scholarly journals CONSISTENCY OF DEMENTIA CAREGIVER INTERVENTIONS CLASSIFICATION: AN EVIDENCE-BASED SYNTHESIS

2016 ◽  
Vol 56 (Suppl_3) ◽  
pp. 328-329
2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 811-811
Author(s):  
Darby Morhardt ◽  
Angela Roberts ◽  
Alyssa Penn ◽  
Allison Lindauer ◽  
Emily Rogalski ◽  
...  

Abstract Primary progressive aphasia (PPA) typically results from a neurodegenerative disease such as frontotemporal lobar degeneration or Alzheimer’s disease and is characterized by a progressive loss of specific language functions with relative sparing of other cognitive domains until later stages when widespread cognitive decline consistent with generalized dementia is more prevalent. PPA tends to appear earlier than most dementias, in late middle-age, and can result in a high degree of psychological and economic burden for the family. Thematic analysis of PPA caregiver studies reveal families are learning to adapt to not only declining language across communicative contexts and domains, but concomitant behavioral, social communication and personality changes over time. While there are several evidence-based dementia caregiver interventions, none are specifically designed for the PPA family caregiver. This pilot project, funded by the Emory University Roybal Center is the adaptation of an evidence-based on-line psychoeducation program (Tele-Savvy) to address the unique challenges facing informal caregivers of those living with PPA and to help these caregivers achieve mastery within this context. PPA caregivers have been engaged through focus groups to identify their most pressing caregiving challenges and how the existing Tele-Savvy curriculum should be adapted to meet their needs. Synchronous and asynchronous video modules have been designed to address: PPA education, the impact on dyadic connection and caregiving challenges and communication strategies specific to PPA. The Tele-Savvy central processes of coaching and de-briefing will also be pilot tested and refined.


2005 ◽  
Vol 28 (4) ◽  
pp. 1007-1038 ◽  
Author(s):  
Richard Schulz ◽  
Lynn M. Martire ◽  
Julie N. Klinger

2017 ◽  
Vol 65 (5) ◽  
pp. 931-936 ◽  
Author(s):  
Linda O. Nichols ◽  
Jennifer Martindale-Adams ◽  
Carolyn W. Zhu ◽  
Erin K. Kaplan ◽  
Jeffrey K. Zuber ◽  
...  

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1028-1029
Author(s):  
Steven Shirk ◽  
Maureen O'Connor ◽  
Jaye McLaren ◽  
Kendra Pugh ◽  
Andrew Nguyen ◽  
...  

Abstract Caregivers of persons with dementia (PWD) often experience increases in depression, anxiety, and burden as the disease progresses. In fact, as the PWD’s neuropsychiatric symptoms increase and independence in ADLS decrease, caregivers psychological and physical health outcomes worsen. The literature suggests that caregiver interventions that teach specific skills are more beneficial than psychoeducational interventions, particularly regarding the amelioration of the psychological impacts of informal caregiving. However, because of caregiving demands, caregiver’s own physical limitations, and competing obligations, it can be difficult to attend caregiver support or education programs outside the home. With the emergence of the COVID-19 pandemic, arranging such interventions became more complex, Therefore, we report on preliminary qualitative outcomes of a study investigating the feasibility and acceptability of converting an in-person, group dementia caregiver education intervention, CARE, to a telehealth platform. We report the findings of two objectives: 1) lessons learned when attempting to convert an in-person group intervention to telehealth and 2) experience and perceived benefit of attending a virtual group from the perspective of the participants of our first two groups. Briefly, our findings demonstrate the strong need for technological support. Participants report positive experience regarding the convenience of attending the group from their home, the benefits of the assigned exercises, and the support they found from other group members. The COVID-19 pandemic has forced many to embrace the virtual option as they adapt to a new normal. There are undoubtedly hurdles to overcome, but there are also advantages to be leveraged.


2012 ◽  
Vol 8 (4S_Part_10) ◽  
pp. P381-P381
Author(s):  
Myonghwa Park ◽  
Mi Ra Sung ◽  
Dong Young Lee ◽  
So Young Park

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