scholarly journals Satisfaction degree comparison of patients treated at Inflammatory Bowel Disease Unit (IBDU) of the Hospital Universitario 12 de Octubre between previous face-to-face care and telephone care during the COVID-19 pandemic

2021 ◽  
Author(s):  
Pablo Vázquez García ◽  
Flor María Fernández-Gordón Sánchez ◽  
María Algara San Nicolás ◽  
Carmen Yela San Bernardino ◽  
Begoña Casis Herce ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Face To Face ◽  
Satisfaction Degree ◽  
Inflammatory Bowel ◽  
Disease Unit

scholarly journals P136 Management of patients with Inflammatory Bowel Disease and their outcome during the first wave of Covid-19 pandemics

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S223-S224
Author(s):  
A Viola ◽  
F Giambò ◽  
M F Chiappetta ◽  
G Costantino ◽  
S Pallio ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Secondary Outcome ◽  
Reference Period ◽  
Disease Flare ◽  
Face To Face ◽  
Risk Of Disease ◽  
Inflammatory Bowel ◽  
Group 2 ◽  
The Impact

Abstract Background The restrictions adopted in Italy during the phase I COVID-19 pandemics with a nationwide lockdown period, represented a challenge in the management of Patients with Inflammatory Bowel Disease (IBD) patients. The aim of the present study was to assess if, and how, a limited course of telemedicine did influence the clinical outcome in patients with Crohn’s disease (CD) and Ulcerative Colitis (UC). Methods IBD patients followed before March 8th, 2020 were included and divided into 3 groups (Fig.1): group 1, patients on endovenous biologics (EV); group 2, patients on biologics administered subcutaneously (SC); and group 3, patients on conventional treatments (CT) at the start of lockdown. The primary outcome was to assess the occurrence of disease flare in the three groups since only the EV group received face-to-face visits during lockdown. As secondary outcome we assessed the number of control endoscopies performed and the start of new biologic therapies, compared with a reference period in 2019. Results A total of 689 patients (CD: 369, UC 320) were included in the study (247 IV, 217 SC and 225 CT, respectively). Telemedicine was more frequently adopted in SC and CS, (p<0.001) both. Treatment delays or transitory stops were more frequent in EV (p<0.001), whereas there was a significantly greater need to change therapy (p= 0.038) and need for steroids (p = 0.008) in the SC group compared with EV (Tab.1). Concerning endoscopies, compared with the reference period in 2019 only 25% of scheduled endoscopies were performed. The only risk factor for disease flare during or shortly after lockdown was belonging to the patient groups subjected to telemedicine (SC and CT groups) (p < 0.001). Conclusion Patients followed with a face-to-face approach instead of telemedicine, had a lower risk of disease flare during lockdown period. The impact of the important reduction of endoscopic assessments still needs to be assessed.

scholarly journals P809 Quality of care through the eyes of the patients in a Spanish inflammatory bowel disease Unit

2019 ◽  
Vol 13 (Supplement_1) ◽  
pp. S526-S526
Author(s):  
M J Casanova ◽  
M Chaparro ◽  
C García-Cotarelo ◽  
J P Gisbert
Keyword(s):  
Inflammatory Bowel Disease ◽  
Quality Of Care ◽  
Bowel Disease ◽  
Inflammatory Bowel ◽  
Disease Unit

scholarly journals N09 Pain management in inflammatory bowel disease: feasibility of an online therapist-supported CBT-self-management intervention

2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S661-S661
Author(s):  
L Sweeney ◽  
R Moss-Morris ◽  
W Czuber-Dochan ◽  
C Norton
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Disease ◽  
Chronic Pain ◽  
Disease Activity ◽  
Bowel Disease ◽  
Brief Pain Inventory ◽  
Pain Interference ◽  
Face To Face ◽  
Inflammatory Bowel

Abstract Background Chronic pain is a poorly managed symptom of inflammatory bowel disease (IBD). Cognitive behavioural therapy (CBT) has an evidence-base in functional gastrointestinal conditions and chronic pain. We aimed to test the feasibility and acceptability of a 9-week online facilitator-supported CBT intervention, tailored for people with chronic IBD-related pain. Methods A single arm pre-post design with nested qualitative interviews was used with 20 individuals with IBD and chronic pain. Participants were recruited online through an IBD charity and had consented to research in a previous survey or responded to an online charity advert. Individuals who met the inclusion criteria e.g. reported a pain-interference score of ≥4/10 (Brief Pain Inventory) and had no indicators of acute causes of pain, were invited to take part. Faecal calprotectin was collected. Outcomes included recruitment and retention rates, pain interference and severity (Brief Pain Inventory), quality of life, psychosocial measures and self-reported disease activity (IBD-Control). Follow-up face to face or telephone interviews were conducted following the intervention to obtain feedback on sessions and tasks, facilitator support and areas for improvement. Results Of 145 survey respondents contacted, 55 (37.9%) responded. Two additional individuals were recruited from the study advertisement. 20/57 (35.1%) met screening and eligibility criteria. Twenty consented to the study and 60% of those returning a stool sample were in clinical remission (<250ug/g). One individual withdrew after Session 1, 17 (85%) engaged with intervention sessions and 11 (55%) completed at least 5/9 sessions. 16 (80%) of recruited participants completed the post-intervention questionnaire at week 9. Mean score for overall acceptability was 43.4 (0–70). No changes were observed for pain outcomes, but quality of life and pain self-efficacy increased following the intervention. Self-reported disease activity, depression, anxiety, pain catastrophising and avoidance resting behaviour decreased. Qualitative feedback demonstrated the value of particular elements of the intervention, such as thought monitoring and facilitator support. Some participants felt content was oversimplified and that further information was needed on practical management strategies, including diet. Conclusion Online CBT for chronic IBD-related pain appears feasible and acceptable. The results demonstrate positive effects for improving quality of life and reducing psychological distress, however online and face to face recruitment methods are recommended. To establish efficacy for reducing pain and improving quality of life, larger randomised controlled trials are required.

What is the patient's and multidisciplinary team's perspective on telephone clinics?

2021 ◽  
Vol 27 (1) ◽  
pp. 26-31
Author(s):  
Sonia Bouri ◽  
Jean-Frédéric LeBlanc ◽  
Ravi Misra ◽  
Nikolaos Kamperidis ◽  
Gabriela Poufou ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Patient Satisfaction ◽  
Physical Examination ◽  
Bowel Disease ◽  
High Patient Satisfaction ◽  
Face To Face ◽  
Inflammatory Bowel ◽  
Remote Services ◽  
Remote Care

Background/Aims During the COVID-19 pandemic, inflammatory bowel disease clinics were converted to telephone clinics at St. Mark's Hospital in Harrow. This study assessed the response of patients and clinicians to remote telemedicine services, with the view of establishing whether there was scope for increasing the role of remote services in the inflammatory bowel disease clinics. Methods Clinicians administered a questionnaire to patients at the end of their appointments regarding their opinions on the telephone clinic format. Eleven questions used a 5-point Likert scale while a further three questions asked the patient for their comments on future clinics. Clinicians provided information about the patients' condition and management, as well as their own comments. Results Overall satisfaction with telephone clinics was found to be high among patients and clinicans, with many feeling that telephone clinics were more convenient. In total, 94.3% of patients said they would prefer either all telephone or a mix of phone and face-to-face clinics in the future. However, some patients felt that it was more complicated to have blood or stool tests done and roughly a quarter of patients were concerned that something could be missed without a physical examination. Conclusions High patient satisfaction can be achieved by delivering a mix of telephone, video and face-to-face clinics. In certain clinical situations, face-to-face clinics would be appropriate, such as patients with active diseases and first appointments. The pandemic is an opportunity respond to patients' preferences by increasing the range of remote care options.

S1151 Lymphoprolipherative Disorders Diagnosed in An Inflammatory Bowel Disease Unit

2009 ◽  
Vol 136 (5) ◽  
pp. A-201
Author(s):  
Manuel Van Domselaar ◽  
Antonio López-San Román ◽  
Elena Garrido
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Inflammatory Bowel ◽  
Disease Unit

scholarly journals P503 Inflammatory bowel disease video-consulting: a satisfaction survey during the second wave of Covid-19 pandemics

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S486-S486
Author(s):  
A Todeschini
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Clinical Issue ◽  
Face To Face ◽  
Degree Of Satisfaction ◽  
Inflammatory Bowel ◽  
High Degree ◽  
Second Wave ◽  
Substantial Change

Abstract Background During the SARS-CoV-2 pandemic there was a substantial change in providing medical care. National and international statements recommended avoiding face-to-face visit for treatment of patients especially for chronic disease. Also lockdown and social distancing cause a lot of concern among patients, which prefer avoid hospital facilities due to fear of contracting COVID-19. For these reason there was a reorganization of inflammatory bowel disease follow-up visit shifting from traditional visit to telemedicine whereas it’ was possible. Our survey aimed to evaluated satisfaction about follow up video-consulting in IBD patients. Methods From September to December 2020, 75 video-consults were made as follow up in patients with IBD. Video-consult wasn’t performed as first visit nor in patients with new clinical issue. Every consult lasted about 15 minutes. At the end of the visit, a questionnaire of satisfaction was e-mailed to each patient. This questionnaire evaluated several items: satisfaction, difficulty of connection, opportunity to repeat the video-consult even in post-Covid-19 era, safety compared to face-to-face visit, level of concern about Covid-19 disease and fear of in-hospital transmission Results 70% of the patients indicated an high video-consult rating and in most of cases (88%) there were no connection problems. The majority (88%) would like to repeat the tele-visit even in the post-Covid 19 era (77%). Video-consult seemed to be perceived as safer than face-to-face visit even if, in case of urgent consultation, it was preferred a traditional visit. Moreover, Covid-19 infection and fear of in-hospital trasmission was a great concern in the 73% and 58% of the patients respectively. Conclusion In our survey, outpatients reported a very high degree of satisfaction with video consultations. It was an easy and safe tool that may become an integral part of clinical practice in the future.

Impact of the incorporation of a nurse in an inflammatory bowel disease unit

2016 ◽  
Vol 39 (5) ◽  
pp. 318-323
Author(s):  
Leticia Amo ◽  
Yago González-Lama ◽  
Cristina Suárez ◽  
Isabel Blázquez ◽  
Virginia Matallana ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Inflammatory Bowel ◽  
Disease Unit

scholarly journals Patient perspectives on digital patient reported outcomes in routine care of inflammatory bowel disease

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Amalie Søgaard Nielsen ◽  
Charlotte W. Appel ◽  
Birgit Furstrand Larsen ◽  
Lars Kayser ◽  
Lisa Hanna
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Digital Literacy ◽  
Patient Reported Outcomes ◽  
Routine Care ◽  
Ehealth Literacy ◽  
Face To Face ◽  
Patient Reported ◽  
Inflammatory Bowel ◽  
High Degree

Abstract Background Digital patient reported outcomes are used increasingly in daily care and treatment of inflammatory bowel disease. Their purpose includes increased focus on patient wellbeing, reduction in avoidable follow-up consultations and increased patient self-management. However, implementation issues occur and studies indicate patients may have concerns, particularly regarding having fewer face-to-face consultations. This study aims to explore patients’ perspectives of use and non-use of digital patient reported outcomes and to understand the mechanisms underpinning patient reluctance to engage with this health technology. Results Sixteen patients with inflammatory bowel disease at a regional hospital in Denmark were interviewed about their experiences of, and perspectives on, digital patient reported outcomes. A certain level of eHealth literacy was found to be a fundamental condition for use, while other factors were barriers or facilitators for use of digital PROs. Patients’ main concerns were about potential consequences for their care and relationship with the clinic. Most patients in stable remission were satisfied with the hospital being a “life-line” if their symptoms worsened, and perceived digital patient reported outcomes to be an efficient tool to establish that “life-line”. Patients with severe symptoms and a high degree of emotional distress related to their disease valued the potential for digital patient reported outcomes to increase their clinicians’ focus on mental health and extra-intestinal symptoms. Conclusion This study found that if patients had sufficient digital literacy, they perceived digital patient reported outcomes to be a useful replacement for face-to-face consultations. However, they were concerned about digital patient reported outcomes’ effect on the patient–clinician relationship and its ability to detect worsening of symptoms. These concerns may be mitigated by good patient–clinician relationships, and the option for patients to maintain direct telephone contact with their gastroenterology specialist.

Sign in / Sign up

Export Citation Format

Share Document