scholarly journals Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

2018 ◽  
Vol 103 (9) ◽  
pp. 880-886 ◽  
Author(s):  
Kerry Louise Gaskin ◽  
Jo Wray ◽  
David J Barron
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Feasibility Study ◽  
Early Warning ◽  
Congenital Heart ◽  
Assessment Tool ◽  
Early Recognition ◽  
Home Monitoring ◽  
Complex Congenital Heart Disease ◽  
Normal Infant

AimTo explore the acceptability and feasibility of a parental early warning tool, called the Congenital Heart Assessment Tool (CHAT), for parents going home with their infant between first and second stage of surgery for complex congenital heart disease.BackgroundHome monitoring programmes were developed to aid early recognition of deterioration in fragile infants between first and second surgical stage. However, this necessitates good discharge preparation to enable parents to develop appropriate knowledge and understanding of signs of deterioration to look for and who to contact.DesignThis was a longitudinal qualitative feasibility study, within a constructivist paradigm. Parents were taught how to use the CHAT before taking their infant home and asked to participate in semistructured interviews at four time points: before discharge (T0), 2 weeks after discharge (T1), 8 weeks after discharge (T2) and after stage 2 surgery (T3). Interviews were transcribed verbatim and thematically analysed.SettingOne tertiary children’s cardiac centre in the UK.SubjectsTwelve parents of eight infants who were discharged following first stage cardiac surgery for complex congenital heart disease, between August 2013 and February 2015.ResultsFour main themes emerged: (1) parental preparation and vigilance, (2) usability, (3) mastery, and (4) reassurance and support.ConclusionsThe study highlighted the benefit of appropriately preparing parents before discharge, using the CHAT, to enable identification of normal infant behaviour and to detect signs of clinical deterioration. The study also demonstrated the importance of providing parents with information about when and who to call for management advice and support.

scholarly journals Cyanotic complex congenital heart disease presenting with brain abscess at the age of 19: A case report and review of literature

2016 ◽  
Vol 31 (1) ◽  
pp. 41-45
Author(s):  
Khandker Md Nurus Sabah ◽  
Abdul Wadud Chowdhury ◽  
Mohammad Shahidul Islam ◽  
Mohsin Ahmed ◽  
Gaffar Amin ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Case Report ◽  
Brain Abscess ◽  
Congenital Heart ◽  
Early Recognition ◽  
Neurological Complication ◽  
Unusual Presentation ◽  
Complex Congenital Heart Disease ◽  
Congenital Cyanotic Heart Disease

Introduction: Brain abscess is a complication of congenital cyanotic heart disease with or without shunt anomaly. It is more common in children. Here, we delineated a case of 19-year-old young Bangladeshi - Bengali male who presenting with brain abscess, an unusual presentation of cyanotic complex congenital heart disease. This case report focuses not only on the unusual presentation of congenital heart disease but also emphasizes the importance of early recognition of neurological complication for referal management.Bangladesh Heart Journal 2016; 31(1) : 41-45

Double-chambered left ventricle with complex congenital heart disease in an infant: an extremely rare pathology

2019 ◽  
Vol 16 (3) ◽  
pp. 187-191
Author(s):  
T.V. Rogova ◽  
A.I. Kim ◽  
A.V. Sobolev ◽  
S.A. Aleksandrova ◽  
E.V. Kholmanskaya ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Left Ventricle ◽  
Congenital Heart ◽  
Complex Congenital Heart Disease

scholarly journals A systematic review examining the clinical and health-care outcomes for congenital heart disease patients using home monitoring programmes

2021 ◽  
pp. 1357633X2098405
Author(s):  
Rachel Crawford ◽  
Ciara Hughes ◽  
Sonyia McFadden ◽  
Jacqui Crawford
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Case Series ◽  
Home Monitoring ◽  
Risk Of Bias ◽  
Health Care Outcomes ◽  
Care Outcomes

Objectives This review aimed to present the clinical and health-care outcomes for patients with congenital heart disease (CHD) who use home monitoring technologies. Methods Five databases were systematically searched from inception to November 2020 for quantitative studies in this area. Data were extracted using a pre-formatted data-collection table which included information on participants, interventions, outcome measures and results. Risk of bias was determined using the Cochrane Risk of Bias 2 tool for randomised controlled trials (RCTs), the Newcastle–Ottawa Quality Assessment Scale for cohort studies and the Institute of Health Economics quality appraisal checklist for case-series studies. Data synthesis: Twenty-two studies were included in this systematic review, which included four RCTs, 12 cohort studies and six case-series studies. Seventeen studies reported on mortality rates, with 59% reporting that home monitoring programmes were associated with either a significant reduction or trend for lower mortality and 12% reporting that mortality trended higher. Fourteen studies reported on unplanned readmissions/health-care resource use, with 29% of studies reporting that this outcome was significantly decreased or trended lower with home monitoring and 21% reported an increase. Impact on treatment was reported in 15 studies, with 67% of studies finding that either treatment was undertaken significantly earlier or significantly more interventions were undertaken in the home monitoring groups. Conclusion The use of home monitoring programmes may be beneficial in reducing mortality, enabling earlier and more timely detection and treatment of CHD complication. However, currently, this evidence is limited due to weakness in study designs.

Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease

2009 ◽  
Vol 11 (4) ◽  
pp. 291-297 ◽  
Author(s):  
Alison Knauth Meadows ◽  
Valerie Bosco ◽  
Elizabeth Tong ◽  
Susan Fernandes ◽  
Arwa Saidi
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Complex Congenital Heart Disease ◽  
Adult Care
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