsych ◽  
2011 ◽  
Vol 24 (1) ◽  
pp. 5-18 ◽  
Author(s):  
Mirko Di Rosa ◽  
Christopher Kofahl ◽  
Kevin McKee ◽  
Barbara Bień ◽  
Giovanni Lamura ◽  
...  
Keyword(s):  
Health Services ◽  
Older People ◽  
Support Services ◽  
Family Caregiving ◽  
Service Use ◽  
European Countries ◽  
Limited Resources ◽  
Family Carers ◽  
Policy Initiatives ◽  
Typology Of Care

This paper presents the EUROFAMCARE study findings, examining a typology of care situations for family carers of older people, and the interplay of carers with social and health services. Despite the complexity of family caregiving situations across Europe, our analyses determined the existence of seven “caregiving situations,” varying on a range of critical indicators. Our study also describes the availability and use of different support services for carers and care receivers, and carers’ preferences for the characteristics of support services. Our findings have relevance for policy initiatives in Europe, where limited resources need to be more equitably distributed and services should be targeted to caregiving situations reflecting the greatest need, and organized to reflect the preferences of family carers.

Native American Cultural Values and Beliefs Scale

2006 ◽  
Author(s):  
W. Rusty Reynolds ◽  
Randal P. Quevillon ◽  
Beth Boyd ◽  
Duane Mackey
Keyword(s):  
Native American ◽  
Cultural Values ◽  
Values And Beliefs

The Socialization of Unpaid Family Caregivers: A Scoping Review

2021 ◽  
pp. 016402752110050
Author(s):  
Kirstie McAllum ◽  
Mary Louisa Simpson ◽  
Christine Unson ◽  
Stephanie Fox ◽  
Kelley Kilpatrick
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Scoping Review ◽  
Family Caregiving ◽  
Family Processes ◽  
Future Research ◽  
Socialization Process ◽  
Role Negotiation ◽  
Role Learning ◽  
Socialization Agents

As unpaid family caregiving of older adults becomes increasingly prevalent, it is imperative to understand how family caregivers are socialized and how they understand the caregiving role. This PRISMA-ScR-based scoping review examines the published literature between 1995–2019 on the socialization of potential and current unpaid family caregivers of older adults. Of 4,599 publications identified, 47 were included. Three perspectives of socialization were identified: (1) role acculturation; (2) role negotiation and identification; and (3) specialized role learning. The findings show how socialization involves different contexts (e.g., cultures), imperatives for action (e.g., circumstances), socialization agents (e.g., family), processes (e.g., modeling), and internal (e.g., normalization) and external (e.g., identification) consequences for caregivers. Future research could fruitfully explore how caregivers manage key turning points within the socialization process, disengage from the caregiving role, and negotiate the socialization and individualization processes within diverse cultural and funding contexts.

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