Respite Care

ABSTRACTBackground:Caring for persons with dementia is stressful for family caregivers. Caregiver training programs and respite care can reduce this stress and help maintain persons with dementia living longer in the community. We evaluated a program that combines caregiver training with a residential respite stay.Methods:In total, 90 dyads of persons with dementia and their caregivers, in groups of 3–6 dyads, volunteered to participate in a five-day residential training program and were followed-up 6 and 12 months later. The primary outcome was caregiver depression; secondary outcomes were measures of caregiver burden, unmet needs, person with dementia behavioral symptoms, and the quality of life and function.Results:Caregiver depression and burden were unchanged, despite decreasing function in persons with dementia. Caregivers’ unmet needs and behavioral symptoms in persons with dementia decreased significantly. Compared to a group of persons with dementia admitted for routine residential respite care, there was a marked reduction in permanent placement over 12 months.Conclusions:The Going to Stay at Home Program is a feasible and practicable model with benefits for caregivers and persons with dementia. It may lead to delay in institutionalization and may be applicable to other chronic conditions.

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Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan-European nursing research project

Journal of Advanced Nursing ◽

10.1046/j.1365-2648.1999.01215.x ◽

1999 ◽

Vol 30 (6) ◽

pp. 1396-1407 ◽

Cited By ~ 34

Author(s):

Elizabeth J. Hanson ◽

Josephine Tetley ◽

Amanda Clarke

Keyword(s):

Focus Group ◽

Older People ◽

Concept Analysis ◽

Respite Care ◽

Nursing Research ◽

Family Carers ◽

Frail Older People ◽

Research Project ◽

User Focus

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Residential Respite Care: The Caregiver's Last Resort

Journal of Gerontological Social Work ◽

10.1080/01634372.2011.593613 ◽

2011 ◽

Vol 54 (7) ◽

pp. 691-711 ◽

Cited By ~ 14

Author(s):

Lyn Phillipson ◽

Sandra C. Jones

Keyword(s):

Respite Care

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Respite Care-Volunteers as Providers

Journal of Psychosocial Nursing and Mental Health Services ◽

10.3928/0279-3695-19990101-15 ◽

1999 ◽

Vol 37 (1) ◽

pp. 30-35

Author(s):

Karen M Robinson ◽

Joann W Clemons

Keyword(s):

Respite Care

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Factors Associated with the Caregivers’ Desire to Institutionalize Persons with Dementia: A Cross-Sectional Study

Dementia and Geriatric Cognitive Disorders ◽

10.1159/000494023 ◽

2018 ◽

Vol 46 (5-6) ◽

pp. 298-309 ◽

Cited By ~ 6

Author(s):

Sophie Vandepitte ◽

Koen Putman ◽

Nele Van Den Noortgate ◽

Sofie Verhaeghe ◽

Eric Mormont ◽

...

Keyword(s):

Behavioral Problems ◽

The Elderly ◽

Sociodemographic Factors ◽

Cross Sectional Study ◽

Respite Care ◽

Community Dwelling ◽

Cross Sectional ◽

Factors Associated ◽

Care Services ◽

Modifiable Factors

Background/Aims: Dementia is one of the main reasons for institutionalization among the elderly. Few studies have explored factors associated with the caregivers’ (CG) desire to institutionalize (DTI) a person with dementia (PWD). The objective of this study is to identify modifiable and non-modifiable psychosocial and sociodemographic factors associated with a caregiver’s DTI. Methods: Cross-sectional data of 355 informal CG of community-dwelling PWD were analyzed. Several characteristics were identified in CG and PWD to be included in a multivariable regression model based on the purposeful selection method. Results: Positively modifiable associated factors were: higher CG burden, being affected by behavioral problems, and respite care use. Positively associated non-modifiable factors were: CG older age, being professionally active, and CG higher educational level. Cohabitation and change of professional situation were negatively associated. Conclusion: Although no causality can be assumed, several practical recommendations can be suggested. First of all, these results reconfirm the importance of multicomponent strategies, especially support aimed at decreasing burden and in learning coping strategies. Also, CG might benefit from information about support options, such as respite care services. Finally, special attention should be given to older and working CG. In the latter, flexible and adaptive working conditions might alleviate burden and therefore reduce the DTI of the PWD.

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