Hospice palliative care program management, setup, and operation with a national pilot study in Haidian, Beijing.

2018 ◽  
Vol 36 (34_suppl) ◽  
pp. 121-121
Author(s):  
Zetao Zhang ◽  
Yi Zhu ◽  
Zhaoping He ◽  
Yuling He ◽  
Naning Wang ◽  
...  

121 Background: In 2016, an inpatient hospice palliative care ward was initiated in Beijing Haidian Hospital, which was the first pilot study program in Beijing. Challenges of implementing the program and the process to facilitate change in the hospital’s and society culture in China. Methods: This program has been partnered with Ovation Health International and Hospice Palliative Care Alliance of China Foundation at beginning of the program development in order to streamline the program design and establish standard operating procedures. The program was operated by a multi-disciplinary team which is the first of these kinds of team structure in Chinese health system, including the program manager, physicians, nurses, social workers, psychologic counsellors, chaplains, and volunteers. Results: The program has served over 200 patients and their families in the first year. The inpatient hospice unit has 2 specially decorated rooms with 6 in-patient beds, a meeting room, and a farewell room. The program has expanded its palliative care counselling service to the entire hospital and affiliated community nursing homes and will plan to expand the number of beds to 20 in the inpatient hospice unit. The implementation of the program has been full of obstacles, encompassing the lack of trained professionals, limited financial resources, higher staff turnover, and professional misunderstanding and public rejection. Now upgraded to a National Pilot model of China, the trial program team led by the program manager, has overcome core barriers/challenges in team building, team enablement, resource supporting, public education, and society awareness to keep the program growth. Conclusions: The lessons learned from the experience of developing the first hospital-based hospice palliative care program in the capital of China will be presented. Particularly, barriers and challenges, both modifiable and non-modifiable, will be shared as well as facilitating factors. The authors will share the pathway to partner across disciplines, with policy makers, and in research, education, and practice. This helps the team in the creation of new knowledge and in continuing to establish the evidence-based value of palliative care in China.

2019 ◽  
Vol 37 (6) ◽  
pp. 455-464 ◽  
Author(s):  
Jiwon Lee ◽  
Jong-Eun Lee

Background: The objective of community-based palliative care is to improve the quality of life of patients and their families and to share the responsibility of caregiving. However, the evidence of the efficacy of volunteer services in community-based palliative care is insufficient. Purpose: This pilot study sought to uncover the feasibility and efficacy of a volunteer program in palliative care. Methods: The study used a sequential mixed-methods design. A total of 19 volunteers participated in the training program, and 6 trained volunteers provided services for a period of 10 weeks to 5 families. Quantitative data were collected on death anxiety, coping with death, and meaning in life for volunteers before and after the training and after completing their services. Qualitative data were collected about volunteering experiences. Results: Significant increases in coping with death and meaning in life after training and in meaning in life after providing services were observed among volunteers. Three categories (“Volunteer’s growing influence at home,” “Discovering meaning-in-life through volunteering,” and “Death as the final journey in life”) emerged from the qualitative findings. The caregivers’ satisfaction score was high. Conclusions: A palliative care program was found to be useful for volunteers in finding meaning in life, motivating continued volunteering. Moreover, caregivers were satisfied with the palliative care service of volunteers.


2021 ◽  
Vol 24 (1) ◽  
pp. 40-45
Author(s):  
Elissa G. Miller ◽  
Meaghann S. Weaver ◽  
Lindsay Ragsdale ◽  
Tracy Hills ◽  
Lisa Humphrey ◽  
...  

2017 ◽  
Vol 4 (3) ◽  
pp. 47-52
Author(s):  
Eleanor Foster

A general descrition of the initiation of a palliative care program in Kenya using a transformational development, participatory and empowering approach, with lessons learned and description of subsequent impact. 


PEDIATRICS ◽  
2014 ◽  
Vol 134 (3) ◽  
pp. e765-e772 ◽  
Author(s):  
H. Siden ◽  
N. Chavoshi ◽  
B. Harvey ◽  
A. Parker ◽  
T. Miller

2007 ◽  
Vol 34 (S 2) ◽  
Author(s):  
R Jox ◽  
S Haarmann-Doetkotte ◽  
M Wasner ◽  
GD Borasio

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