Assessment of multidisciplinary care of children with osteogenesis imperfecta at The Royal Manchester Children's Hospital

2019 ◽  
Author(s):  
Paula Galloway ◽  
Anna Nixon ◽  
Lauren Rayner ◽  
Nicola Panchbhaya ◽  
Helen Collins ◽  
...  
2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S137-S137
Author(s):  
Emily Helmold ◽  
Niknam Eshraghi

Abstract Introduction A burn center is defined by the American College of Surgeons as a program that facilitates the provision of specialized multidisciplinary care in a designated setting. The Children’s Hospital Association states that pediatric patients need age specific health care delivered by specialty trained clinicians in an environment designed just for kids. When these two different specialty areas within one organization cross paths, how does the organization determine all the factors that go into determining the standard of care? One burn center found itself at the heart of this question when asked to determine the best location and how to care for pediatric burn patients. Methods An email survey was sent to burn centers verified with the American Burn Association (ABA) to care for both adult and pediatric patients and located within their region or with a similar volume. The questions included: Results Thirteen burn centers responded. Nine of the thirteen were located within the western region, two in the mid-west, one each in the south and northeast regions. Eight burn centers were categorized as academic and the other five as teaching hospitals. Bed size ranged from 8–44 with an average of 18 beds. Eighty-five percent of the respondents stated they admitted most if not all pediatric burn patients to the burn unit with two of those centers being the only location within their hospital for pediatric patients. Over seventy-five percent provided 24/7 provider coverage. There was more variability in answers regarding rate of pediatrician consultation, code blue team response, and geographic proximity to a children’s hospital however pediatric consultation was obtained in the majority of cases. Conclusions The survey responses were helpful to communicate some degree of burn center community standard although more centers and increased specificity would have strengthened the argument for a burn center remaining the preferred location for all pediatric burn admissions. Applicability of Research to Practice Sharing of our experience and recommendation that the ABA establish a burn community standard, especially one that takes how to manage competing specialties into consideration, will be helpful to all burn centers who could face this same challenge.


2020 ◽  
pp. 105566562096190
Author(s):  
Maureen Andrews ◽  
Greg Allen ◽  
Allyson Alexander ◽  
Brooke French ◽  
Corbett Wilkinson ◽  
...  

Multidisciplinary care in the era of COVID mitigation presented a unique opportunity to evolve a multidisciplinary Telehealth experience at the Children’s Hospital Colorado. We describe our experience in developing unique programming to remain in compliance with an experience as recommended by the Parameters of Care while integrating information technology accessible via the electronic health record, multimedia adjuncts, and the integration of multiple institutional participants in creating a platform to offer care via Telehealth. Visit structure, planning, implementation, and advantages and disadvantages of the programming are discussed.


2008 ◽  
Vol 18 (2) ◽  
pp. 76-86 ◽  
Author(s):  
Lauren Hofmann ◽  
Joseph Bolton ◽  
Susan Ferry

Abstract At The Children's Hospital of Philadelphia (CHOP) we treat many children requiring tracheostomy tube placement. With potential for a tracheostomy tube to be in place for an extended period of time, these children may be at risk for long-term disruption to normal speech development. As such, speaking valves that restore more normal phonation are often key tools in the effort to restore speech and promote more typical language development in this population. However, successful use of speaking valves is frequently more challenging with infant and pediatric patients than with adult patients. The purpose of this article is to review background information related to speaking valves, the indications for one-way valve use, criteria for candidacy, and the benefits of using speaking valves in the pediatric population. This review will emphasize the importance of interdisciplinary collaboration from the perspectives of speech-language pathology and respiratory therapy. Along with the background information, we will present current practices and a case study to illustrate a safe and systematic approach to speaking valve implementation based upon our experiences.


Author(s):  
Patrick J. McGrath ◽  
Garry Johnson ◽  
John T. Goodman ◽  
John Schillinger ◽  
Jennifer Dunn ◽  
...  

2018 ◽  
Author(s):  
Anne E. Kazak ◽  
Wei-Ting Hwang ◽  
Fang Fang Chen ◽  
Martha A. Askins ◽  
Olivia Carlson ◽  
...  

Endoscopy ◽  
2006 ◽  
Vol 39 (S 1) ◽  
Author(s):  
A Pane ◽  
P De Angelis ◽  
F Torroni ◽  
T Caldaro ◽  
G Federici ◽  
...  

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