FRI0563 It's More than Dryness and Fatigue: The Patient Perspective on Health-Related Quality of Life in Primary Sjögren Syndrome - A Qualitative Study

2016 ◽  
Vol 75 (Suppl 2) ◽  
pp. 644.3-645
Author(s):  
A. Lackner ◽  
A. Ficjan ◽  
J. Unger ◽  
W. Graninger ◽  
C. Dejaco
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Patient Perspective ◽  
Sjögren Syndrome ◽  
Sjogren Syndrome ◽  
Health Related Quality ◽  
Primary Sjögren Syndrome ◽  
Related Quality ◽  
Health Related

scholarly journals Impact of Pediatric COVID-19 on Family Health-Related Quality of Life: A Qualitative Study from Latvia

2021 ◽  
Vol 8 ◽  
pp. 2333794X2110123
Author(s):  
Inese Stars ◽  
Liene Smane ◽  
Zanda Pucuka ◽  
Ieva Roge ◽  
Jana Pavare
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Family Relationships ◽  
Family Health ◽  
Support Network ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

scholarly journals 274. Gout: Not Something You Brag About: A Qualitative Study of Health Related Quality of Life in Gout

Rheumatology ◽  
2014 ◽  
Vol 53 (suppl_1) ◽  
pp. i161-i162
Author(s):  
Priyanka Chandratre ◽  
Edward Roddy ◽  
Christian Mallen ◽  
Sam Hider ◽  
Jennifer Liddle ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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