Operationalizing quality of life for people with profound multiple disabilities: a Delphi study

2007 ◽  
Vol 51 (5) ◽  
pp. 334-349 ◽  
Author(s):  
K. Petry ◽  
B. Maes ◽  
C. Vlaskamp
Keyword(s):  
Quality Of Life ◽  
Delphi Study ◽  
Multiple Disabilities ◽  
Profound Multiple Disabilities

Assessing a Microswitch-Based Stimulation Procedure for Eye-Blinking Responses in a Young Woman with Profound Multiple Disabilities

2005 ◽  
Vol 101 (1) ◽  
pp. 212-216 ◽  
Author(s):  
G. E. Lancioni ◽  
N. N. Singh ◽  
M. F. O'Reilly ◽  
D. Oliva ◽  
L. Severini
Keyword(s):  
Quality Of Life ◽  
Young Woman ◽  
Multiple Disabilities ◽  
Stimulation Condition ◽  
Profound Multiple Disabilities

We applied a new microswitch-based stimulation procedure for eye-blinking responses with a young woman with profound multiple disabilities, and compared effects of this procedure on the eye-blinking responses and smiling with the effects of a caregiver-based stimulation condition. Analysis showed that the microswitch-based stimulation procedure, with stimulation occurring contingent on eye-blinking responses, increased the frequencies of these responses significantly above the levels recorded in baseline and caregiver-based stimulation conditions. No changes in smiling frequencies occurred. Implications of the findings in terms of alertness, learning, and quality of life are discussed.

scholarly journals Academic or Functional Life Skills? Using Behaviors Associated with Happiness to Guide Instruction for Students with Profound/Multiple Disabilities

2014 ◽  
Vol 2014 ◽  
pp. 1-12 ◽  
Author(s):  
Jonna L. Bobzien
Keyword(s):  
Quality Of Life ◽  
Life Skills ◽  
Multiple Disabilities ◽  
Academic Skills ◽  
Future Research ◽  
Educational Strategies ◽  
Quality Of Life Indicators ◽  
Multielement Design ◽  
Profound Multiple Disabilities

The field of special education has begun to concentrate its efforts on developing objectives and procedural strategies that promote a positive quality of life for students with profound multiple disabilities, while determining which educational strategies are the most appropriate. A multielement design was used to compare the effects of two educational conditions, academic skills instruction and functional life skills instruction, on the quality of life indicators of four students with profound multiple disabilities. Results indicated that all four students demonstrated a greater number of behaviors associated with happiness while receiving academic skills instruction. Implications for current educational practices are addressed and directions for future research are discussed.

Implications for, and the Meaning of, Supporting Young Rural Alaskan Children with Complex Needs

1995 ◽  
Vol 14 (4) ◽  
pp. 9-18 ◽  
Author(s):  
Susan Ryan-Vincek
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Multiple Disabilities ◽  
Policy Makers ◽  
Complex Needs ◽  
Care Givers ◽  
Rural Alaska ◽  
Life Issues ◽  
The Right

Supporting young children, who experience complex multiple disabilities in their homes and communities, has become an important feature of early intervention programs throughout the country. How parents and professionals view quality of life issues for these young children can provide information for interventionists, policy makers, and care givers. Qualitative research methods were employed over a three-year period to investigate perceptions of parents and professionals regarding support for young children who experience complex multiple disabilities. Descriptive themes emerged from the data that characterize features of support resulting in quality of life for young children living in rural Alaska who experience complex multiple disabilities. Some of these themes were “getting the right equipment at the right time,” “caring and consistent professionals,” and “responsive and flexible medical and support systems.” Findings indicated discrepancies between parents who live in rural Alaska and professionals over (a) perceptions of what support means and (b) the focus of some policies and systems.

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