scholarly journals The Administrative Data Research Network’s National Citizen’s Panel – A step towards bridging public concerns about research using administrative data.

2017 ◽  
Vol 1 (1) ◽  
Author(s):  
Judith Knight
Keyword(s):  
Administrative Data ◽  
Social Research ◽  
Health Care Systems ◽  
Research Network ◽  
Public Confidence ◽  
Care Systems ◽  
Set Up ◽  
The Uk ◽  
Public Views ◽  
Public Concerns

ABSTRACT BackgroundThe content of administrative records are both confidential and personal, therefore the use of administrative data for research purposes is rightly and naturally of concern to us all. It is highly likely that unless public concerns can be understood, met and public confidence and support gained, that the role of research using administrative data cannot develop further. AimsAs a member of the general public you may well ask, how will this research help me? The Network enables researchers across the UK to gain access to linked de-identified administrative data to benefit society i.e. research that could change health care systems, improve the distribution of funds to needier areas or has the potential to reduce crime. MethodTo extend the Network’s reach, the Administrative Data Research Network (ADRN) in addition to a breadth of communications and public engagement activities across the UK is developing a UK National Citizens Panel (CP). The panel will provide a representation of public views on potential changes to Network policy, procedures, governance and service provision issues. The CP will also assist with testing our public facing communications, e.g. events, website and materials. ResultsThis paper would like to present the ADRN's case and scope for a Citizens Panel, the model adopted and its progress to date. Funded by the Economic & Social Research Council, the ADRN, set up as part of the UK Government’s Big Data initiative, is a UK-wide partnership between universities, government bodies, national statistics authorities and the wider research community.www.adrn.ac.uk.

scholarly journals The importance of gaining the public’s confidence to use administrative data for public benefit in social science research

2017 ◽  
Vol 1 (1) ◽  
Author(s):  
Ilse Verwulgen ◽  
Judith Knight
Keyword(s):  
Administrative Data ◽  
Public Engagement ◽  
Research Council ◽  
Social Research ◽  
Social Science Research ◽  
Science Research ◽  
Public Consultation ◽  
Research Network ◽  
Public Confidence ◽  
The Uk

ABSTRACTBackgroundThe Administrative Data Research Network (ADRN) is a UK-wide initiative, funded by the Economic and Social Research Council (ESRC). The Network facilitates safe access to linked de-identified administrative data for research which is aimed at providing a benefit to our society. Administrative data research can provide wide ranging and longitudinal evidence for policy makers which therefore has the potential to improve our society. MethodRecognising the importance of public confidence and trust to the success of the ADRN, the ESRC commissioned a public consultation to gauge understanding of social research and the reactions to the use of administrative data in research. A comprehensive UK-wide communications and public engagement strategy has been developed. From this a number of initiatives been introduced over the past two years to address public concerns and these have been reviewed, revised and extended as the Network has evolved. Now to extend the Network’s reach, the Administrative Data Research Network is developing a UK National Citizens Panel (CP). The panel will provide a representation of public views on potential changes to Network policy, procedures, governance and service provision issues. The CP will also assist with testing our public facing communications such as events, website and promotional materials. ConclusionThis paper presents the previous and current public engagement initiatives that the Administrative Data Research Network has incorporated within its policies and service that enables better knowledge for a better society  Funded by the Economic & Social Research Council, the ADRN, set up as part of the UK Government’s Big Data initiative, is a UK-wide partnership between universities, government bodies, national statistics authorities and the wider research community. www.adrn.ac.uk.

scholarly journals The ADRN and the public’s voice: making administrative data available for research while gaining public trust

2017 ◽  
Vol 1 (1) ◽  
Author(s):  
Ilse Verwulgen
Keyword(s):  
Administrative Data ◽  
Research Council ◽  
Social Research ◽  
Evidence Base ◽  
Public Consultation ◽  
Research Network ◽  
Economic Research ◽  
Scientific Integrity ◽  
The Public ◽  
The Uk

ABSTRACT BackgroundThis paper presents the way the Administrative Data Research Network (ADRN) has incorporated the results of public consultation into the core of its operations and policies. Administrative data are a rich source of information, but underused in social and economic research. In the past it has been very difficult to gain access to these datasets. The ADRN is a UK-wide initiative, funded by the Economic and Social Research Council (ESRC) in 2013. The Network facilitates secure research access to linked, de-identified administrative data to enable real-world analysis that can benefit society. Administrative data research can provide a solid evidence base for policy makers to evaluate the results of active policies or uncover new ways to tackle social problems. ApproachUsing government data for research is still a sensitive topic for the public, and rightly so. Amidst growing concerns about privacy and data security, the use of administrative data is a potentially controversial move. At the beginning of the project, the ESRC commissioned a nation-wide public consultation to gauge understanding of social research and reactions to the use of administrative data in research. ResultsThe ADRN used the results of this consultation to incorporate mechanisms for lay participation as well as accountability towards the public into its governance, and makes a case for engaging the public without compromising the scientific integrity of the research it supports. Funded by the Economic & Social Research Council, the Administrative Data Research Network, set up as part of the UK Government’s Big Data initiative, is a UK-wide partnership between universities, government bodies, national statistics authorities and the wider research community. www.adrn.ac.uk

The Future of Health Care in South Korea and the UK

2006 ◽  
Vol 5 (3) ◽  
pp. 375-385 ◽  
Author(s):  
Bob Matthews ◽  
Yoonsoon Jung
Keyword(s):  
Health Care ◽  
South Korea ◽  
Care Delivery ◽  
Health Care Systems ◽  
Public Provision ◽  
Capitalist System ◽  
Private Provision ◽  
Care Systems ◽  
Health Care Delivery Systems ◽  
The Uk

This paper discusses and compares the origin and development of the health care systems of South Korea and the UK from the end of WW2 and endeavours to compare outcomes. The paper emphasises the importance of war as a stimulus to the development of national health services in both countries and argues that there is convergence between the UK's nationalised NHS and South Korea's US-modelled capitalist system. Overall, we conclude that there is a possibility not only that the financing and nature of the Korean and UK health care delivery systems may show convergence, but it is not impossible that they will ‘change places’ with the UK system dominated by private provision and South Korea's by public provision.

scholarly journals Patient-Reported Outcomes Collected as Part of the Medicare Annual Wellness Visit in the Health Care Systems Research Network

2016 ◽  
Vol 3 (3) ◽  
pp. 168 ◽  
Author(s):  
Heather Tabano ◽  
Thomas Gill ◽  
Kathryn Anzuoni ◽  
Heather Allore ◽  
Ann Gruber-Baldini ◽  
...  
Keyword(s):  
Health Care ◽  
Patient Reported Outcomes ◽  
Health Care Systems ◽  
Research Network ◽  
Systems Research ◽  
Patient Reported ◽  
Care Systems

scholarly journals An Examination of Mentoring and Training in the Health Care Systems Research Network

2016 ◽  
Vol 3 (3) ◽  
pp. 217
Author(s):  
Sharon L Larson ◽  
Marc Williams ◽  
Ella Thompson ◽  
Amber Eruchalu ◽  
Lela McFarland
Keyword(s):  
Health Care ◽  
Health Care Systems ◽  
Research Network ◽  
Systems Research ◽  
Care Systems ◽  
And Training

scholarly journals Sharing Experiences and Expertise: The Health Care Systems Research Network Workshop on Patient Engagement in Research

2016 ◽  
Vol 3 (3) ◽  
pp. 159-166 ◽  
Author(s):  
Sarah Madrid ◽  
Leah Tuzzio ◽  
Cheryl D Stults ◽  
Leslie A Wright ◽  
Gina Napolitano ◽  
...  
Keyword(s):  
Health Care ◽  
Patient Engagement ◽  
Health Care Systems ◽  
Research Network ◽  
Systems Research ◽  
Care Systems ◽  
Patient Engagement In Research

Organizing a diabetes service

2011 ◽  
pp. 2005-2011
Author(s):  
Stephen C. L. Gough
Keyword(s):  
Health Care ◽  
Health Care Systems ◽  
Cost Effective ◽  
Health Care Need ◽  
Delivery Of Care ◽  
Strategic Approach ◽  
Effective Manner ◽  
Care Systems ◽  
The Individual ◽  
The Uk

The increasing worldwide incidence and prevalence of diabetes is placing substantial pressures on health care systems and economies. As a consequence individuals involved in the care of people with diabetes are looking at services currently being provided and examining ways in which care can be organized in the most cost-effective manner. Whilst the degree to which diabetes care is delivered differs from country to country, similar fundamental questions are being asked by those involved in the delivery of care, including: What are we currently providing? What do we need to provide? What are we able to provide? Although the answers to these questions are quite different not just between countries but often within specific localities within a country, the ultimate aim is the same: to provide the best possible care to as many people with diabetes as possible. The global diversity of diabetes health care need is enormous and while the solutions will be equally diverse, the approach to the development of a diabetes service will, for many organizations, be similar. The main focus of this chapter is based upon the model or the strategic approach developed in the UK, but many of the individual component parts are present in most health care settings.

scholarly journals Recommendations for Meeting the Pediatric Patient's Need for a Clinical Pharmacist: A Joint Opinion of the Pediatrics Practice and Research Network of the American College of Clinical Pharmacy and the Pediatric Pharmacy Advocacy Group

2012 ◽  
Vol 17 (3) ◽  
pp. 281-291 ◽  
Author(s):  
Varsha Bhatt-Mehta ◽  
Marcia L. Buck ◽  
Allison M. Chung ◽  
Elizabeth Anne Farrington ◽  
Tracy M. Hagemann ◽  
...  
Keyword(s):  
Clinical Pharmacy ◽  
Health Care Systems ◽  
Pharmacy Education ◽  
Direct Care ◽  
Research Network ◽  
Pediatric Care ◽  
Care Needs ◽  
Clinical Pharmacists ◽  
Care Systems ◽  
Research Initiatives

Children warrant access to care from clinical pharmacists trained in pediatrics. The American College of Clinical Pharmacy Pediatrics Practice and Research Network (ACCP Pediatrics PRN) released an opinion paper in 2005 with recommendations for improving the quality and quantity of pediatric pharmacy education in colleges of pharmacy, residency programs, and fellowships. While progress has been made in increasing the availability of pediatric residencies, there is still much to be done to meet the direct care needs of pediatric patients. The purpose of this Joint Opinion paper is to outline strategies and recommendations for expanding the quality and capacity of pediatric clinical pharmacy practitioners by 1) elevating the minimum expectations for pharmacists entering practice to provide pediatric care; 2) standardizing pediatric pharmacy education; 3) expanding the current number of pediatric clinical pharmacists; and 4) creating an infrastructure for development of pediatric clinical pharmacists and clinical scientists. These recommendations may be used to provide both a conceptual framework and action items for schools of pharmacy, health care systems, and policymakers to work together to increase the quality and quantity of pediatric training, practice, or research initiatives.

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