scholarly journals LATENT CLASS APPROACH TO DIFFERENTIATE REASONS CAREGIVERS SEEK RESPITE CARE SERVICE

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 784-785
Author(s):  
A. Georges ◽  
H. Uppal ◽  
W. Fung
Keyword(s):  
Latent Class ◽  
Care Service ◽  
Respite Care

scholarly journals DESKK Study - Development and testing of a dementia-specific respite care concept with a mobility and counselling programme: study protocol

BMJ Open ◽  
2019 ◽  
Vol 9 (6) ◽  
pp. e025932 ◽  
Author(s):  
Steffen Heinrich ◽  
Christoph Cavazzini ◽  
Bernhard Holle
Keyword(s):  
Care Service ◽  
Functional Decline ◽  
Evaluation Study ◽  
German Society ◽  
Respite Care ◽  
Ethical Review ◽  
Counselling Services ◽  
People With Dementia ◽  
Quasi Experimental ◽  
Mobility Training

IntroductionSpecific mobility programmes can delay functional decline in people with dementia (PwD). Family caregivers (FCs) can be relieved from care-related burden by counselling services. Respite care is a short-term inpatient care service (1–8 weeks of stay). Respite care centres (RCCs) can function as support structures for dementia care arrangements through caring-based mobility training of PwD and counselling sessions for their FCs. However, no systematic mobility or counselling programmes exist in this setting in Germany or the rest of the world. The aim of the development and testing of a dementia-specific respite care concept (DESKK) study is the development and testing of an evidence-based mobility and counselling programme for PwD and their FCs that is suitable for the respite care setting.Methods and analysisA pilot-based, quasi-experimental evaluation study will be conducted in a specialised RCC for PwD. To evaluate the acceptance and usability of the development and testing of a DESKK concept, qualitative data will be collected from the RCC staff and FCs via semistandardised interviews. Quantitative data will be collected using instruments to assess effect tendencies of the concept related to mobility (PwD) and burden (FCs). Furthermore, a mixed-methods triangulation approach will be conducted.Ethics and disseminationThe protocol, informed consent and accompanying material given to patients were submitted by the investigator to the Ethical Review Committee of the German Society of Nursing Science. The project was examined and finally approved on 31 January 2017 (Number: 16–27). Prior to obtaining written consent for study participation, information must be given to all of the study participants in verbal and written form. The results of the study will be presented at national and international conferences and published in peer-reviewed journals. After the concept is finalised, a practice-friendly manual will be developed in which implementation components are described for other RCCs.Trial registration numberNCT03578861

scholarly journals HIV service interruptions during the COVID-19 pandemic in China: the role of HIV service challenges and institutional response from healthcare professional's perspective

2021 ◽  
Author(s):  
Xueying Yang ◽  
Chengbo Zeng ◽  
Cheuk Chi Tam ◽  
Shan Qiao ◽  
Xiaoming Li ◽  
...  
Keyword(s):  
Latent Class ◽  
Multinomial Logistic Regression ◽  
Care Service ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
Hiv Care ◽  
Institutional Response ◽  
Service Interruptions ◽  
Service Interruption ◽  
Class 1

Background: The healthcare system in China was largely overwhelmed during the unprecedented pandemic of coronavirus disease (COVID-19). HIV-related services have been unavoidably interrupted and impacted. However, the nature and scope of HIV service interruptions due to COVID-19 has rarely been characterized in China and how HIV service challenges affect the service interruptions are also unclear. The current study aimed at characterize HIV service interruption levels and analyzed its associated factors related to service challenges and institutional response from HIV healthcare providers' viewpoint. Methods: A cross-sectional online survey was conducted among 1,029 HIV healthcare providers in Guangxi, China, from April to May 2020. Latent class analysis (LCA) was first used to identify HIV service interruption levels. Then hierarchical multinomial logistic regression was conducted to analyze the relationships of HIV care service challenges and institutional response with HIV service interruption levels. Simple slope analysis was employed to examine interaction effects between HIV service challenges and institutional response to COVID-19. Results: Four classes of HIV service interruption were identified using LCA, with 22.0% complete interruption (class 1), 15.4% moderate interruption (class 2), 21.9% minor interruption (class 3) and 40.7% almost no interruption (class 4). Using class 4 as a reference group, HIV care service challenges were positively associated with the probabilities of service interruptions (Class 1: AOR=1.23, 95%CI: 1.19~1.26; Class 2: AOR= 1.10, 95%CI: 1.08~1.13; Class 3: AOR= 1.10, 95%CI: 1.08~1.12). Institutional response to HIV healthcare delivery was negatively associated with the probabilities of being classified into Class 1 ("Complete interruption") (AOR=0.97, 95%CI: 0.93~1.00) and Class 3 ("minor interruption [Outreach service]") (AOR=0.96, 95%CI: 0.93~0.99) as compared to Class 4 ("almost no interruption"). Institutional response to HIV healthcare delivery moderated the association of HIV service challenges with complete interruption, but not with the moderate or minor interruption when comparing with no interruption group. Conclusions: A substantial HIV service interruptions occurs due to the COVID-19 pandemic, particularly services that require face-to-face interactions, such as VCT counselling, follow up and outreach services. HIV service challenges largely hinder the HIV service delivery. Institutional response to HIV healthcare delivery could marginally buffer the negative effect of service challenges on complete HIV service interruptions. To maintain continuity of core HIV services in face of a pandemic, build a resilient health care system with adequate preparedness is necessary.

A Qualitative Evaluation of an HIV/AIDS Respite Care Service in Victoria, Canada

2002 ◽  
Vol 25 (3) ◽  
pp. 321-344 ◽  
Author(s):  
Kelli I. Stajduhar ◽  
Elizabeth Lindsey ◽  
Liza McGuinness
Keyword(s):  
Care Service ◽  
Qualitative Evaluation ◽  
Respite Care ◽  
Hiv Aids

scholarly journals Family experiences with palliative care for children at home: a systematic literature review

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Anette Winger ◽  
Lisbeth Gravdal Kvarme ◽  
Borghild Løyland ◽  
Camilla Kristiansen ◽  
Sølvi Helseth ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Health Care Service ◽  
Respite Care ◽  
Specialist Health Care ◽  
Life Threatening ◽  
Care At Home ◽  
Sick Children ◽  
Families With Children ◽  
At Home

Abstract Background The main goal of pediatric palliative care (PPC) is to improve or maintain the best possible quality of life (QoL) for the child and their family. PPC can be provided in community health centres, within the specialist health care service and/or in the child’s home. Home is often the preferred place for families, and recommendations state that, whenever possible, the family home should be the centre of care for the child. The aim of this study is to systematically review the experiences and needs of families with children receiving palliative care at home. Methods We conducted a systematic review and searched the peer-reviewed databases CINAHL, Embase, PsycInfo and MEDLINE for articles published between January 2000 and October 2019. We included 23 studies emphasising the experience of family members when their child (0–18 years) received palliative care at home. We used a thematic analysis to identify relevant themes in the literature, and synthesised the findings from the different studies. Results The review represents the experiences of the families of almost 300 children with life-limiting (LL) and life-threatening (LT) conditions receiving palliative care at home. In general, the children’s mothers are interviewed, and seldom the sick children themselves or their siblings. Most families preferred staying at home since it made it easier to maintain a normal family life, was less stressful for the sick child, and meant that siblings could still attend school and be with friends. Families experienced a range of challenges due to the coordination of care, including a lack of support and adequately skilled staff with appropriate experience. Respite care was needed in order to cope with everyday life. Some studies were not specific concerning the place of care, and some relevant papers may have been omitted. Conclusions Families receiving PPC need organised, individualised support from a skilled PPC team. Respite care is necessary in order to manage a demanding home-care situation and parents need support for siblings. Privacy to be a family is a need, and many families need financial support. Future studies should focus on PPC at home in the perspectives of sick children and their siblings.

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