Health-Related Quality of Life Into Adulthood After Very Preterm Birth

PEDIATRICS ◽  
2016 ◽  
Vol 137 (4) ◽  
pp. e20153148-e20153148 ◽  
Author(s):  
N. Baumann ◽  
P. Bartmann ◽  
D. Wolke
2019 ◽  
Vol 24 (Supplement_2) ◽  
pp. e50-e50
Author(s):  
Elisabeth Bernard ◽  
Adrien Flahault ◽  
Camille Girard-Bock ◽  
Catherine Fallaha ◽  
Anik Cloutier ◽  
...  

2013 ◽  
Vol 102 (6) ◽  
pp. 607-612 ◽  
Author(s):  
Stéphane Beaudoin ◽  
Geneviève M Tremblay ◽  
Dan Croitoru ◽  
Andrea Benedetti ◽  
Jennifer S Landry

2010 ◽  
Vol 8 (1) ◽  
pp. 53 ◽  
Author(s):  
Bente J Vederhus ◽  
Trond Markestad ◽  
Geir E Eide ◽  
Marit Graue ◽  
Thomas Halvorsen

2019 ◽  
Vol 29 (2) ◽  
pp. 162-168 ◽  
Author(s):  
Kristina N. Heye ◽  
Walter Knirsch ◽  
Ianina Scheer ◽  
Ingrid Beck ◽  
Kristina Wetterling ◽  
...  

AbstractBackgroundLittle is known about health-related quality of life in young children undergoing staged palliation for single-ventricle CHD. The aim of this study was to assess the impact of CHD on daily life in pre-schoolers with single-ventricle CHD and to identify determinants of health-related quality of life.MethodProspective two-centre cohort study assessing health-related quality of life using the Preschool Paediatric Cardiac Quality of Life Inventory in 46 children at a mean age of 38 months and 3 weeks. Children with genetic anomalies were excluded. Scores were compared with reference data of children with biventricular CHD. Multiple linear regression analysis was used to identify determinants of health-related quality of life.ResultsHealth-related quality of life in pre-schoolers with single-ventricle CHD was comparable to children with biventricular CHD. Preterm birth and perioperative variables were significant predictors of low health-related quality of life. Notably, pre-Fontan brain MRI findings and neurodevelopmental status were not associated with health-related quality of life. Overall, perioperative variables explained 24% of the variability of the total health-related quality of life score.InterpretationDespite substantial health-related burden, pre-schoolers with single-ventricle CHD showed good health-related quality of life. Less-modifiable treatment-related risk factors and preterm birth had the highest impact on health-related quality of life. Long-term follow-up assessment of self-reported health-related quality of life is needed to identify patients with poorer health-related quality of life and to initiate supportive care.


2007 ◽  
Vol 83 ◽  
pp. S171
Author(s):  
S.R. Dalziel ◽  
V.K. Lim ◽  
A. Lambert ◽  
D. McCarthy ◽  
V. Parag ◽  
...  

PeerJ ◽  
2015 ◽  
Vol 3 ◽  
pp. e738 ◽  
Author(s):  
Bente Johanne Vederhus ◽  
Geir Egil Eide ◽  
Gerd Karin Natvig ◽  
Trond Markestad ◽  
Marit Graue ◽  
...  

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