Critical Issues in Career Development and Employment Preparation for Adolescents with Disabilities

1997 ◽  
Vol 18 (5) ◽  
pp. 307-320 ◽  
Author(s):  
Mary E. Morningstar

This article examines critical issues facing educators who are concerned with preparing adolescents with disabilities to meet the challenges of successful career planning and employment. Two issues at the forefront of career development and employment preparation are discussed in light of the results from a qualitative research study that used interactive focus groups to examine the perspectives of students with disabilities about their experiences with career development and employment preparation. The data presented in this article focus specifically on students with disabilities and their perspectives regarding identification of careers and future employment and the role their families played in career development.

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Kate L. Lapane ◽  
Catherine Dubé ◽  
Katarina Ferrucci ◽  
Sara Khan ◽  
Kristine A. Kuhn ◽  
...  

Abstract Background The average time to a diagnosis for people with axial spondyloarthritis (axSpA) is 7-10 years. Delayed diagnosis may result in increased structural damage, worse physical function, and worse quality of life relative to patients with a timely axSpA diagnosis. Understanding patient experiences may provide insights for how to reduce diagnostic delays. Objective To provide foundational knowledge about patient experiences with healthcare providers leading to an axSpA diagnosis. Methods We conducted an exploratory qualitative research study with six focus groups interviews with participants recruited from three rheumatology clinics within the United States (MA (n = 3); CO (n = 2); PA (n = 1)) that included a total of 26 adults (10 females, 16 males) with rheumatologist confirmed diagnosis of axSpA in 2019. Focus groups were ~ 2 h, audio recorded, transcribed, and subject to dual coding. The codes reviewed were in relation to the patients’ diagnostic experiences. Results Patients described frustrating and lengthy diagnostic journeys. They recognized that the causes of diagnostic delays in axSpA are multifactorial (e.g., no definitive diagnostic test, disease characteristics, lack of primary care provider’s awareness about axSpA, trust). Patients described how doctors minimized or dismissed complaints about symptoms or told them that their issues were psychosomatic. Patients believed the healthcare system contributed to diagnostic delays (e.g., lack of time in clinical visits, difficulty accessing rheumatologists, health insurance challenges). Advice to physicians to reduce the diagnostic delay included allowing time for patients to give a complete picture of their illness experience, listening to, and believing patients, earlier referral to rheumatology, provision of HLA-B27 gene testing, and that physicians need to partner with their patients. Conclusions Patients desire a definitive test that could be administered earlier in the course of axSpA. Until such a test is available, patients want clinicians who listen to, believe, and partner with them, and who will follow them until a diagnosis is reached. Educating primary care clinicians about guidelines and referral for diagnosis of axSpA could reduce diagnostic delay.


2010 ◽  
Author(s):  
Amy Pearson ◽  
Maureen Rigney ◽  
Anitra Engebretson ◽  
Johanna Villarroel ◽  
Jenette Spezeski ◽  
...  

2009 ◽  
Vol 149A (11) ◽  
pp. 2378-2386 ◽  
Author(s):  
Mary M. Jenkins ◽  
Erika Reed-Gross ◽  
Sonja A. Rasmussen ◽  
Wanda D. Barfield ◽  
Christine E. Prue ◽  
...  

2014 ◽  
Vol 21 (12) ◽  
pp. 560-568 ◽  
Author(s):  
Wesam Darawsheh

Background The value of qualitative research is increasingly acknowledged in health studies, as well as the demand for employing rigorous strategies. Although the literature recognises that reflexivity is a valuable and rigorous strategy, few studies unravel the practical employment of reflexivity as a strategy for ensuring rigour and quality in qualitative research. Aim To present a practical example of how reflexivity can be employed as a strategy for ensuring rigour by reviewing 13 narratives from the author's reflexive diary on qualitative research. Methods Content analysis and narrative analysis were used to approach and analyse data. Findings Analysis of the posited qualitative research study found five main outcomes of the influence of reflexivity as a strategy to establish criteria of rigour. Conclusions Further research is needed to show how reflexivity can be employed as a strategy in qualitative research to: i) establish criteria of rigour; ii) monitor the researcher's subjectivity in generating credible findings.


2008 ◽  
Vol 13 (4) ◽  
pp. 50-65 ◽  
Author(s):  
Karin Minnie ◽  
Hester Klopper ◽  
Christa Van der Walt

The objective of this study was to explore and describe the factors that influence the decision by pregnant women to be tested for HIV. This was achieved through a qualitative research study that was exploratory, descriptive and contextual in nature. A sample of 13 pregnant women participated. Data obtained from semi-structured interviews was analysed according to a protocol based on a combination of methods of analysis. The three main themes, namely factors that contribute to the decision by pregnant women to be tested for HIV, factors that contribute to the decision by pregnant women not to be tested for HIV and organisational factors that influence the decision by pregnant women to be tested for HIV, were divided into nine subthemes. Conclusions and recommendations to promote counselling to pregnant women being tested for HIV are provided. Opsomming Die doel van die studie was om die faktore wat die besluit van swanger vroue om vir MIV getoets te word, te verken en beskryf. Dit is gedoen deur middel van verkennende, beskrywende, kontekstuele kwalitatiewe navorsing. ’n Steekproef van 13 swanger vroue het deelgeneem. Inligting is verkry deur middel van semi-gestruktureerde onderhoude. Hierdie inligting is ontleed aan die hand van ’n protokol gebaseer op ’n kombinasie van ontledingsmetodes. Die drie hooftemas, naamlik faktore wat bydra tot swanger vroue se besluit om vir MIV getoets te word, faktore wat bydra tot swanger vroue se besluit om nie vir MIV getoets te word nie en organisatoriese faktore wat swanger vroue se besluit beïnvloed om vir MIV getoets te word, is in nege subtemas onderverdeel. Gevolgtrekkings en aanbevelings ter bevordering van berading van swanger vroue vir MIV-toetsing, word verskaf.


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