The Validity and Reliability of Social Networks as a Source for Idiopathic Pulmonary Fibrosis Patient-Reported Outcomes

2018 IEEE International Conference on Healthcare Informatics (ICHI) ◽

10.1109/ichi.2018.00098 ◽

2018 ◽

Author(s):

Kim Tran

Keyword(s):

Social Networks ◽

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcomes ◽

Idiopathic Pulmonary Fibrosis Patient ◽

Validity And Reliability ◽

Patient Reported

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Patient-reported outcomes in idiopathic pulmonary fibrosis; validity and reliability of visual analogue scales

10.1183/13993003.congress-2021.pa3749 ◽

2021 ◽

Author(s):

Catharina Moor ◽

R.L.M. Mostard ◽

J.C. Grutters ◽

P. Bresser ◽

J.G.J.V. Aerts ◽

...

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcomes ◽

Validity And Reliability ◽

Visual Analogue Scales ◽

Patient Reported ◽

Analogue Scales

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Associations between Patient-reported Outcomes and Death or Lung Transplant in Idiopathic Pulmonary Fibrosis. Data from the Idiopathic Pulmonary Fibrosis Prospective Outcomes Registry

Annals of the American Thoracic Society ◽

10.1513/annalsats.201906-437oc ◽

2020 ◽

Vol 17 (6) ◽

pp. 699-705 ◽

Author(s):

Amy Hajari Case ◽

Anne S. Hellkamp ◽

Megan L. Neely ◽

Shaun Bender ◽

Daniel F. Dilling ◽

...

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcomes ◽

Lung Transplant ◽

Patient Reported

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Appendicular Skeletal Muscle Mass Correlates with Patient-Reported Outcomes and Physical Performance in Patients with Idiopathic Pulmonary Fibrosis

The Tohoku Journal of Experimental Medicine ◽

10.1620/tjem.253.61 ◽

2021 ◽

Vol 253 (1) ◽

pp. 61-68

Author(s):

Kento Ebihara ◽

Yuji Iwanami ◽

Keiko Yamasaki ◽

Ayame Takemura ◽

Naofumi Sato ◽

...

Keyword(s):

Skeletal Muscle ◽

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Muscle Mass ◽

Physical Performance ◽

Patient Reported Outcomes ◽

Skeletal Muscle Mass ◽

Patient Reported ◽

Appendicular Skeletal Muscle ◽

Appendicular Skeletal Muscle Mass

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Patient-Reported Outcomes in Idiopathic Pulmonary Fibrosis Research

CHEST Journal ◽

10.1378/chest.11-2602 ◽

2012 ◽

Vol 142 (2) ◽

pp. 291-297 ◽

Author(s):

Jeffrey J. Swigris ◽

Diane Fairclough

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcomes ◽

Patient Reported

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Patient-reported Outcomes for Clinical Trials in Idiopathic Pulmonary Fibrosis: New Opportunities to Understand How Patients Feel and Function

American Journal of Respiratory and Critical Care Medicine ◽

10.1164/rccm.202007-2775ed ◽

2020 ◽

Vol 202 (12) ◽

pp. 1620-1622

Author(s):

Anne E. Holland ◽

Leona Dowman ◽

Natasha Smallwood

Keyword(s):

Clinical Trials ◽

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcomes ◽

Patient Reported ◽

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P4 Patient and Carer Co-investigators: Shared experiences of a Research Steering Group from the Idiopathic Pulmonary Fibrosis Patient Reported Outcome Measure (IPF-PRoM) study: Abstract P4 Table 1

Thorax ◽

10.1136/thoraxjnl-2015-207770.141 ◽

2015 ◽

Vol 70 (Suppl 3) ◽

pp. A76-A77

Author(s):

AM Russell ◽

AM Doyle ◽

D Ross ◽

C Burdett ◽

J Gane ◽

...

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Outcome Measure ◽

Patient Reported Outcome ◽

Idiopathic Pulmonary Fibrosis Patient ◽

Patient Reported Outcome Measure ◽

Shared Experiences ◽

Steering Group ◽

Patient Reported

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Improvement in Patient-Reported Outcomes and Forced Vital Capacity during Nintedanib Treatment of Idiopathic Pulmonary Fibrosis

The Tohoku Journal of Experimental Medicine ◽

10.1620/tjem.245.107 ◽

2018 ◽

Vol 245 (2) ◽

pp. 107-114 ◽

Author(s):

Takayuki Takeda ◽

Mayumi Takeuchi ◽

Masahiko Saitoh ◽

Sorou Takeda

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Forced Vital Capacity ◽

Patient Reported Outcomes ◽

Vital Capacity ◽

Patient Reported

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AN EXPERT QUESTIONNAIRE ANALYSIS FOR DEVELOPING IDIOPATHIC PULMONARY FIBROSIS PATIENT-REPORTED OUTCOME SCALE

Respirology ◽

10.1111/resp.13420_518 ◽

2018 ◽

Vol 23 ◽

pp. 276-276

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcome ◽

Idiopathic Pulmonary Fibrosis Patient ◽

Patient Reported

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What Patients With Idiopathic Pulmonary Fibrosis and Caregivers Want: Filling the Gaps With Patient Reported Outcomes and Experience Measures

The American Journal of Medicine ◽

10.1016/j.amjmed.2019.08.032 ◽

2020 ◽

Vol 133 (3) ◽

pp. 281-289 ◽

Author(s):

Meena Kalluri ◽

Fabrizio Luppi ◽

Giovanni Ferrara

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Reported Outcomes ◽

Patient Reported

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Impact of novel antifibrotic therapy on patient outcomes in idiopathic pulmonary fibrosis: patient selection and perspectives

Patient Related Outcome Measures ◽

10.2147/prom.s144425 ◽

2018 ◽

Vol Volume 9 ◽

pp. 321-328 ◽

Author(s):

Bridget A Graney ◽

Joyce S Lee

Keyword(s):

Idiopathic Pulmonary Fibrosis ◽

Pulmonary Fibrosis ◽

Patient Outcomes ◽

Patient Selection ◽

Idiopathic Pulmonary Fibrosis Patient ◽

Antifibrotic Therapy

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