A User-Centered Need Analysis of Cancer Patient Navigation — An Intersection of Collaborative Work and Collaborative Health IT

Author(s):  
Wayne W. Zachary ◽  
Courtney C. Rogers ◽  
Jennifer McEachin ◽  
Donna M. Wilson ◽  
Wendy F. Cohn ◽  
...  

Cancer care is becoming more complex each year, making the patient’s path to, and through the care continuum confusing and daunting. Patient-navigation programs for cancer patients have grown in recent years, but their navigation support is fragmented in many ways and often incomplete, lessening their effectiveness. Digital tools to support the cancer patient navigator can make them more effective and allow more patients to receive navigation support. A multifaceted analysis of the needs for such tools is presented. The analysis methods include literature review, domain analysis, and qualitative interviews with a sample of ten cancer patient navigators.

2014 ◽  
Vol 49 (5) ◽  
pp. 1555-1577 ◽  
Author(s):  
Christine M. Gunn ◽  
Jack A. Clark ◽  
Tracy A. Battaglia ◽  
Karen M. Freund ◽  
Victoria A. Parker

2018 ◽  
Vol 25 (3) ◽  
pp. 184 ◽  
Author(s):  
G. Park ◽  
G.M. Johnston ◽  
R. Urquhart ◽  
G. Walsh ◽  
M. McCallum

Background Cancer-patient navigators who are oncology nurses support and connect patients to resources throughout the cancer care trajectory, including end of life. Although qualitative and cohort studies of navigated patients have been reported, no population-based studies were found. The present population-based study compared demographic, disease, and outcome characteristics for decedents who had been diagnosed with cancer by whether they did or did not see a navigator.Methods This retrospective study used patient-based administrative data in Nova Scotia (cancer registry, death certificates, navigation visits) to generate descriptive statistics. The study population included all adults diagnosed with cancer who died during 2011–2014 of a cancer or non-cancer cause of death.Results Of the 7694 study decedents, 74.9% had died of cancer. Of those individuals, 40% had seen a navigator at some point in their disease trajectory. The comparable percentage for those who did not die of cancer was 11.9%. Decedents at the oldest ages had the lowest navigation rates. Navigation rates, time from diagnosis to death, and time from last navigation visit to death varied by disease site.Conclusions This population-based study of cancer-patient navigation enrolees compared with non-enrolees is the first of its kind. Most findings were consistent with expectations. However, we do not know whether the rates of navigation are consistent with the navigation needs of the population diagnosed with cancer. Because more people are living longer with cancer and because the population is aging, ongoing surveillance of who requires and who is using navigation services is warranted.


2010 ◽  
Vol 25 (3) ◽  
pp. 50-53 ◽  
Author(s):  
Ashley Varner ◽  
Pam Murph

2015 ◽  
Vol 63 (2) ◽  
pp. 365-370 ◽  
Author(s):  
Kathryn L. Braun ◽  
William L. Thomas ◽  
Jermy-Leigh B. Domingo ◽  
Amanda L. Allison ◽  
Avette Ponce ◽  
...  

2020 ◽  
Vol 30 (2) ◽  
pp. 73-82
Author(s):  
Kristen Haase ◽  
Jennifer Anderson ◽  
Andrea Knox ◽  
Myriam Skrutkowski ◽  
Beth Snow ◽  
...  

2021 ◽  
pp. 205343452110634
Author(s):  
Kristina M Kokorelias ◽  
Stephanie Posa ◽  
Tracey DasGupta ◽  
Naomi Ziegler ◽  
Sander L Hitzig

Introduction The success of new patient navigation programs have mostly been described from the perspectives of patient outcomes. Little is known about how patient navigators interact with healthcare professionals in the community and in hospital settings. Methods A qualitative study using a phenomenological analysis was undertaken to depict the lived experiences of Ontario (Canada) healthcare providers who have interacted with a patient navigator. Semi-structured interviews were conducted with 42 healthcare professionals, including frontline care providers ( n = 25) and administrators ( n = 16) from hospital ( n = 21) and community care settings ( n = 21). Results Participants’ experiences were reflected in one overarching theme: role clarity and three emergent themes related to the overarching theme: (i) concerns over accountability of patient care (ii) trust (iii) attainable-but-not. Participants described an inconsistent understanding of the role of patient navigators which led to uncertainty regarding their role in patient care. The current nature of the healthcare system influenced participants’ belief in the sustainability of patient navigation model of care. Despite these experiences, participants felt that patient navigators could help healthcare providers care for patients by preventing potential crises from developing and enhancing their knowledge about services. Discussion This study expands our understanding of patient navigation programs by exploring the experiences and perceptions of healthcare professionals, thereby providing new perspectives into components that support the successful health outcomes of older adults being supported by a patient navigator. The implications of findings for research, clinical practice, and policy are described.


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