An IOM Report Gives a New Name, New Diagnostic Criteria to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

2015 ◽  
Vol 15 (6) ◽  
pp. 1
Author(s):  
Gina Shaw
Keyword(s):  
Chronic Fatigue Syndrome ◽  
Diagnostic Criteria ◽  
Chronic Fatigue ◽  
Myalgic Encephalomyelitis ◽  
New Name ◽  
Fatigue Syndrome

scholarly journals A Rose By Any Other Name?

2016 ◽  
Vol 10 (4) ◽  
Author(s):  
Richard Marlin PhD
Keyword(s):  
United States ◽  
Chronic Fatigue Syndrome ◽  
Diagnostic Criteria ◽  
Functional Impairment ◽  
Chronic Fatigue ◽  
The United States ◽  
Myalgic Encephalomyelitis ◽  
Expert Committee ◽  
Institute Of Medicine ◽  
Fatigue Syndrome

In February of this year, an expert committee of the United States Institute of Medicine (IOM) released a lengthy report in which its members reviewed diagnostic criteria and proposed a new label for chronic fatigue syndrome, also historically referred to as myalgic encephalomyelitis.1 The committee’s proposed new label for this illness is Systemic Exertion Intolerance Disease. The report refers to the fact that a sizeable population is diagnosed with this illness, which causes considerable suffering and functional impairment. Many patients also feel stigmatized because of the label chronic fatigue syndrome.

scholarly journals Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

2012 ◽  
Vol 3 (4) ◽  
pp. 257-270 ◽  
Author(s):  
Leonard Jason ◽  
Kristen Barker ◽  
Abigail Brown
Keyword(s):  
Chronic Fatigue Syndrome ◽  
Diagnostic Criteria ◽  
Chronic Fatigue ◽  
Review Article ◽  
Myalgic Encephalomyelitis ◽  
Fatigue Syndrome ◽  
The Future

Research on pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is reviewed in this article. Many recent articles in this area highlight the existence of key differences between the adult and pediatric forms of the illness. This review article provides an overview of pediatric ME/ CFS, including epidemiology, diagnostic criteria, treatment, and prognosis. Challenges to the field are identified with the hope that in the future pediatric cases of ME/CFS can be more accurately diagnosed and successfully managed.

scholarly journals Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

2012 ◽  
Vol 3 (4) ◽  
pp. 257
Author(s):  
Leonard Jason ◽  
Kristen Barker ◽  
Abigail Brown
Keyword(s):  
Chronic Fatigue Syndrome ◽  
Diagnostic Criteria ◽  
Chronic Fatigue ◽  
Review Article ◽  
Myalgic Encephalomyelitis ◽  
Fatigue Syndrome ◽  
The Future

Research on pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is reviewed in this article. Many recent articles in this area highlight the existence of key differences between the adult and pediatric forms of the illness. This review article provides an overview of pediatric ME/ CFS, including epidemiology, diagnostic criteria, treatment, and prognosis. Challenges to the field are identified with the hope that in the future pediatric cases of ME/CFS can be more accurately diagnosed and successfully managed.

scholarly journals The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering post-exertional malaise: a systematic review and narrative synthesis

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Marjon E. A. Wormgoor ◽  
Sanne C. Rodenburg
Keyword(s):  
Systematic Review ◽  
Chronic Fatigue Syndrome ◽  
Diagnostic Criteria ◽  
Scientific Evidence ◽  
Chronic Fatigue ◽  
Evidence Base ◽  
Myalgic Encephalomyelitis ◽  
Current Evidence ◽  
Case Definitions ◽  
Fatigue Syndrome

Abstract Background Due to the inconsistent use of diagnostic criteria in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), it is unsure whether physiotherapeutic management regarded effective in ME/CFS is appropriate for patients diagnosed with criteria that consider post-exertional malaise (PEM) as a hallmark feature. Purpose To appraise current evidence of the effects of physiotherapy on symptoms and functioning in ME/CFS patients in view of the significance of PEM in the applied diagnostic criteria for inclusion. Methods A systematic review of randomized controlled trials published over the last two decades was conducted. Studies evaluating physiotherapeutic interventions for adult ME/CFS patients were included. The diagnostic criteria sets were classified into three groups according to the extent to which the importance of PEM was emphasized: chronic fatigue (CF; PEM not mentioned as a criterion), CFS (PEM included as an optional or minor criterion) or ME (PEM is a required symptom). The main results of included studies were synthesized in relation to the classification of the applied diagnostic criteria. In addition, special attention was given to the tolerability of the interventions. Results Eighteen RCTs were included in the systematic review: three RCTs with CF patients, 14 RCTs with CFS patients and one RCT covering ME patients with PEM. Intervention effects, if any, seemed to disappear with more narrow case definitions, increasing objectivity of the outcome measures and longer follow-up. Conclusion Currently, there is no scientific evidence when it comes to effective physiotherapy for ME patients. Applying treatment that seems effective for CF or CFS patients may have adverse consequences for ME patients and should be avoided.

scholarly journals Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Major Impact on Lives of Both Patients and Family Members

Medicina ◽  
2021 ◽  
Vol 57 (1) ◽  
pp. 43
Author(s):  
Esme Brittain ◽  
Nina Muirhead ◽  
Andrew Y. Finlay ◽  
Jui Vyas
Keyword(s):  
Quality Of Life ◽  
Chronic Fatigue Syndrome ◽  
Physical Health ◽  
Family Members ◽  
Chronic Fatigue ◽  
Myalgic Encephalomyelitis ◽  
World Health ◽  
Life Questionnaire ◽  
Fatigue Syndrome

Background and objectives: To explore the impacts that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has on the patient and their family members using the WHOQOL-BREF (Abbreviated World Health Organisation Quality of Life questionnaire) and FROM-16 (Family Reported Outcome Measure-16) quality of life assessments. Materials and Methods: A quantitative research study using postal questionnaires was conducted. A total of 39 adult volunteers expressed an interest in participating in the study: 24 returned appropriately completed questionnaires. Patients with ME/CFS completed the WHOQOL-BREF and up to four of their family members completed the FROM-16 questionnaire. Results: ME/CFS negatively affects the quality of life of the patient (median scores WHOQOL-BREF: Physical health = 19, Psychological = 44, Social relationships = 37.5, Environment = 56, n = 24) and their family members’ quality of life (FROM-16: Emotional = 9.5, Personal and social = 11.5, Overall = 20.5, n = 42). There was a significant correlation between the patient’s reported quality of life scores and their family members’ mean FROM-16 total scores. Conclusions: This study identifies the major impact that having an adult family member with ME/CFS has on the lives of partners and of other family members. Quality of life of ME/CFS patients was reduced most by physical health compared to the other domains. Quality of life of family members was particularly impacted by worry, family activities, frustration and sadness. This highlights the importance of measuring the impact on the lives of family members using tools such as the FROM-16 in the ME/CFS clinical encounter and ensuring appropriate support is widely available to family members.

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