scholarly journals Quality-of-Life Assessment in Palliative Care

1996 ◽  
Vol 3 (3) ◽  
pp. 223-229 ◽  
Author(s):  
Susan C. Mcmillan
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Symptom Control ◽  
Life Assessment ◽  
Validity And Reliability ◽  
Life Index ◽  
Patients With Cancer ◽  
Quality Of Life Index ◽  
Further Development

Background Understanding the effects of cancer on the quality of life of affected patients is critical to clinical research as well as to optimal management and care. Methods Nine instruments for assessing quality of life in patients with cancer are identified, and their effectiveness during palliative care is analyzed. Results Most of the instruments included physical, functional, and symptom control, as well as psychologic and social aspects. Financial and spiritual aspects were included less often. While all but two of the instruments had adequate validity and reliability data published, only two - the Spitzer Quality-of-Life Index and the Hospice Quality-of-Life Index - were designed and validated for palliative care populations. Conclusions Although a variety of instruments is currently available, none is ideal for all palliative care settings. Further development and refinement of instruments are needed.

Validation of Quality of Life Index-Cancer among Korean Patients with Cancer

2004 ◽  
Vol 34 (5) ◽  
pp. 693 ◽  
Author(s):  
Hyang Sook So ◽  
Won Hee Lee ◽  
Eun Hyun Lee ◽  
Bok Yae Chung ◽  
Hea Kung Hur ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Index ◽  
Korean Patients ◽  
Patients With Cancer ◽  
Quality Of Life Index ◽  
Index Cancer

Reliability and validity of the Japanese version of the Quality of Life Index for patients with cancer

2020 ◽  
Vol 43 (2) ◽  
pp. 176-185
Author(s):  
Michiyo Mizuno ◽  
Noriko Munezawa ◽  
Michiyo Yamashita ◽  
Tomoyo Sasahara ◽  
Thomas Mayers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Reliability And Validity ◽  
Japanese Version ◽  
Life Index ◽  
Patients With Cancer ◽  
Quality Of Life Index

Quality of Life Index for Patients with Cancer

1983 ◽  
Vol 6 (3) ◽  
pp. 117-126 ◽  
Author(s):  
Geraldine V. Padilla ◽  
Cary Presant ◽  
Marcia M. Grant ◽  
Gerald Metter ◽  
James Lipsett ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Index ◽  
Patients With Cancer ◽  
Quality Of Life Index

Quality of life assessment among children with psoriasis

2021 ◽  
pp. 41-48
Author(s):  
Yulia V. Agafonova ◽  
Daria L. Simonova ◽  
Sergey N. Simonov
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Complete Recovery ◽  
Skin Lesions ◽  
Life Assessment ◽  
Life Index ◽  
Scalp Psoriasis ◽  
Quality Of Life Index ◽  
The Impact

An increase of psoriasis in childhood, a more severe course of this disease, the presence of a cosmetic defect, which causes a negative impact on the quality of life of such patients, determine the relevance of this problem of modern dermatology. Psoriasis is characterized by a psoriatic rash, which is based on hyperkeratosis caused by uncontrollable mitosis of keratinocytes. Despite the recent studies of a large number of various mechanisms that can contribute to the psoriasis development, there is still no clear answer which of them is the main one, and this makes it impossible to achieve in most cases the desired clinical result of treatment, in particular, ensuring stable clinical remission or complete recovery of patients. The purpose of our study was to assess the impact of psoriatic manifestations on the quality of life among children. The object of observation was 106 children aged 4 to 17 years suffering from psoriasis. The average age of the children was 13 years. The measurement was carried out using the “Dermatological Quality of Life Index” (DLQI) (age 16–17 years), and the “Pediatric Dermatological Quality of Life Index” (CDLQI) (age 4–15 years). In addition, we analyze the severity indices of psoriasis in children: BSA, PASI and PGA. As a result of the study, the following was found: in general, psoriasis has a small impact on the quality of life in children – DLQI in children with psoriasis is 5 points; the value of the DLQI index is statistically significantly higher in girls than in boys, and with age the effect on the quality of life in children with psoriasis increases; skin lesions with psoriatic plaques of open areas in children has a significant impact on the quality of life: with scalp psoriasis, the DLQI level is the highest; statistically significant relationships between DLQI and psoriasis severity indices are established: between DLQI and BSA (r = 0.378; p < 0.001), between PASI and DLQI (r = 0.38; p < 0.001). With an increase in the intensity of manifestations of the pathological process assessed by the PGA index, the influence of psoriasis on the quality of life among children also increases (p = 0.011). According to the results of the study, methodological recommendations on medical and social support for children with psoriasis were drawn up and provided to specialized medical organizations.

A psychosocial and pshycoeducational intervention for cancer patients integrated into routine care: A study from India.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. e19518-e19518 ◽  
Author(s):  
Anita Chandra
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Health Professionals ◽  
Psychosocial Intervention ◽  
Psychological Intervention ◽  
Symptom Control ◽  
Psychosocial Care ◽  
Patients With Cancer ◽  
Oncology Care

e19518 Background: Patients with cancer experience significant distress and access to effective psychosocial care is limited by lack of systematic approach. This paper presents results of a study to evaluate the effectiveness of a brief tailored psychosocial intervention delivered by health professionals in cancer care in developing countries. Methods: Health professionals deliver the multicomponent, psychoeducational and psychosocial intervention focusing on core concepts of quality of life, supportive-expressive, cognitive, social functioning, symptom scale and dignity-conserving care. A total of 100 patients recruited across all tumour sites, from July 2011 to December 2011, in a University Hospital in India. Eligible patients received 2 sessions, each for 30 minutes in length, delivered face-to-face at baseline and 12 week follow-up. Results: Quality of life was measured by using the European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 questionnaire .In this study the functional scales were high, whereas in the symptom scales fatigue (48.9%) and financial difficulties (45.53%) were noted. Percentages of families who evaluated by the palliative care team voted as useful or very useful were: 80% (symptom control), 85% (emotional support), 86% (family support), and 87% (care coordination). Compared with participants receiving usual oncology care, those receiving a palliative care-focused intervention addressing psychosocial care provided concurrently with oncology care had higher scores for quality of life and mood. Conclusions: This study will provide important information about the effectiveness of a brief tailored psychological intervention for patients with cancer in a developing country. This model of care should be a systematic implementation in routine clinical practice cancer settings in resource restraints countries. [Table: see text]

What Do Italian Hospital Physicians Know about Quality of Life Assessment in Oncology?

1994 ◽  
Vol 80 (1) ◽  
pp. 24-27 ◽  
Author(s):  
Gianfranco Belli ◽  
Marcello Tamburini ◽  
Eugenio Paci
Keyword(s):  
Quality Of Life ◽  
Group Performance ◽  
Assessment Tools ◽  
Life Assessment ◽  
Assessment Instruments ◽  
Quality Of Life Assessment ◽  
Life Index ◽  
Hospital Physicians ◽  
Quality Of Life Index

Aims To assess the current level of information and use of quality of life assessment instruments by Italian physicians involved in oncologic patient care. Methods Specifically trained scientific representatives of a pharmaceutical company interviewed 2237 hospital physicians all over Italy. Results A total of 1390 physicians (62.1%) had some knowledge of quality of life assessment tools in oncology, but 364 of them (26.2%) were unable to recall the name of any instruments. The one that was most frequently recalled by the 1026 physicians who knew of the existence of one or more instruments was the Karnofsky Performance Status (KPS) (91%) followed by the Eastern Cooperative Oncology Group performance scale (ECOG) (35.5%) whereas the Quality of Life Index and Visual Analogue Scale were at the very bottom of the list (5.9% and 3.7%, respectively). Physician age and type of department were found to be strong predictors of knowledge of the instruments, which was greater among young physicians and those working in oncological departments. Of the physicians aware of the KPS, 56.6% used it, whereas the percentage of physicians using ECOG was higher (69.5%). Conclusions The collected data indicate a poor knowledge of quality of life assessment instruments in Italian physicians. Most physicians tend to use so-called «objective» instruments where the assessment is made by the physician and not by the patient (KPS, ECOG Quality of Life index), are practically unaware of the new generation of «subjective» self-rating instruments. The use of such instruments in particular might provide greater insights into the impact of the disease and related treatments on the quality of life of cancer patients.

scholarly journals Clinical research in cancer palliative care: a metaresearch analysis

2020 ◽  
Vol 10 (2) ◽  
pp. 249-258
Author(s):  
Marie Vinches ◽  
Anouk Neven ◽  
Laurène Fenwarth ◽  
Mitsumi Terada ◽  
Giovanna Rossi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Clinical Research ◽  
Advanced Cancer ◽  
Cancer Care ◽  
Symptom Control ◽  
Patients With Cancer ◽  
Heterogeneous Landscape ◽  
Research Domains

ObjectiveThis metaresearch of the clinicaltrials.gov database aims to evaluate how clinical research on palliative care is conducted within the setting of advanced cancer.MethodsClinicaltrials.gov was searched to identify registered studies recruiting patients with cancer, and investigating issues relevant to palliative care. The European Organisation for Research and Treatment of Cancer QLQ-C15-PAL (Quality of Life in palliative cancer care patients) questionnaire was taken into account to define the research domains of interest. Studies investigating cancer-directed therapy, management of cancer treatment-related adverse events and diagnostic tests were excluded. Publication status was crosschecked using PubMed.ResultsOf 3950 identified studies, 514 were included. The most frequent reason for exclusion was cancer-directed therapy (2491). In 2007–2012, 161 studies were registered versus 245 in 2013–2018. Included studies were interventional (84%) or observational (16%). Most studies were monocentric (60%), sponsored by academia (79%), and conducted in North America (57%) or Europe (25%). Seventy-nine per cent of studies evaluated a heterogeneous population (>1 tumour type). Interventional studies most frequently investigated systemic drugs (34%), behavioural interventions (29%) and procedures for pain (24%). Pain, quality of life and physical function were the most frequently studied research domains (188, 95 and 52 studies, respectively). The most applied primary outcome measures were efficacy/symptom control (61%), quality of life (14%) and feasibility (12%). Only 16% of the closed studies had published results in PubMed.ConclusionsOur study describes the heterogeneous landscape of studies conducted to address the issues of patients with advanced cancer in palliative care. Albeit the observed increase in the number of studies over the last decade, the generalisation of the results brought by the existing trials is limited due to methodological issues and lack of reporting. A greater effort is needed to improve clinical research that supports evidence-based palliative cancer care.

Sign in / Sign up

Export Citation Format

Share Document