scholarly journals Physician Preferences and Knowledge Regarding the Care of Childhood Cancer Survivors in Japan: A Mailed Survey of the Japanese Society of Pediatric Oncology

2012 ◽  
Vol 42 (6) ◽  
pp. 513-521 ◽  
Author(s):  
Yasushi Ishida ◽  
Miyako Takahashi ◽  
Mitsue Maru ◽  
Michiko Mori ◽  
Tara O. Henderson ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Japanese Society ◽  
Childhood Cancer Survivors ◽  
Mailed Survey

Barriers and solutions of long-term follow up of childhood cancer survivors in Turkey: A questionaire survey.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e22020-e22020 ◽  
Author(s):  
Nurdan Tacyildiz ◽  
Sonay incesoy Ozdemir ◽  
Emel Cabi Unal ◽  
Handan Dincaslan ◽  
Gulsan Yavuz
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Questionnaire Survey ◽  
Childhood Cancer Survivors ◽  
Care Providers ◽  
National Guidelines ◽  
Pediatric Cancer Survivors ◽  
Pediatric Oncologist

e22020 Background: The population of childhood cancer survivors has grown with 80 % cure rates. Our aim was to establish the barriers of longterm followup (LTFU) in Turkey. Methods: An e-mail questionnaire survey has been sent to 33 pediatric oncology centers (POC). Questionnaire compossed of 3 sections: 1- Description of the center; yearly new patients number, follow-up period, etc. 2- Methods for follow-up of late effects Content of provided information to the families related cancer treatment & side effects & healthy life style, missing parts of LTFU 3- Transition problems of survivors to adult survivorship programs. Educational problems of Hematology/Oncology Fellows (HOF) Suggestions for improvement of LTFU. Results: 21 of 33 centers (63%) responded the questionnaire. Experience as POC: 2-50 years (median: 23). New patients / each year: 8 - 300 (median: 68). Most of the centers accepting patients up to 18 years, only 4 center providing lifelong LTFU. No Available Risk Adapted LTFU guideline at 21 center. LTFU provided by pediatric oncologist at the pediatric oncology outpatient clinic with transition problems to adult clinic. All centers were following Cardiotoxicity, Secondary cancer,and Kidney toxicity with no problem Barriers of Turkish POC for LTFU of Pediatric Cancer Survivors were: Lack of enough care providers 66%, lack of time 57%, transportation problems 57 % ,lack of providing knowledge to patients 38 %. Although 80 % of the centers have fellows for HOF, not enough edication on survivorship 66%, due to lack of survivorship clinic ( 80%), busy working schedules. Conclusions: Questionnaire survey was able to reach 2/3 the pediatric oncology centers that were located in 8 cities and following most of the pediatric oncology patients in Turkey Mostly POCs do not provide enough LTFU. All centers agree on national guidelines for LTFU. [Table: see text]

Indoor Wall Climbing with Childhood Cancer Survivors: An Exploratory Study on Feasibility and Benefits

2020 ◽  
Vol 232 (03) ◽  
pp. 159-165
Author(s):  
Julia Däggelmann ◽  
Aram Prokop ◽  
Vivien Lösse ◽  
Volker Maas ◽  
Sarah Otten ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Physical Functioning ◽  
Exploratory Study ◽  
Childhood Cancer Survivors ◽  
Post Intervention ◽  
Exercise Interventions ◽  
Positive Effects ◽  
Study Participants

Abstract Background Exercise interventions in pediatric oncology include primarily traditional types of physical activity (PA) such as endurance and strength training, while there is a growing interest in recreational types of PA for pediatric cancer survivors, as well. One of these motivating and fun activities is indoor wall climbing. Therefore, this exploratory study aims to evaluate the feasibility and beneficial effects of a 10-week indoor wall climbing intervention in pediatric oncology. Patients Thirteen childhood cancer survivors aged 6–21 years were included after cessation of their inpatient medical treatment of whom eleven completed the study. Methods Study participants completed measurements of physical functioning at baseline (t0) and post-intervention (t1), as well as a questionnaire on program satisfaction at t1. Results Survivors participated in 57.43±31.77% of the climbing sessions and no adverse events occurred. Most study participants evaluated the climbing experience to be fun and motivational. One child stated that the climbing intervention was too exhausting/overstraining. Significant positive effects were found in terms of ankle DF-ROM and ankle DF strength. Discussion Indoor wall climbing seems feasible with childhood cancer survivors and suggests beneficial potentials on physical functioning. However, some preconditions (i. e. close supervision; slow increase of intensity; sufficient breaks) must be ensured. Conclusion Indoor wall climbing could be a motivational adjunct to traditional types of exercise in pediatric oncology.

scholarly journals Physician Preferences and Knowledge Gaps Regarding the Care of Childhood Cancer Survivors: A Mailed Survey of Pediatric Oncologists

2010 ◽  
Vol 28 (5) ◽  
pp. 878-883 ◽  
Author(s):  
Tara O. Henderson ◽  
Fay J. Hlubocky ◽  
Kristen E. Wroblewski ◽  
Lisa Diller ◽  
Christopher K. Daugherty
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Childhood Cancer Survivors ◽  
The United States ◽  
Cancer Surveillance ◽  
Care Needs ◽  
Comfort Levels ◽  
Long Term Follow Up ◽  
Attitudes And Knowledge ◽  
Mailed Survey

Purpose Little is known about physicians' attitudes and knowledge regarding the health care needs of childhood cancer survivors (CCS). We sought to obtain pediatric cancer physicians' self-reported attitudes and knowledge regarding this population. Methods A mailed survey was sent to 1,159 pediatric oncologists in the United States. Results A total of 655 surveys were returned (ie, 57% response rate). Median age of respondents was 47 years (range, 31 to 82 years); 57% were men. Respondents practiced for a median 14 years (range, 1 to 50 years) and reported seeing a median of 21 patients per week (range, 0 to 250 patients per week). When comfort levels in caring for CCS were described (ie, 1 = very uncomfortable; 7 = very comfortable), respondents were most comfortable with survivors ≤ 21 years (mean ± standard deviation, 6.2 ± 1.3 level), were less comfortable (5.0 ± 1.5 level) with those older than 21 years but less than 30 years old, and were uncomfortable with CCS ≥ 30 years (2.9 ± 1.7 level). In response to a clinical vignette of a 29-year-old woman treated with mantle radiation for Hodgkin's lymphoma at 16 years of age, and on the basis of available guidelines, 34% of respondents did not appropriately recommend yearly breast cancer surveillance; 43% of respondents did not appropriately recommend cardiac surveillance; and 24% of respondents did not appropriately recommend yearly thyroid surveillance. Those with greater self-reported familiarity with available long-term follow-up (LTFU) guidelines (odds ratio [OR], 1.33; 95% CI, 1.15 to 1.54) and with receipt of training in the care of CCS (OR, 1.73; 95% CI, 1.18 to 2.52) were more likely to have answered all three questions correctly. Conclusion Pediatric oncologists express a range of preferences with regard to LTFU of CCS. Many appear unfamiliar with LTFU surveillance guidelines.

Examining neurodevelopmental outcomes among bilingual childhood cancer survivors

2008 ◽  
Author(s):  
Lauren A. Mikula ◽  
Julie Snyder ◽  
Anai M. Cuadra ◽  
Maria L. Goldman ◽  
Wendy E. Sulc ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Childhood Cancer Survivors ◽  
Neurodevelopmental Outcomes
Sign in / Sign up

Export Citation Format

Share Document