Employment, disability pension and income for children with parental multiple sclerosis

2016 ◽  
Vol 23 (8) ◽  
pp. 1148-1156 ◽  
Author(s):  
Julie Yoon Moberg ◽  
Bjarne Laursen ◽  
Nils Koch-Henriksen ◽  
Lau Caspar Thygesen ◽  
Anne Brødsgaard ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Low Income ◽  
Disability Pension ◽  
Adult Life ◽  
Offspring Cohort ◽  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Employment Disability ◽  
The Mean

Background: Little is known about the consequences of parental multiple sclerosis (MS) on offspring’s socioeconomic circumstances. Objective: To investigate employment, disability pension and income in offspring of parents with MS compared with matched reference persons in a nationwide register-based cohort study. Methods: All Danish-born persons with onset of MS during 1950–1986 were retrieved from the Danish Multiple Sclerosis Registry. Their offspring were identified using the Civil Registration System. One random offspring from each sibship was matched by sex and year of birth with eight random reference persons. Results: We included 2456 MS offspring and 19,648 reference persons. At age 30, employment was lower among MS offspring than reference children (odds ratio (OR): 0.89; 95% confidence interval (CI): 0.84–0.95; p = 0.0003), and they more often received disability pension (OR: 1.31; 95% CI: 1.15–1.50; p < 0.0001) at ages 30 and 40 but not at age 50. Although the mean income was not significantly lower for the MS offspring cohort, most of them attained an annual personal income below 250,000 DKK (Danish krone), that is, ~33,650 EUR (OR: 0.91; 95% CI: 0.84–0.99; p = 0.04). Conclusion: Having had a parent with MS may affect employment and increase the risk of disability pension and low income in adult life.

Reproduction and the risk of multiple sclerosis

2013 ◽  
Vol 19 (12) ◽  
pp. 1604-1609 ◽  
Author(s):  
Melinda Magyari ◽  
Nils Koch-Henriksen ◽  
Claudia C Pfleger ◽  
Per Soelberg Sørensen
Keyword(s):  
Multiple Sclerosis ◽  
Parental Age ◽  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Clinical Onset ◽  
Danish Civil Registration System ◽  
Number Of Births

Background: The incidence of multiple sclerosis (MS) in Denmark has doubled in women since 1970, whereas it has been almost unchanged in men. Objectives: To investigate whether age at first childbirth and number of births have an effect on the risk of developing MS. Methods: The cohort consisted of 1403 patients with MS of both sexes, identified through the Danish Multiple Sclerosis Registry, with clinical onset between 2000 and 2004. For each case, 25 control persons were drawn by random from the Danish Civil Registration System matched by sex, year of birth, and residential municipality. Results: More female cases than controls had no childbirths or fewer births before clinical onset ( p=0.018) but only in the last five years preceding onset ( p<0.0001). Childbirths within five years before clinical onset reduced the risk of MS onset in women: OR=0.54 (95% CI 0.41–0.70, p<0.0001) for one child and OR=0.68 (95% CI 0.53–0.87, p=0.002) for more than one child. Parental age at first childbirth had no effect on the risk of MS. Conclusions: The data did not suggest reversed causality between childbirth and MS.

scholarly journals Application of verbal autopsy in routine civil registration in Lusaka District of Zambia

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
C. Chabila Mapoma ◽  
Brian Munkombwe ◽  
Chomba Mwango ◽  
Bupe Bwalya Bwalya ◽  
Audrey Kalindi ◽  
...  
Keyword(s):  
Middle Ages ◽  
Cause Of Death ◽  
Verbal Autopsy ◽  
Opportunistic Infections ◽  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Major Teaching Hospital ◽  
External Causes ◽  
Causes Of Deaths

Abstract Background Ascertaining the causes for deaths occurring outside health facilities is a significant problem in many developing countries where civil registration systems are not well developed or non-functional. Standardized and rigorous verbal autopsy methods is a potential solution to determine the cause of death. We conducted a demonstration project in Lusaka District of Zambia where verbal autopsy (VA) method was implemented in routine civil registration system. Methods About 3400 VA interviews were conducted for bodies “brought-in-dead” at Lusaka’s two major teaching hospital mortuaries using a SmartVA questionnaire between October 2017 and September 2018. Probable underlying causes of deaths using VA and cause-specific mortality fractions were determined.. Demographic characteristics were analyzed for each VA-ascertained cause of death. Results Opportunistic infections (OIs) associated with HIV/AIDS such as pneumonia and tuberculosis, and malaria were among leading causes of deaths among bodies “brought-in-dead”. Over 21.6 and 26.9% of deaths were attributable to external causes and non-communicable diseases (NCDs), respectively. The VA-ascertained causes of death varied by age-group and sex. External causes were more prevalent among males in middle ages (put an age range like 30–54 years old) and NCDs highly prevalent among those aged 55 years and older. Conclusions VA application in civil registration system can provide the much-needed cause of death information for non-facility deaths in countries with under-developed or non-functional civil registration systems.

scholarly journals Civil registration system (CRS) for birth and death registration in Assam – A rapid assessment

2020 ◽  
Vol 8 (1) ◽  
pp. 117-122
Author(s):  
Tushar Manohar Rane ◽  
Tulika Goswami Mahanta ◽  
Safikul Islam ◽  
Pranjal Pratim Gogoi ◽  
Bivash Gogoi
Keyword(s):  
Rapid Assessment ◽  
Death Registration ◽  
Civil Registration System ◽  
Registration System ◽  
Civil Registration

scholarly journals Strengthening Civil Registration System in AP, India: Lessons from a 4 Year Study

2014 ◽  
Vol 6 (1) ◽  
Author(s):  
Jayaram Madala ◽  
Srikrishna Sulgodu Ramachandra
Keyword(s):  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Factors Influencing ◽  
Inter State

Civil Registration System (CRS) in India has been in vogue for more than 100 years now. Even after 4 decades of the enactment of the Act, there are wide inter-state and intra-state variations.  Objectives 1.  To assess the district wise reporting and registrations of births and deaths in AP from 2007 - 2010. 2.    To make an urban vs. rural comparison of proportions of these registrations. 3. To identify factors influencing civil registration in AP and steps for strengthening CRS. The article discusses, determinants of civil registration in India & strategies for strengthening reporting & registrations.

scholarly journals The scale of Gujarat’s mortality crisis

2021 ◽  
Author(s):  
Aashish Gupta ◽  
Murad Banaji
Keyword(s):  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Excess Deaths

Analysis of excess deaths from the civil registration system spotlights the systematic obfuscation in official statements

scholarly journals India’s Civil Registration System: a potentially viable data source for reliable subnational mortality measurement

2020 ◽  
Author(s):  
Chalapati Rao ◽  
Mamta Kansal
Keyword(s):  
Cause Of Death ◽  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Medical Certification ◽  
Sample Registration System ◽  
Reliable Source ◽  
Data Source ◽  
Near Future

ABSTRACTIntroductionThe Indian national Civil Registration System (CRS) is the optimal data source for mortality measurement, but is yet under development. As an alternative, data from the Sample Registration System (SRS) which covers less than 1% of the national population is used. This article presents a comparative analysis of mortality measures from the SRS and CRS in 2017, and explores the potential of the CRS to meet these subnational data needs.MethodsData on population and deaths by age and sex for 2017 from each source were used to compute national and state level life tables. Sex specific ratios of death probabilities in five age categories (0-4, 5-14, 15-29, 30-69, 70 -84, 85+) were used to evaluate CRS data completeness, using SRS probabilities as reference values. The quality of medically certified causes of death was assessed through hospital reporting coverage and proportions of deaths registered with ill-defined causes from each state.ResultsThe CRS operates through an extensive infrastructure with high reporting coverage, but child deaths are uniformly under reported, as well as female deaths in some states. However, at ages 30 to 69 years, CRS death probabilities are higher than the SRS values in 15 states in males and 10 states in females. SRS death probabilities are of limited precision for measuring mortality trends and differentials. Medical certification of cause of death is affected by low hospital reporting coverage.ConclusionsThe Indian CRS is more reliable than the SRS for measuring adult mortality in several states. Targeted initiatives to improve the recording of child and female deaths, to strengthen the quality of medical certification of cause of death, and to promote use of verbal autopsy methods are necessary to establish the CRS as a reliable source of sub national mortality statistics in the near future.KEY MESSAGESThe Sample Registration System (SRS) is currently the main source of mortality statistics in India, since the Civil Registration System (CRS) is yet under developmentLimitations in sample size as well as problems with quality of causes of death result in considerable uncertainty in population level mortality estimates from the SRSThis research evaluated the quality of the sex and age specific mortality risks from the CRS, using the SRS values in each state as reference valuesThe CRS has high levels of reporting coverage for death registration, and also measures higher levels of mortality at ages 30 to 69 years in several states, with high precisionInterventions are required to improve child death registration, strengthen medical certification of cause of death in hospitals, and introduce verbal autopsy for home deathsThese interventions will establish the CRS as a routine and reliable source for national and subnational mortality measurement in India in the near future

The Danish Civil Registration System as a tool in epidemiology

2014 ◽  
Vol 29 (8) ◽  
pp. 541-549 ◽  
Author(s):  
Morten Schmidt ◽  
Lars Pedersen ◽  
Henrik Toft Sørensen
Keyword(s):  
Civil Registration System ◽  
Registration System ◽  
Civil Registration ◽  
Danish Civil Registration System

Social consequences of multiple sclerosis (1): early pension and temporary unemployment—a historical prospective cohort study

2009 ◽  
Vol 16 (1) ◽  
pp. 121-126 ◽  
Author(s):  
Claudia Christina Hilt Pfleger ◽  
Esben Meulengracht Flachs ◽  
Nils Koch-Henriksen
Keyword(s):  
Multiple Sclerosis ◽  
Economic Status ◽  
Disease Onset ◽  
Social Consequences ◽  
Economic Life ◽  
Detailed Knowledge ◽  
Registration System ◽  
Civil Registration ◽  
Starting Point ◽  
Multiple Sclerosis Patients

Multiple sclerosis affects young and middle-aged people and often leads to physical and cognitive handicaps. There is a need for detailed knowledge of the social consequences of the disease. We aim here to describe the course of the working life and career of multiple sclerosis patients at the time of onset and thereafter, in terms of probability of early pension and income development. All 2538 patients with multiple sclerosis in Denmark with disease onset between 1980 and 1989, identified through the Danish MS-Registry, were included in this study. Twenty matched control persons per patient were randomly drawn from the civil registration system. Information on economic status was retrieved from Statistics Denmark. A survival analysis technique was used with onset as the starting point. We found that the probability of remaining without early pension was at 5 years 70% for patients and 97% for controls, and at 20 years 22% for patients and 86% for controls. Due to lower rates for early pension, gross income with time was lower in patients than controls. We conclude that multiple sclerosis seriously affects the economic life of multiple sclerosis patients, even within a few years of onset.

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