scholarly journals The Eating and Drinking Ability Classification System in a population-based sample of preschool children with cerebral palsy

2017 ◽  
Vol 59 (6) ◽  
pp. 647-654 ◽  
Author(s):  
Katherine A Benfer ◽  
Kelly A Weir ◽  
Kristie L Bell ◽  
Robert S Ware ◽  
Peter S W Davies ◽  
...  
2020 ◽  
Vol 51 (02) ◽  
pp. 129-134
Author(s):  
Kate Himmelmann ◽  
Magnus Påhlman ◽  
Guro L. Andersen ◽  
Torstein Vik ◽  
Daniel Virella ◽  
...  

Abstract Aim The aim is to study access to intrathecal baclofen (ITB) for children with cerebral palsy (CP) in Europe, as an indicator of access to advanced care. Methods Surveys were sent to CP registers, clinical networks, and pump manufacturers. Enquiries were made about ITB treatment in children born in 1990 to 2005 by sex, CP type, level of gross motor function classification system (GMFCS) and age at the start of treatment. Access to ITB was related to the country's gross domestic product (GDP) and % GDP spent on health. Results In 2011 population-based data from Sweden, Norway, England, Portugal, Slovenia, and Denmark showed that 114 (3.4%) of 3,398 children with CP were treated with ITB, varying from 0.4 to 4.7% between centers. The majority of the children were at GMFCS levels IV-V and had bilateral spastic CP. In Sweden, dyskinetic CP was the most commonly treated subtype. Boys were more often treated with ITB than girls (p = 0.014). ITB was reported to be available for children with CP in 25 of 43 countries. Access to ITB was associated with a higher GDP and %GDP spent on health (p < 0.01). Updated information from 2019 showed remaining differences between countries in ITB treatment and sex difference in treated children was maintained. Conclusion There is a significant difference in access to ITB for children with CP across Europe. More boys than girls are treated. Access to ITB for children with CP is associated with GDP and percent of GDP spent on health in the country.


2015 ◽  
Vol 57 (11) ◽  
pp. 1056-1063 ◽  
Author(s):  
Katherine A Benfer ◽  
Kelly A Weir ◽  
Kristie L Bell ◽  
Robert S Ware ◽  
Peter S W Davies ◽  
...  

2010 ◽  
Vol 52 (11) ◽  
pp. 1056-1061 ◽  
Author(s):  
SOLVEIG SIGURDARDOTTIR ◽  
MARIT S INDREDAVIK ◽  
AUÐUR EIRIKSDOTTIR ◽  
KATRÍN EINARSDOTTIR ◽  
HALLDÓR S GUDMUNDSSON ◽  
...  

2019 ◽  
Vol 34 (13) ◽  
pp. 842-850
Author(s):  
Emmanuel Segnon Sogbossi ◽  
Damienne Houekpetodji ◽  
Toussaint G. Kpadonou ◽  
Yannick Bleyenheuft

Cerebral palsy is a common cause of pediatric motor disability. Although there are increasing amounts of data on the clinical profile of children with cerebral palsy in high-income countries, corresponding information about low-income countries and developing countries is lacking. Therefore, we aimed to describe the clinical spectrum of cerebral palsy in children in Benin, a representative West African low-income country. Our cross-sectional observational study included 114 children with cerebral palsy recruited from community-based rehabilitation centers and teaching hospitals (median age: 7 years, range 2-17; sex: 66% male). Data were collected through review of medical records and interviews with children’s mothers. Assessment included risk factors, clinical subtypes according to the Surveillance of CP in Europe criteria, severity of motor outcome scored by the Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System, comorbidities, and school attendance. We recorded a high prevalence of intrapartum adverse events. Seventeen percent of children had postneonatal cerebral palsy, with cerebral malaria being the most common cause. Most children were severely affected (67.5% as bilateral spastic; 54.4% as GMFCS IV or V), but severity declined substantially with age. Only 23% of the children with cerebral palsy had attended school. Poor motor outcomes and comorbidities were associated with school nonattendance. These results suggest that intrapartum risk factors and postnatal cerebral malaria in infants are opportune targets for prevention of cerebral palsy in Sub-Saharan low-income countries.


2019 ◽  
Vol 7 (7) ◽  
pp. 3281-3286
Author(s):  
Mst. Rabea Begum ◽  
◽  
Mohammad Anwar Hossain ◽  
Shahnaj Sultana ◽  
◽  
...  

2002 ◽  
Vol 44 (04) ◽  
pp. 240 ◽  
Author(s):  
Janneke Kennes ◽  
Peter Rosenbaum ◽  
Steven E Hanna ◽  
Stephen Walter ◽  
Dianne Russell ◽  
...  

2019 ◽  
Vol 61 (7) ◽  
pp. 798-804 ◽  
Author(s):  
Andrea Burgess ◽  
Roslyn Boyd ◽  
Jenny Ziviani ◽  
Mark D Chatfield ◽  
Robert S Ware ◽  
...  

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