The art of expressive objects supporting agency in palliative care

2020 ◽  
Vol 8 (1) ◽  
pp. 107-116 ◽  
Author(s):  
Riku Laakkonen

I have been developing a model for how to use animated objects when meeting a palliative care patient and I have noticed that during these animated moments in the hospice, performing objects have represented different sites of humanity. At their best, these moments have created a performance from the patient’s story that has become shared. Moments of animation in the hospice are meetings between me and a person who is in palliative care. I have facilitated our meeting and brought a suitcase full of everyday objects with me. A patient is given a story and then cast in their own story with objects they have chosen. Meetings with patients in palliative care made me think about patients moral agency. A moral agent is a being who consciously puts moral activities into practice. Expressive objects telling stories for a patient is one place where moral agency survives in the hospice setting and where a palliative care patient can act for a while as a member of a moral community. In this article, I share my model of expressive objects related to my practice.

1995 ◽  
Vol 10 (3) ◽  
pp. 224-232 ◽  
Author(s):  
Christopher S. Kovacs ◽  
Susan M. MacDonald ◽  
Constance L. Chik ◽  
Eduardo Bruera

Children ◽  
2021 ◽  
Vol 8 (10) ◽  
pp. 902
Author(s):  
Jennifer Placencia ◽  
Kevin Madden

Determining the optimal dosing regimen for pediatric patients is a challenge due to the lack of dosing guidelines and studies. In addition, many developmental pharmacology changes that occur throughout childhood that have profound impacts on the absorption, distribution, metabolism, and elimination of medications are commonly used in palliative care. Adding to that complexity, certain medications have different effects in the pediatric patient compared to the adult patient. Being aware of the pharmacokinetic changes, impact on neurodevelopment and unique medication factors that are present in pediatric patients helps clinicians treat the pediatric palliative care patient in the best and safest way possible.


2021 ◽  
pp. 431-441
Author(s):  
Denis Snow ◽  
Mary Ellen Lasala

Serious illness creates a need for financial and legal support for individuals and their families. Nonmedical issues are often as pressing on them as their medical concerns. Clinicians must have a basic understanding of meeting those needs of advance planning, income and family maintenance, access to insurance, and family preservation within the context of culturally appropriate care. Knowledge of community and faith-based resources to meet the nonmedical needs of the palliative care patient is an essential aspect of care. Since these are often unknown to patients and their families, the clinician must know how to guide patients through the morass of cultural and legal requirements for this purpose.


Author(s):  
Maria O. Edelen ◽  
Anthony Rodriguez ◽  
Wenjing Huang ◽  
Robert Gramling ◽  
Sangeeta C. Ahluwalia

2008 ◽  
Vol 22 (5) ◽  
pp. 671-672 ◽  
Author(s):  
NJ Pease ◽  
IF Finlay

2015 ◽  
Vol 5 (4) ◽  
pp. 46-52 ◽  
Author(s):  
Helen Mitchell ◽  
Simon Noble ◽  
Ilora Finlay ◽  
Annmarie Nelson

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