scholarly journals Functional Outcome in Late Adolescence/ Early Adulthood of Patients With Autism Spectrum Disorder and Its Relationships With Parental Burnout and Depression: Multi-center, Cross-sectional Study

Author(s):  
Meryem Ozlem KUTUK ◽  
Ali Evren TUFAN ◽  
Fethiye KILICASLAN ◽  
Pinar VURAL ◽  
Cem GOKCEN ◽  
...  

Abstract The aim of this study is to determine functioning of adults with Autism Spectrum Disorders (ASDs) diagnosed in childhood and also depression and burnout levels among their parents. 261 adults with ASDs and their parents were recruited for the study. Both parents completed the Beck Depression and Maslach Burnout Inventories and reported the functioning of their adult offspring with ASDs. Only 5.4 % of our sample reported “good” or “very good” outcome. The most common psychiatric comorbidities were intellectual disabilities and attention-deficit/ hyperactivity disorder. Maternal burnout and depression scores were significantly elevated compared to those of fathers. There is an undeniable urgent need for more research to identify the needs of adults and families suffering from ASD.

2020 ◽  
Vol 7 ◽  
pp. 233339362090758
Author(s):  
David B. Nicholas ◽  
Radha MacCulloch ◽  
Wendy Roberts ◽  
Lonnie Zwaigenbaum ◽  
Patricia McKeever

This study explored the experiences of mothers caring for an individual with autism spectrum disorder (ASD) ranging from 5 to 25 years of age, and examined pervasive tensions in caregiving. Guided by ethnographic methods, a retrospective cross-sectional study was conducted. Interviews with 85 mothers were analyzed inductively. Prevalent tensions in maternal caregiving were identified: (a) difficulties obtaining, yet resistance to, an ASD diagnosis; (b) identified giftedness of the child versus notions of deficit imposed by others; (c) disability-related behaviors erroneously interpreted as ‘poor parenting’; (d) contradictory considerations in diagnosis disclosure; (e) the invisibility yet pervasiveness of ASD; (f) extensive need for, yet the lack of, accessible services; (g) ASD-related care demands versus other pressing responsibilities; (h) arguments for inclusive versus exclusive services; and (i) aims of nurturing independence versus managing safety risk. Tensions were heightened by insufficient supports relative to need. Implications and recommendations for practice and policy are offered.


2019 ◽  
Vol 60 ◽  
pp. 59-66 ◽  
Author(s):  
Ewelina Rydzewska ◽  
Laura A. Hughes-McCormack ◽  
Christopher Gillberg ◽  
Angela Henderson ◽  
Cecilia MacIntyre ◽  
...  

BMJ Open ◽  
2014 ◽  
Vol 4 (6) ◽  
pp. e004786-e004786 ◽  
Author(s):  
L. Burgoyne ◽  
L. Dowling ◽  
A. Fitzgerald ◽  
M. Connolly ◽  
J. P Browne ◽  
...  

Author(s):  
Usman Baig ◽  
Syed Muslim Mehdi ◽  
Hafiz Muhammad Imtiaz Afzal ◽  
Admin

Abstract Objective: To assess the frequency of insomnia and other sleep disturbances among children with autism spectrum disorder. Methods: Sleep disturbance scale for children was used in this descriptive cross-sectional study and the parents were asked to fill out the questionnaire along with the consent form. Initial sample size was 97, out of which 93 were included in study. The research was approved by institutional ethics committee of Sharif medical and Dental College. Results: This study showed that 37 (39.8%) children had at least one type of the sleeping disorder. Most common type were insomnia 24 (25.8%) and sleep-awake transition disorders 15 (16.1%), less common were disorders of arousal 10 (10.8%), disorders of excessive somnolence 7 (7.5%), sleep hyperhidrosis 5 (5.4%) and sleep breathing disorders 4 (4.3%). Conclusion: Nearly forty percent of children with autism spectrum disorder suffer from sleep disorders, among which the most frequent was insomnia. Keywords: Autism spectrum disorder, insomnia, sleep disorders, children


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