Identifying needs and improving palliative care of chronically ill patients

2012 ◽  
Vol 6 (3) ◽  
pp. 371-378 ◽  
Author(s):  
Xavier Gómez-Batiste ◽  
Marisa Martínez-Muñoz ◽  
Carles Blay ◽  
Jose Espinosa ◽  
Joan C. Contel ◽  
...  
Keyword(s):  
Palliative Care ◽  
Chronically Ill ◽  
Chronically Ill Patients

scholarly journals Humanistic Medicine, a Forgotten Concept? The Correct Approach in Palliative Care of Chronic Patients

2016 ◽  
Vol 1 (3) ◽  
pp. 300-302
Author(s):  
Sorin Albu ◽  
Septimiu Voidăzan
Keyword(s):  
Palliative Care ◽  
Chronically Ill ◽  
Medical Specialty ◽  
Theory And Practice ◽  
Chronic Patients ◽  
Medical Specialties ◽  
Total Pain ◽  
Humanistic Medicine ◽  
Human Side ◽  
Chronically Ill Patients

Abstract Palliative care in Romania is a relatively new emerging field. Challenges of this specialty, its uniqueness and the several problems posed by a particular category of patients, the chronically ill patients, make this medical specialty a particularly complex one in certain situations, requiring a multidisciplinary team well-prepared in terms of theory and practice. Unlike in the case of most medical specialties, particular emphasis is laid on the “human” side of medical care, this specialty introducing the concept of “total pain”.

scholarly journals Assessment of Knowledge and Attitude towards Palliative Care and Associated Factors among Nurses Working in North Wollo Hospitals

2021 ◽  
Vol 31 (2) ◽  
Author(s):  
Addisu Getie ◽  
Adam Wondmieneh ◽  
Ayelign Mengesha ◽  
Awet Fitwi ◽  
Getnet Gedefaw ◽  
...  
Keyword(s):  
Palliative Care ◽  
Nursing Education ◽  
Chronically Ill ◽  
Favorable Attitude ◽  
Good Knowledge ◽  
P Value ◽  
Binary Logistic Regression Model ◽  
Knowledge And Attitude ◽  
Chronically Ill Patients ◽  
North Wollo

BACKGROUND: Palliative care improves the quality of life of patients facing a life-threatening illness. Nurses should improve their caregiving capacity. In Ethiopia, palliative care is underestimated. The availability of data regarding the knowledge and attitude of nurses towards palliative care is critically important. Thus, this study aimed to assess the level of knowledge and attitude of nurses towards palliative care.METHODS: Institution-based, cross-sectional study was conducted in North Wollo hospitals. A simple random sampling technique was used. The data was collected using structured selfadministered questionnaires from February to March 2019. The analysis was done using a binary logistic regression model. P-value < 0.05 was considered as statistically significant.RESULTS: The result revealed that 59.7% of the respondents had good knowledge and 44.2% had a favorable attitude towards palliative care. Level of education, experience in caring for chronically ill patients, and experience in caring for dying family members within the last 6 months had a significant association with the knowledge of nurses. Monthly income, experience in caring for chronically ill patients, formal palliative care education, and knowledge were found statistically significant with the attitude of nurses towards palliative care.CONCLUSION: More than half of the nurses had good knowledge, but less than half of the respondents had a favorable attitude towards palliative care. Attention should be given towards palliative care by the health policy and needs to be incorporated into the national curriculum of nursing education.

Palliative Care

2020 ◽  
pp. 54-76
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell
Keyword(s):  
Palliative Care ◽  
Family Caregiving ◽  
Chronically Ill ◽  
Care Process ◽  
Family Narrative ◽  
The Family ◽  
And Function ◽  
Chronically Ill Patients ◽  
Patient Care Process ◽  
Existing Structure

Whether they are thrust into the caregiving role or volunteer for it, most caregivers want to know what to do, how to do it, and how to prepare for what is ahead. For some caregivers, information is empowering, and for other caregivers, it is overwhelming. Regardless, examine any study on family caregiving or talk to any family caregiver, and the conclusion will be the same: Family caregivers need information, education, and support. Few caregivers are able to fully understand and use available health information when advocating and caring for chronically ill patients, and this seriously complicates their ability to contribute to patient self-management and support at home. To help caregivers understand their role and get them the help they need, they have to be included in the healthcare system and in the patient care process. In recognizing that caregivers are current and future patients who need care too, this chapter (a) introduces palliative care to illustrate how the patient and family’s illness journey is powerfully influenced by their understanding of the disease and its treatment and (b) outlines the health literate care model to identify important reasons to integrate caregivers. Both foci of this chapter are radically impacted by the pre-existing structure and function of the family. Narrative features of caregiving are used to describe three illness journeys that caregivers traverse.

Prevalence and correlates for stress among caregivers for chronically ill patients at Ndola teaching hospital

2017 ◽  
Vol 4 (3) ◽  
pp. 107-111
Author(s):  
Davies Simukoko ◽  
◽  
David Mulenga ◽  
Victor Mwanakasale ◽  
◽  
...  
Keyword(s):  
Teaching Hospital ◽  
Chronically Ill ◽  
Chronically Ill Patients

PatientConcept App � an innovative tool to improve therapy adherence and to implement risk management plans. (Preprint)

2018 ◽  
Author(s):  
Michael Lang ◽  
Martin Mayr ◽  
Stefan Ringbauer ◽  
Lukas Cepek
Keyword(s):  
Risk Management ◽  
Disease Management ◽  
Chronically Ill ◽  
Patient Reported Outcome ◽  
Outcome Data ◽  
Daily Routine ◽  
Software Application ◽  
Patient Reported ◽  
Management Plans ◽  
Chronically Ill Patients

UNSTRUCTURED Background: Adherence constitutes a great challenge for disease management, particularly when treating chronically ill patients facing an extensive, complex and long-term therapy. Earlier studies emphasize the relevance of adherence for improving therapy benefits. Besides the positive impact of increased patient support, the use of mobile health applications has gained importance in disease management. Objective: We aimed to develop a software application providing innovative features to simplify the contact between patients and treating physicians in order to overcome adherence barriers, to implement risk management plans and to collect patient reported outcome data. Methods: A novel software application ensuring data security was developed. Various innovative modules have been implemented, enabling bidirectional communication between treating physicians and patients, supporting therapy monitoring and management and allowing the collection of large sets of anonymous patient data. Results: The PatientConcept app is freely available for download and is tested since 2016, with more than 1800 generated patient IDs and 279 patients documenting health data according to risk management plans online in 2017. The impact on adherence issues is currently tested in larger patient populations. Conclusion: This innovative app provides a feasible and cost-optimized possibility to intensify and simplify the communication between patients and their treating physicians across indications, thus promising an exceptional benefit to both. It may not only support chronically ill patients in managing their daily life and improving adherence, but can also facilitate the implementation of risk management plans through automated monitoring, thus supporting physicians in their daily routine. Furthermore, patient reported outcome data can be collected. Importantly, a secure ID-associated data management ensures patient anonymity complying with highest data safety standards.

Understanding care transition notifications for chronically ill patients

2021 ◽  
pp. 1-14
Author(s):  
Sarah Kianfar ◽  
Ann Schoofs Hundt ◽  
Peter L.T. Hoonakker ◽  
Doreen Salek ◽  
Janet Tomcavage ◽  
...  
Keyword(s):  
Chronically Ill ◽  
Care Transition ◽  
Chronically Ill Patients

scholarly journals Attitudes to and experience of disease management programs in primary care—an exploratory survey of general practitioners in Germany

2021 ◽  
Author(s):  
Julian Wangler ◽  
Michael Jansky
Keyword(s):  
Primary Care ◽  
Disease Management ◽  
Patient Care ◽  
General Practitioners ◽  
Linear Regression Analysis ◽  
Chronically Ill ◽  
Disease Management Programs ◽  
Federal States ◽  
Set Up ◽  
Chronically Ill Patients

Summary Background Disease management programs (DMPs) were set up in Germany in 2003 to improve outpatient care of chronically ill patients. The present study looks at the attitudes and experiences of general practitioners (GPs) in relation to DMPs, how they rate them almost 20 years after their introduction and where they see a need for improvement. Methods A total of 1504 GPs in the Federal States of Rhineland Palatinate, Saarland and Hesse were surveyed between December 2019 and March 2020 using a written questionnaire. Results In total, 58% of respondents rate DMPs positively and regard them as making a useful contribution to primary care. The guarantee of regular, structured patient care and greater compliance are regarded as particularly positive aspects. It was also established that diagnostic and therapeutic knowledge was expanded through participation in DMPs. 57% essentially follow the DMP recommendations for (drug) treatment. Despite positive experiences of DMPs in patient care, the GPs surveyed mention various challenges (documentation requirements, frequent changes to the programmes, inflexibility). Univariant linear regression analysis revealed factors influencing the satisfaction with DMPs, such as improvement of compliance and clearly defined procedures in medical care. Conclusion Most of the GPs surveyed consider the combination of continuous patient care and evidence-based diagnosis and treatment to be a great advantage. To better adapt DMPs to the conditions of primary care, it makes sense to simplify the documentation requirements, to regulate cooperation with other healthcare levels more clearly and to give GPs more decision-making flexibility. Increased inclusion of GP experience in the process of developing and refining DMPs can be helpful.

Post-discharge intervention in vulnerable, chronically ill patients

2011 ◽  
Vol 7 (2) ◽  
pp. 124-130 ◽  
Author(s):  
Devan Kansagara ◽  
Rebecca S. Ramsay ◽  
David Labby ◽  
Somnath Saha
Keyword(s):  
Chronically Ill ◽  
Post Discharge ◽  
Chronically Ill Patients
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