Dignified death: Concept development involving nurses and doctors in Pediatric Intensive Care Units

2011 ◽  
Vol 18 (5) ◽  
pp. 694-709 ◽  
Author(s):  
Kátia Poles ◽  
Regina Szylit Bousso

The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units (PICUs). The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs. Not unexpectedly, the concept of dignified death was found to be a complex phenomenon involving aspects related to decisions made by the multidisciplinary team as well as those related to care of the child and the family. Knowledge of the concept’s dimensions can promote reflection on the part of healthcare professionals regarding the values and beliefs underlying their conduct in end-of-life situations. Our hope is that this study may contribute to theoretic and methodological development in the area of end-of-life care.

2017 ◽  
Vol 64 (5) ◽  
pp. 1167-1183 ◽  
Author(s):  
Markita L. Suttle ◽  
Tammara L. Jenkins ◽  
Robert F. Tamburro

2008 ◽  
Vol 9 (1) ◽  
pp. 26-31 ◽  
Author(s):  
Patricia M. Lago ◽  
Jefferson Piva ◽  
Pedro Celiny Garcia ◽  
Eduardo Troster ◽  
Albert Bousso ◽  
...  

2021 ◽  
Vol 9 ◽  
Author(s):  
Lars Garten ◽  
Andrea Danke ◽  
Tobias Reindl ◽  
Anja Prass ◽  
Christoph Bührer

Objective: To investigate and compare nurses' perceived care-related distress and experiences in end-of-life situations in neonatal and pediatric intensive care units.Study design: Single-center, cross-sectional survey. Administration of an anonymous self-report questionnaire survey to nurses of two tertiary neonatal intensive care units (NICUs), and two tertiary pediatric intensive care units (PICUs) in Berlin, Germany.Results: Seventy-three (73/227, response rate 32.2%) nurses completed surveys. Both, NICU (32/49; 65.3%) and PICU (24/24; 100.0%) nurses, reported “staffing shortages” to be the most frequent source of distress in end-of-life situations. However, when asked for the most distressing factor, the most common response by NICU nurses (17/49) was “lack of clearly defined and agreed upon therapeutic goals”, while for PICU nurses (12/24) it was “insufficient time and staffing”. No significant differences were found in reported distress-related symptoms in NICU and PICU nurses. The interventions rated by NICU nurses as most helpful for coping were: “discussion time before the patient's death” (89.6%), “team support” (87.5%), and “discussion time after the patient's death” (87.5%). PICU nurses identified “compassion” (98.8%), “team support”, “personal/private life (family, friends, hobbies)”, and “discussion time after the patient's death” (all 87.5%) as most helpful.Conclusions: Distress-related symptoms as a result of end-of-life care were commonly reported by NICU and PICU nurses. The most frequent and distressing factors in end-of-life situations might be reduced by improving institutional/organizational factors. Addressing the consequences of redirection of care, however, seems to be a more relevant issue for the relief of distress associated with end-of-life situations in NICU, as compared to PICU nurses.


2011 ◽  
Vol 15 (9) ◽  
pp. 958-965 ◽  
Author(s):  
Lars Gartenl ◽  
Steffen Daehmlowl ◽  
Tobias Reindll ◽  
Anke Wendtl ◽  
Annette Münchl ◽  
...  

Author(s):  
Roiter de Albernaz Furtado ◽  
Cristian Tedesco Tonial ◽  
Caroline Abud Drumond Costa ◽  
Gabriela Rupp Hanzen Andrades ◽  
Francielly Crestani ◽  
...  

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