Development and validation of an outcome instrument measuring dry skin – the Xerosis Area and Severity Index (XASI)

Author(s):  
R Sommer ◽  
M Augustin ◽  
N Silva ◽  
CC Stülpnagel
2021 ◽  
pp. 247553032110114
Author(s):  
Anna Antony ◽  
Sadaf Saeed ◽  
Darren Hart ◽  
Preeti Nair ◽  
Charlotte Cavill ◽  
...  

Background: Psoriatic nail dystrophy is infrequently assessed in routine care and observational cohorts due to the lack of a feasible validated outcome measure. Objective: To assess the measurement properties of the “Severity of NAil Psoriasis Score” (SNAPS) in PsA. Methods: Nail photography was performed on prospectively recruited patients at baseline and 6 months. The modified Nail Psoriasis Severity Index (mNAPSI) and Physician Nail Visual Acuity Scale (PhNVAS) were comparator instruments for construct validity. Reliability and feasibility were assessed using intra-class correlations (ICCs) and timed scoring. Responsiveness was assessed by correlating the changes in SNAPS, mNAPSI and PhNVAS. Retrospective data from the Bath PsA database was further utilized to assess responsiveness. Results: 21 patients participated in the prospective validation at baseline. Inter- and intra-rater reliability of SNAPS were 0.94 and 0.93-0.96 (p ≤ 0.005). Mean times required to score SNAPS and mNAPSI were 59 and 136 seconds. There were strong correlations between SNAPS and mNAPSI (r = 0.95, p < 0.001) and PhNVAS (r = 0.77, p < 0.001) at baseline. There was a significant reduction in the mNAPSI and SNAPS (p < 0.005) at 6 months and a strong correlation between the change in SNAPS and mNAPSI (rho = 0.838, p < 0.001). Historical data from 57 patients commenced on Etanercept were evaluated. Mean SNAPS reduced from 3.6 to 2.0 at 3 months and 1.2 at 6 months (p < 0.05). Change in SNAPS correlated with changes in Psoriasis Area Severity Index and Dermatology Quality of Life at 3 and 6 months (r≥0.510; p ≤ 0.003). Conclusion: SNAPS is a feasible, reliable and responsive outcome instrument for psoriatic nail dystrophy.


2020 ◽  
Vol 76 (4) ◽  
pp. 442-453 ◽  
Author(s):  
Adrian D. Haimovich ◽  
Neal G. Ravindra ◽  
Stoytcho Stoytchev ◽  
H. Patrick Young ◽  
Francis P. Wilson ◽  
...  

2012 ◽  
Vol 30 (8) ◽  
pp. 1491-1500 ◽  
Author(s):  
Ki Jeong Hong ◽  
Sang Do Shin ◽  
Young Sun Ro ◽  
Kyoung Jun Song ◽  
Adam J. Singer

2016 ◽  
Vol 2016 ◽  
pp. 1-12 ◽  
Author(s):  
Anaïs Lacasse ◽  
Judy-Ann Connelly ◽  
Manon Choinière

Background. In order to better design awareness programs on chronic pain (CP), measurement of knowledge, beliefs, and attitudes of people in the community towards this condition is most useful.Objectives. To develop and validate a French-Canadian scale that could be used for this purpose.Methods. Items of the Chronic Pain Myth Scale (CPMS) were developed based on different information sources, reviewed by pain experts, and pretested. The CPMS was administered to 1555 participants among the general Quebec population.Results. The final CPMS contained 26 items allowing the calculation of three subscales scores (knowledge, beliefs, and attitudes towards people suffering from CP, biopsychosocial impacts of CP, and treatment of CP) which showed adequate internal consistency (α= 0.72–0.82). There were statistically significant differences in subscales scores between participants who reported suffering versus not suffering from CP, reported knowing versus not knowing someone who suffers from CP, and reported being versus not being a healthcare professional, which supports the construct validity of the scale.Conclusions. Our results provide preliminary evidence supporting the psychometric qualities of the use of the CPMS for the measurement of knowledge, beliefs, and attitudes towards CP among French-speaking individuals of the Quebec general population.


2014 ◽  
Vol 37 (7) ◽  
pp. 660-669 ◽  
Author(s):  
Syed Ilyas Shehnaz ◽  
Gamini Premadasa ◽  
Mohamed Arifulla ◽  
Jayadevan Sreedharan ◽  
Kadayam Guruswami Gomathi

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