Human-Centered Design for a Women’s Health Screening Tool: Participant Experiences

2020 ◽  
Vol 113 (10) ◽  
pp. 469-474
Author(s):  
Bayla Ostrach
2019 ◽  
Vol 23 (11) ◽  
pp. 1446-1458 ◽  
Author(s):  
Kathleen A. Foley ◽  
Julie Shelton ◽  
Evan Richardson ◽  
Nikita Smart ◽  
Cindy Smart-McMillan ◽  
...  

2019 ◽  
Author(s):  
Bayla Ostrach

BACKGROUND Human-Centered Design (HCD) is an innovation or design process that emphasizes collective input from stakeholders. A growing body of literature examines the science of patient and community engagement in health research yet little qualitative research to date examines how community members recruited to collaborate on designing health practice variations and delivery of care perceive and experience such a process. OBJECTIVE Examine perceptions of a Human-Centered Design process as an engagement tool to inform delivery of care and practice innovation in women’s health screening. METHODS Primary qualitative data collected at a medical education center/network of clinics, and in the surrounding community. Qualitative study used opportunistic and purposive sampling recruiting participants from an earlier HCD process undertaken to redesign screening tools. Participants were purposively and sampled from among eligible participants who participated in the Human-Centered Design process to develop women’s health screening tools and who were community members and/or clinicians/clinical staff. All eligible participants who agreed to participate were interviewed using a semi-structured, open-ended guide. Interviews were audio-recorded, transcribed, hand-coded, and analyzed using modified Grounded Theory. RESULTS Community members and clinicians reported divergent views of the HCD process; both groups valued the opportunity to participate. Some found the process easy to engage; others found it confusing or even embarrassing. CONCLUSIONS Community members and clinicians valued being part of determining the best process for healthcare delivery and practice innovation or variation; concerns remained about access to and full participation in the process. Though a promising option and valuable process, the HCD process was not equally comfortable or accessible for all. Community engagement beyond the clinical team to developing practice variation is important but must be undertaken thoughtfully. CLINICALTRIAL Not applicable


2019 ◽  
Author(s):  
Bayla Ostrach

BACKGROUND Human-Centered Design (HCD) is a formative innovation or design process that emphasizes stakeholder input. A growing body of literature examines the formative science of patient and community engagement in health research yet little qualitative research to date examines how community members recruited to collaborate on designing health practice variations and delivery of care perceive and experience such a process. OBJECTIVE Examine perceptions of an HCD process as an engagement tool to inform delivery of care and practice innovation in women’s health screening. METHODS Data sources/study setting. Primary qualitative data collected at a medical education center/network of clinics, and in the surrounding community. Study Design. Qualitative study used opportunistic and purposive sampling recruiting participants from an earlier HCD process undertaken to redesign screening tools. Participants were purposively and sampled from among eligible participants who participated in the Human-Centered Design process to develop women’s health screening tools and who were community members and/or clinicians/clinical staff. There was no randomization, intervention, and no diagnostic or therapeutic procedures. Data collection/extraction methods. All eligible participants who agreed to participate were interviewed using a semi-structured, open-ended guide. Interviews were audio-recorded, transcribed, hand-coded, and analyzed using modified Grounded Theory. RESULTS Principal findings. Community members and clinicians reported divergent views of the HCD process; both groups valued the opportunity to participate. Some found the process easy to engage; others found it confusing or even embarrassing. CONCLUSIONS Conclusions. Community members and clinicians valued being part of determining the best process for healthcare delivery and practice innovation or variation; concerns remained about access to and full participation in the process. Though a promising option and valuable process, the HCD process was not equally comfortable or accessible for all. Community engagement beyond the clinical team to developing practice variation is important but must be undertaken thoughtfully. CLINICALTRIAL n/a


2014 ◽  
Vol 210 (1) ◽  
pp. 44.e1-44.e6 ◽  
Author(s):  
Anna Maria Abadir ◽  
Ariella Lang ◽  
Talia Klein ◽  
Haim Arie Abenhaim

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Bayla M. M. Ostrach

Abstract Background Providers face increasing demands to screen for various health issues. Family medicine, primary care, and obstetric providers are encouraged to screen women universally for intimate partner violence, which could be challenging without comprehensive screening tools. The screening expectations and demands motivated providers and staff in south-central Appalachia (U.S.) to engage community members in streamlining women’s health screening tools, and integrating intimate partner violence screening questions, through a Human-Centered Design (HCD) process. The objective of this article is to present participants’ experiences with and perceptions of the HCD process for developing screening tools for women’s health. Methods This was a qualitative, phenomenological study conducted with community members (n = 4) and providers and staff (n = 7) who participated in the HCD process. Sampling was purposive and opportunistic. An experienced qualitative researcher conducted open-ended, semi-structured interviews with participants. Interviews were transcribed and coded for thematic analysis. Results Community members reported that in the HCD sessions they wanted clinicians to understand the importance of timing and trust in health screening. They focused on the importance of taking time to build trust before asking about intimate partner violence; not over-focusing on body weight as this can preclude trust and disclosure of other issues; and understanding the role of historical oppression and racial discrimination in contributing to healthcare mistrust. Providers and staff reported that they recognized the importance of these concerns during the HCD process. Conclusions Community members provided critical feedback for designing appropriate tools for screening for women’s health. The findings suggest that co-designing screening tools for use in clinical settings can facilitate communication of core values. How, when, and how often screening questions are asked are as important as what is asked—especially as related to intimate partner violence and weight.


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