An End-of-Life Communication Performance Rubric

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Mary Louisa Kopp ◽  
Adrienne Lynn Marie Mayberry
Keyword(s):  
End Of Life ◽  
Communication Performance ◽  
End Of Life Communication

Psychometric analysis of the Comfort with Communication in Palliative and End-of-Life Care (C-COPE) instrument

2020 ◽  
Vol 26 (8) ◽  
pp. 404-412
Author(s):  
Mary E Minton ◽  
Mary J Isaacson ◽  
Patricia Da Rosa
Keyword(s):  
End Of Life ◽  
Content Validity ◽  
End Of Life Care ◽  
Life Care ◽  
Validity Index ◽  
Retest Reliability ◽  
Five Factors ◽  
Instrument Measuring ◽  
Test Retest Reliability ◽  
End Of Life Communication

Background: Nurses must be comfortable facilitating palliative and end-of-life communication with patients and their families. Aim: A validated instrument measuring the comfort of nurses with conducting end-of-life communication is essential for meeting the goals and wishes of patient care. This study aimed to develop and conduct a psychometric evaluation of the Comfort with Communication in Palliative and End-of-Life Care (C-COPE) instrument. Methods: Face, content, and construct validity, including test-retest reliability, were conducted. Results: Four experts subjectively confirmed face content validity and the quantitative item content validity index (I-CVI) ranged from 0.67 to 1 and scale content validity index (S-CVI/Ave) was 0.98. Principal axis factoring with Promax rotation yielded a five-factor solution accounting for 66.2% of the variance. The items loading on the five factors ranged from 0.46–0.96 (factor 1), 0.67–0.93 (factor 2), 0.49–0.86 (factor 3), 0.68–0.79 (factor 4), and 0.24–0.96 (factor 5). Internal consistency reliability (coefficient a) was 0.90 for the total C-COPE, and above 0.75 for each factor. The five factors are ‘cultural/spiritual considerations,’ ‘team considerations,’ ‘addressing decision-making,’ ‘addressing symptomatology,’ and ‘deliberate awareness.’ Test-retest reliability yielded an intraclass correlation coefficient (ICC) of 0.87 (CI 95%, 0.82–0.91). Conclusions: The C-COPE is a reliable and valid instrument measuring nurse comfort with palliative and end of-life care communication, yet requires testing in more diverse samples.

Barriers and facilitators to end-of-life communication in advanced chronic organ failure

2016 ◽  
Vol 22 (5) ◽  
pp. 222-229 ◽  
Author(s):  
Liza AMC Van den Heuvel ◽  
Ciska Hoving ◽  
Jos MGA Schols ◽  
Martijn A Spruit ◽  
Emiel FM Wouters ◽  
...  
Keyword(s):  
Organ Failure ◽  
End Of Life ◽  
Barriers And Facilitators ◽  
End Of Life Communication

From Theory to Practice: Measuring end-of-life communication quality using multiple goals theory

2017 ◽  
Vol 100 (5) ◽  
pp. 909-918 ◽  
Author(s):  
L.J. Van Scoy ◽  
A.M. Scott ◽  
J.M. Reading ◽  
C.H. Chuang ◽  
V.M. Chinchilli ◽  
...  
Keyword(s):  
End Of Life ◽  
Multiple Goals ◽  
Communication Quality ◽  
Theory To Practice ◽  
End Of Life Communication

End-of-Life Communication

2018 ◽  
Vol 41 (1) ◽  
pp. 2-17 ◽  
Author(s):  
Mary J. Isaacson ◽  
Mary E. Minton
Keyword(s):  
End Of Life ◽  
End Of Life Communication

Teaching end-of-life communication: priorities, challenges, scope—systematic review

2021 ◽  
pp. bmjspcare-2020-002725
Author(s):  
Jack K H Pun ◽  
Ka Man Cheung ◽  
Chung Hang James Chow
Keyword(s):  
End Of Life ◽  
Scoping Review ◽  
Search Strategy ◽  
Medical Providers ◽  
Comprehensive Overview ◽  
Qualitative And Quantitative ◽  
Quantitative Studies ◽  
End Of Life Communication ◽  
Future Practice

BackgroundWithout a well-rounded syllabus to teach end-of-life (EOL) communication, medical providers find it challenging to enhance their patients’ quality of life at the final stage of life.AimThe aim of this scoping review was to explore studies about the teaching of EOL communication and to detail how educators can approach the teaching of EOL communication.MethodsA scoping review of both qualitative and quantitative studies was conducted according to the methodological framework of scoping review. The PsycINFO, PubMed, ERIC, CINAHL and EMBASE databases were searched for studies using the keywords ‘teach’, ‘educat*’, ‘end of life’, ‘terminal care’, ‘communication’ and ‘palliative care’. Sixteen studies were appraised, and none was rejected on the grounds of quality.ResultsThe search strategy yielded 22 278 entries and 16 studies were included. Two themes were identified from the priorities in teaching EOL communication: (1) challenges to teaching EOL communication and (2) methods of teaching EOL communication. To present a comprehensive overview of EOL communication teaching, we provide directions for priorities of topics and approaches when teaching EOL communication.ConclusionsThe review detailed the complexity of teaching EOL communication, which indicates the need for a well-rounded syllabus that includes skills such as non-verbal social cues, communication strategies and understanding EOL communication in various cultural contexts to facilitate a well-rounded EOL communication experience for students’ future practice.

End-of-Life Communication Observed Structured Clinical Exercise

2010 ◽  
Author(s):  
Eytan Szmuilowicz ◽  
Areej el-Jawahri ◽  
Laurel Chiappetta ◽  
Mihir Kamdar ◽  
Susan Block
Keyword(s):  
End Of Life ◽  
End Of Life Communication

End-of-life communication: a nationwide study of bereaved parents’ perceptions

2019 ◽  
pp. bmjspcare-2018-001709 ◽  
Author(s):  
Camilla Lykke ◽  
Ola Ekholm ◽  
Kjeld Schmiegelow ◽  
Marianne Olsen ◽  
Per Sjøgren
Keyword(s):  
End Of Life ◽  
Healthcare Professionals ◽  
Treatment Options ◽  
National Guidelines ◽  
Bereaved Parents ◽  
Life Issues ◽  
Imminent Death ◽  
End Of Life Issues ◽  
Child's Death ◽  
End Of Life Communication

ObjectiveTo investigate bereaved parents’ perception of end-of-life communication with healthcare professionals after losing a child due to life-limiting diagnoses.MethodsA national register identified the causes of death of 951 children aged 0–18 years during the period 2012–2014. A previously described classification of life-limiting diagnoses identified 402 children. A modified version of the self-administered questionnaire 'To Lose a Child' was distributed to the parents of these 402 children, capturing their perceptions of communication with the healthcare professionals throughout the child’s disease trajectory and imminent death.ResultsA total of 193 bereaved parents, representing 38% of the identified children, participated in the study. Overall, 98% of the parents expressed the view that physicians should immediately disclose when curatively intended treatment options were exhausted. Some 79% of parents reported that information about their child’s incurable illness was given in an appropriate manner; however, 42% said that information about the child's imminent death was given too late. Finally, 31% felt deprived of the option to say goodbye to their child in their preferred manner, and 56% said that their child’s death was “a shock”.ConclusionsParents request accurate and timely information. However, a substantial number of the parents surveyed reported that healthcare professionals communicated too late about palliative care and end-of-life issues. Even though healthcare professionals strive to communicate effectively with dying children and their parents, barriers were identified that may hinder even the best of intentions. National guidelines addressing communication issues and improved education of healthcare professionals should form part of any future agenda.

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