scholarly journals Lessons Learned from the Evolution of an Academic Community Partnership: Creating “Patient Voices”

Author(s):  
Meghan K. Chambers ◽  
Anna Ireland ◽  
Rona D’Aniello ◽  
Stephanie Lipnicki ◽  
Myron Glick ◽  
...  
2018 ◽  
Vol 2 (1) ◽  
pp. 20-26 ◽  
Author(s):  
Briana L. Rigau ◽  
Elizabeth A. Scully ◽  
Jodi K. Dooling-Litfin ◽  
Natalie J. Murphy ◽  
Beth M. McManus ◽  
...  

BackgroundElectronic data capture is essential to advancing family-centered coordinated care in early intervention (EI). The purpose of this paper is to report on EI service coordinator response to piloting an electronic parent-reported outcome (e-PRO) assessment as part of their routine workflow, including lessons learned that may inform future phases of e-PRO implementation.MethodsThis second pilot study involved families enrolled in a large EI program (n=1040 families) in concert with their implementation of a statewide quality improvement initiative for care plan development and outcomes reporting. A total of 22 EI service coordinators and supervisors were engaged in 3 phases: initial e-PRO intervention, peer-mentor enhancement, and standard recruitment protocol.ResultsImplementation of the e-PRO intervention and peer-mentoring enhancement yielded low enrollment rates over the first 6 months (n=17). A standard recruitment protocol has resulted in enrollment growth (n=83) towards the targeted enrollment rate (n=832).ConclusionsThis study reports on early insights for building and sustaining a productive academic-community partnership for e-PRO implementation to support family-centered coordinated care. Lessons learned from this academic-community partnership with respect to strategies for enhancing community significance, collaboration, return, and control are discussed as they inform further development of this intervention before scale-up.


2014 ◽  
Vol 29 (4) ◽  
pp. 379-385 ◽  
Author(s):  
Frances Lee-Lin ◽  
Lisa J. Domenico ◽  
Lauren A. Ogden ◽  
Venus Fromwiller ◽  
Nancy Magathan ◽  
...  

2016 ◽  
Vol 40 (2) ◽  
pp. 103-112
Author(s):  
Susana Helm ◽  
Deborah Kissinger ◽  
Deborah Goebert ◽  
Ruby Agoha ◽  
Riki Tanabe ◽  
...  

Author(s):  
M. Shaikh ◽  
C. Bean ◽  
L. Bergholz ◽  
M. Rojas ◽  
M. Ali ◽  
...  

AbstractThere is a pressing need to equip youth-serving community organizations to respond to the unique needs of trauma-exposed children. Early prevention measures can be an effective means of redirecting children to self-regulatory healing, while facilitating their transition toward strength-based thriving. Sport can offer a powerful opportunity to reach these children; however there remains little information on how to effectively develop, deliver, evaluate, and sustain trauma-sensitive sport programs in a community context. The purpose of this paper is to outline a case study of integrating sport-based trauma-sensitive practices with BGC Canada’s national Bounce Back League program. An interdisciplinary partnership of academic, community, and practice experts used a community-based participatory action research approach, paired with a knowledge translational approach, to guide the process of program development. Mixed methods (e.g., surveys, logbooks, interviews, focus groups, online communications) were used to generate ongoing insights of staff’s training experiences, successes and challenges of program implementation, and potential impact of program on club members. Several stages of program development are described, including: (a) collaboratively planning the program; (b) piloting the program to three clubs; (c) adapting the program using pilot insights; (d) expanding the adapted program to ten clubs; and (e) creating opportunities to maintain, sustain, and scale-out practices throughout grant duration and beyond. Lessons learned regarding the leadership team’s experiences in terms of developing, adapting, and integrating trauma-sensitive practices in this community context are shared.


2004 ◽  
Vol 15 (4) ◽  
pp. 589-602 ◽  
Author(s):  
Katherine Erwin ◽  
Daniel S. Blumenthal ◽  
Thomas Chapel ◽  
Liana Richardson ◽  
L. Vernon Allwood

Author(s):  
Vanessa Y. Hiratsuka ◽  
Susan Brown Trinidad ◽  
Evette J. Ludman ◽  
Jennifer L. Shaw ◽  
Wylie Burke ◽  
...  

Author(s):  
Magdalena Szaflarski ◽  
Lisa M. Vaughn ◽  
Camisha Chambers ◽  
Mamie Harris ◽  
Andrew Ruffner ◽  
...  

African Americans face the most severe burden of HIV among all racial and ethnic groups. Direct involvement of faith leaders and faith communities is increasingly suggested as a primary strategy to reduce HIV-related disparities, and Black churches are uniquely positioned to address HIV stigma, prevention, and care in African American communities. The authors describe an academic-community partnership to engage Black churches to address HIV in a predominantly African American, urban, southern Midwest location. The opportunities, process, and challenges in forming this academic community partnership with Black churches can be used to guide future efforts toward engaging faith institutions, academia, and other community partners in the fight against HIV.


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