scholarly journals Caring for patients with end‐stage renal disease during COVID‐19 lockdown: What (additional) challenges to family caregivers?

2021 ◽  
Author(s):  
Helena Sousa ◽  
Roberta Frontini ◽  
Oscar Ribeiro ◽  
Constança Paúl ◽  
Elísio Costa ◽  
...  
Keyword(s):  
Renal Disease ◽  
Family Caregivers ◽  
End Stage Renal Disease ◽  
Stage Renal Disease ◽  
End Stage

Managing Caregiver Burden among Families of Patients with End-Stage Renal Disease

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Yemisi Okikiade Oyegbile ◽  
Petra Brysiewicz
Keyword(s):  
Renal Disease ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
End Stage Renal Disease ◽  
Qualitative Data ◽  
Government Support ◽  
Implementation Phase ◽  
The Family ◽  
Stage Renal Disease ◽  
End Stage

Family caregivers of patients with end-stage renal disease (ESRD) play a significant role in providing substantial care for a prolonged period for their sick relatives, often with very limited resources, making it a difficult environment. Government support for family caregivers of patients with ESRD is lacking in Nigeria, increasing their vulnerability to caregiver burden and its consequences. An action research study using a complimentary mixed-method approach was used to develop the intervention model for managing caregiver burden. Quantitative data were collected to measure the extent of caregiver burden using a Zarit Burden Interview questionnaire for 96 family caregivers, while individual in-depth interviews with 15 participants provided the qualitative data. Integrating the quantitative and qualitative data led to the identification of four moderators to manage the caregiver burden in this study. The model for managing caregiver burden was developed from the findings, using stressors and associated moderators of caregiving, and the role played by culture and finance in this context. An implementation checklist was developed, which was used by registered nurses to implement the concepts in the model with the family caregivers during the model implementation phase. Family caregivers of patients with ESRD need to be supported by nurses during the caregiving process. Nurses can increase caregivers’ identity and knowledge of the disease as a way of preventing the family caregivers from being overwhelmed by their caregiving role.

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

2020 ◽  
Vol 43 (5) ◽  
pp. 529-537
Author(s):  
Mona A. Abed ◽  
Anas H. Khalifeh ◽  
Amani A. Khalil ◽  
Muhammad W. Darawad ◽  
Debra K. Moser
Keyword(s):  
Health Literacy ◽  
Renal Disease ◽  
Family Caregivers ◽  
End Stage Renal Disease ◽  
Functional Health ◽  
Functional Health Literacy ◽  
Caregiving Burden ◽  
Stage Renal Disease ◽  
End Stage

An Exploration of Palliative Care Needs of People With End-Stage Renal Disease on Dialysis

2017 ◽  
Vol 33 (1) ◽  
pp. 19-25 ◽  
Author(s):  
Victor Maddalena ◽  
Fiona O’Shea ◽  
Brendan Barrett
Keyword(s):  
Palliative Care ◽  
Renal Disease ◽  
Family Caregivers ◽  
End Stage Renal Disease ◽  
Descriptive Analysis ◽  
High Morbidity ◽  
Care Needs ◽  
Palliative Care Services ◽  
Stage Renal Disease ◽  
End Stage

Patients with end-stage renal disease supported on dialysis experience high morbidity and mortality. Little is known about family caregiver experiences during the disease. Qualitative research methods were used to explore the experiences of family caregivers caring for patients receiving dialysis. In-depth, semi-structured, in-person interviews were completed with 18 family caregivers in rural and urban settings. Interviews were audiotaped, transcribed verbatim, and analyzed using thematic and descriptive analysis. Major themes identified included challenges navigating the health system, caregiver burden, perceptions of palliative care, symptom management, and decision-making. Caregiver burdens are significant including physical, emotional, social, and economic dimensions. There is a need to recognize and improve support for family caregivers and increase collaboration with nephrology and palliative care services from commencement of dialysis until death and into bereavement.

Parathyroid Dysfunction in End Stage Renal Disease

1980 ◽  
Vol 13 (1) ◽  
pp. 193-201
Author(s):  
Philip J. DìTella ◽  
Gordon R. Lang
Keyword(s):  
Renal Disease ◽  
End Stage Renal Disease ◽  
Parathyroid Dysfunction ◽  
Stage Renal Disease ◽  
End Stage
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