scholarly journals AN ANALYSIS OF STRESS VS. COPING LANGUAGE ON DEMENTIA CAREGIVER SUPPORT WEBSITES

2016 ◽  
Vol 56 (Suppl_3) ◽  
pp. 327-327
2011 ◽  
Vol 171 (4) ◽  
Author(s):  
Linda Olivia Nichols ◽  
Jennifer Martindale-Adams ◽  
Robert Burns ◽  
Marshall J. Graney ◽  
Jeffrey Zuber

2021 ◽  
Author(s):  
Jinhee Cha ◽  
Colleen M. Peterson ◽  
Ashley N Millenbah ◽  
Katie Louwagie ◽  
Zachary G Baker ◽  
...  

BACKGROUND Estimates suggest that 6.2 million Americans aged 65 and older are living with Alzheimer’s dementia in 2021 and by 2060, that number could more than double to 13.8 million. As a result, public health officials anticipate a greater need for caregivers for persons with Alzheimer’s disease or a related dementia (ADRD), as well as support resources for both people living with dementia (PLWD) and their caregivers. Despite the growing need for dementia caregiver support services, there is a lack of consensus regarding how to tailor these services to best meet the heterogeneous needs of individual caregivers. To fill this gap, “Care To Plan” (CtP), an online tool for caregivers of PLWD, was developed to provide tailored support recommendations to dementia caregivers. OBJECTIVE The objective of this study was to formally explore the feasibility, acceptability and utility of CtP for 20 family members of PLWD within a health system over a one month time period using a mixed methods parallel convergent design. METHODS A moderately sized health system in the mid-Atlantic region was selected as the site for CtP implementation where 20 caregivers who were family members of PLWD were enrolled. The web-based CtP tool was used directly by caregivers and facilitated by a healthcare professional (i.e., a “senior care navigator”/SCN). Caregivers were given a 21-item review checklist to assess barriers and facilitators associated with reviewing CtP with a SCN. Following the 21-item review checklist, semi-structured telephone interviews, which included 18 open-ended questions, focused on the facilitators and barriers to CtP implementation and recommendations for future implementation. RESULTS Quantitative results suggested that 76.5% and 85.7% of caregivers agreed or strongly agreed that after using the tool they were able to find a service that would meet their needs and those of their care recipient, respectively. Qualitative analysis identified four themes regarding facilitators and barriers to implementation: 1) caregiver factors, 2) SCN factors, 3) CtP tool system factors, and 4) recommendations and resources factors. CONCLUSIONS Care to Plan was not only found to be feasible, but a valuable tool for caregivers seeking resources for themselves as well as their PLWD. Longer-term evaluation findings aim to generate results as to how CtP can be integrated into care plans for caregivers and how SCNs can provide additional support for caregivers for PLWD over an extended period of time.


2017 ◽  
Vol 7 (3) ◽  
pp. 427-434 ◽  
Author(s):  
Jennifer Martindale-Adams ◽  
Tina Tah ◽  
Bruce Finke ◽  
Cynthia LaCounte ◽  
Barbara J. Higgins ◽  
...  

2017 ◽  
Vol 33 (3) ◽  
pp. 145-152 ◽  
Author(s):  
Andrea Gilmore-Bykovskyi ◽  
Rachel Johnson ◽  
Lily Walljasper ◽  
Laura Block ◽  
Nicole Werner

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1028-1029
Author(s):  
Steven Shirk ◽  
Maureen O'Connor ◽  
Jaye McLaren ◽  
Kendra Pugh ◽  
Andrew Nguyen ◽  
...  

Abstract Caregivers of persons with dementia (PWD) often experience increases in depression, anxiety, and burden as the disease progresses. In fact, as the PWD’s neuropsychiatric symptoms increase and independence in ADLS decrease, caregivers psychological and physical health outcomes worsen. The literature suggests that caregiver interventions that teach specific skills are more beneficial than psychoeducational interventions, particularly regarding the amelioration of the psychological impacts of informal caregiving. However, because of caregiving demands, caregiver’s own physical limitations, and competing obligations, it can be difficult to attend caregiver support or education programs outside the home. With the emergence of the COVID-19 pandemic, arranging such interventions became more complex, Therefore, we report on preliminary qualitative outcomes of a study investigating the feasibility and acceptability of converting an in-person, group dementia caregiver education intervention, CARE, to a telehealth platform. We report the findings of two objectives: 1) lessons learned when attempting to convert an in-person group intervention to telehealth and 2) experience and perceived benefit of attending a virtual group from the perspective of the participants of our first two groups. Briefly, our findings demonstrate the strong need for technological support. Participants report positive experience regarding the convenience of attending the group from their home, the benefits of the assigned exercises, and the support they found from other group members. The COVID-19 pandemic has forced many to embrace the virtual option as they adapt to a new normal. There are undoubtedly hurdles to overcome, but there are also advantages to be leveraged.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 915-916
Author(s):  
Jinmyoung Cho ◽  
Donald Smith ◽  
Alan Stevens

Abstract In the past decades, a number of evidence-based interventions has been implemented to improve caregiver outcomes; however, limited attention to specific subgroups (e.g., racial/ethnic groups) still exists in dementia caregiver support interventions in community settings. The purpose of this study is to examine the effect of caregiver’s race/ethnicity and relationship type to the care-recipient on the quality of life among caregivers. This study included 354 informal caregivers enrolled in REACH-TX, a community-based caregiver program, provided by the Alzheimer’s Association North Central Texas Chapter’s from November 2011 to June 2019. Propensity score matching extracted a subset of participants who enrolled in REACH-TX to balance caregivers from three race/ethnic groups (White: 171; African American: 103; Hispanic: 80). Five dimensions of quality of life (depression, caregiving burden, social support, self-care, and problem behaviors) were assessed at baseline and 6-month follow-up among spousal and adult-child caregivers by race/ethnic group. Generalized linear models showed that significant improvement on the five domains of quality of life among White child caregivers, whereas neither spousal nor child caregivers in African American group showed improvement on any domains after adjusting covariates (age, gender, risk levels, number of therapeutic contacts), These findings indicate that the responses to intervention components vary by race/ethnic group and relationship type. Advancing tailored dementia caregiver interventions to specific subgroup needs and unique context, especially for non-White caregivers, is needed to maximize the benefit of community resources and support for diverse caregivers.


Geriatrics ◽  
2021 ◽  
Vol 6 (3) ◽  
pp. 80
Author(s):  
Jacy A. Weems ◽  
Shana Rhodes ◽  
James S. Powers

Caregivers of people with Alzheimer’s and related dementias (ADRD) require support. Organizations have pivoted from traditional in-person support groups to virtual care in the face of the COVID-19 pandemic. We describe two model programs and their pragmatic implementation of virtual care platforms for ADRD caregiver support. A mixed methods analysis of quantitative outcomes as well as a thematic analysis from semi-structured interviews of facilitators was performed as part of a pragmatic quality improvement project to enhance delivery of virtual support services for ADRD caregivers. Implementation differed among individual organizations but was well received by facilitators and caregivers. While virtual platforms can present challenges, older adults appreciated the strength of group facilitators and reported enhanced connectedness related to virtual support. Barriers to success include the limitations of virtual programming, including technological issues and distractions from program delivery. Virtual support can extend outreach, addressing access and providing safe care during a pandemic. Implementation differs among organizations; however, some elements of virtual support may be long-lasting.


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