scholarly journals WHO CARES? PREFERENCES REGARDING FORMAL AND INFORMAL CARE AMONG OLDER ADULT SERVICE USERS

2018 ◽  
Vol 2 (suppl_1) ◽  
pp. 327-327
Author(s):  
K Lee ◽  
M Revelli ◽  
D Dickson ◽  
P Marier
2019 ◽  
Vol 23 (2) ◽  
pp. 89-100 ◽  
Author(s):  
Luke Emrich-Mills ◽  
Laura Louise Hammond ◽  
Emma Rivett ◽  
Tom Rhodes ◽  
Peter Richmond ◽  
...  

PurposeIncluding the views of service users, carers and clinical staff when prioritising health research can ensure future projects are meaningful and relevant to key stakeholders. One National Health Service Foundation Trust in England, UK undertook a project to identify the top 10 research priorities according to people with experience using or working in services for dementia and older adult mental health. The paper aims to discuss these issues.Design/methodology/approachService users with dementia and mental health difficulties; informal carers, family and friends of service users; clinical staff working in the Trust. Participants were surveyed for research ideas. Ideas were processed into research questions and checked for evidence. Participants were then asked to prioritise their personal top 10 from a long list of research questions. A shortlist of 26 topics was discussed in a consensus workshop with a sample of participants to decide on the final top 10 research priorities.FindingsA total of 126 participants provided 418 research ideas, leading to 86 unique and unanswered research questions. In total, 58 participants completed interim prioritisation, 11 of whom were invited to the consensus workshop involving service users, carers and clinical staff. The final top 10 priorities were dominated by topics surrounding care, psychosocial support and mental health in dementia.Research limitations/implicationsFuture research from the Trust and collaborating organisations can use these results to develop relevant projects and applications for funding.Originality/valueThis project has demonstrated the possibility of including key stakeholders in older adult mental health research priority setting at the local level.


2018 ◽  
Vol 32 (1) ◽  
pp. 18-26
Author(s):  
Jane Gosine ◽  
Ray Travasso

Music enables us not only to reflect upon the world in which we live but also to become active agents in creating and shaping it and ourselves. The Treehouse Choir is an innovative, therapeutic programme open to all adult service users and staff at one of the East Anglia’s Children’s Hospices. The target group of the choir membership focuses primarily on the mothers of children receiving care at the hospice and bereaved mothers. The choir addresses the need for psychosocial support for families as they face the challenges of caring for a child with life-limiting and complex health conditions, as well as families mourning the loss of a child. This article analyzes data collected from questionnaires and interviews referring to the emotional, psychological and social benefits of participation in the choir. It examines how singing in the choir serves as a means through which individuals form a community built on shared life experiences, bridging boundaries between service provider and service user, creating a means of self-expression, and breaking down barriers to enable new lines of communication within a non-threatening environment. It also examines the role of public performances in promoting greater awareness of the services provided by the hospice.


2020 ◽  
Vol 9 (10) ◽  
pp. 181
Author(s):  
Lilith Brouwers ◽  
Tess Herrmann

In-person sex work is one of the industries most directly affected by the COVID-19 pandemic. In order to connect with clients, most independent sex workers use adult service websites (ASWs), whose services range from simple advertising websites to platforms with both direct and indirect governance of workers. Although ASWs do not employ sex workers, their response to the pandemic has a large impact on sex workers’ financial and physical wellbeing. This effect is even stronger among migrant workers, who are less likely to qualify for, or be aware they qualify for, government support. This study reviews the response to COVID-19 of 45 of the leading ASWs in Britain, and triangulates the data with seven sex worker-led organisations. It shows a large variation in the responses of ASWs: the majority had no public response to the pandemic at all, a minority took intentional steps to support workers or donated to hardship funds for sex workers, and at least one ASW reduced their safety features during the pandemic. These findings illustrate that while most ASWs do not acknowledge the influence they have over the working practices of their service users and the shift of economic risk to them, some recognised the potential that their platforms have to support sex workers during crises.


2016 ◽  
Vol 84 (2) ◽  
pp. 180-206 ◽  
Author(s):  
Julia Hahmann

Friends are important companions and serve as sources for diverse dimensions of social support, including elderly care. Rather than researching populations that have already established care arrangements including friends, the author seeks to understand relationship systems with a focus on the inner logic friendship to consequently describe and understand involved care arrangements, be it with family members or friends. To illustrate the diversity of friendship repertoires, qualitative interviews with older adult Germans are analyzed regarding cognitive concepts of friendships in contrast to familiar ties as well as social practices around relationship systems. While some repertoires successfully include chosen ties in their care arrangements, others not only focus on family, they do not wish to receive care from friends. The article’s praxeological approach highlights the need to reflect habitual differences when thinking about elderly informal care arrangements.


2018 ◽  
Vol 24 (9) ◽  
pp. 33-40 ◽  
Author(s):  
Sharon Edwards ◽  
Samantha McCormack
Keyword(s):  

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