scholarly journals A Qualitative Study of a Family Carer Training Programme for Carers of People Living with Advanced Dementia

2021 ◽  
2019 ◽  
Vol 41 (4) ◽  
pp. 950-962 ◽  
Author(s):  
Domenica Disalvo ◽  
Tim Luckett ◽  
Alexandra Bennett ◽  
Patricia Davidson ◽  
Meera Agar

2021 ◽  
Author(s):  
Clémence Brun ◽  
Alexis Akinyemi ◽  
Laurène Houtin ◽  
Claire Mizzi ◽  
Thierry Cardoso ◽  
...  

Objectives: Providing quality care requires compassion, and encouraging caregivers to develop a patient-centred care relationship could be beneficial for both patients and caregivers. Such a goal can be achieved through mindfulness-based programmes, which can improve caregivers’ compassion and self-compassion. They are particularly relevant for caregivers, as they have a high risk of experiencing work-related burnout due to the high level of involvement required in their work. We hypothesised that a mindfulness training programme specifically focused on situations that are relevant for caregivers could improve patient–caregiver relationships and the care provided by the latter. Methods: We conducted a qualitative study with 10 interviews designed to explore the perceived psychological consequences of such training programmes amongst caregivers who experienced a mindfulness training programme specifically elaborated for the medical staff at APHP Sorbonne University (i.e., the Mindfulness Based (MB) CARE programme). Results: Content analysis results showed that the training had an overall positive impact on the caregivers’ ability to feel compassion toward their patients and themselves. The caregivers were more attentive to their patients and their needs, without being able to articulate how well they were paying attention to them. The programme also helped them develop kindness towards themselves and their patients. The participants were better able to accept more sympathetically the difficult experiences they might encounter in the workplace or those reported by their patients. Conclusions: We conclude that professional mindfulness training programmes could be operational levers for institutions aiming at fostering a more compassionate caregiver–patient relationship, which in turn, can improve the efficiency of care provision.


2018 ◽  
Vol 17 (1) ◽  
pp. 79-90 ◽  
Author(s):  
Ian Cowell ◽  
Peter O'Sullivan ◽  
Kieran O'Sullivan ◽  
Ross Poyton ◽  
Alison McGregor ◽  
...  

2017 ◽  
Vol 16 (1) ◽  
Author(s):  
Bannin De Witt Jansen ◽  
Kevin Brazil ◽  
Peter Passmore ◽  
Hilary Buchanan ◽  
Doreen Maxwell ◽  
...  

2015 ◽  
Vol 16 (1) ◽  
Author(s):  
Pauline SC Kouwenhoven ◽  
Natasja JH Raijmakers ◽  
Johannes JM van Delden ◽  
Judith AC Rietjens ◽  
Donald G van Tol ◽  
...  

MedEdPublish ◽  
2020 ◽  
Vol 9 (1) ◽  
Author(s):  
Nadia Fisher-Plum ◽  
Catherine Woods ◽  
Johnny Lyon-Maris ◽  
Sally Curtis ◽  
Geraldine Leydon ◽  
...  

2020 ◽  
Vol 28 (4) ◽  
pp. 337-348
Author(s):  
Louise Ritchie ◽  
Anna Jack-Waugh ◽  
Elsa Sanatombi Devi ◽  
Binil V ◽  
Anice George ◽  
...  

PurposeMany individual and family hardships are associated with poorly understood palliative care needs arising from advanced dementia within India. The purpose of this paper is to explore the experiences of people in India affected by advanced dementia and to shape educational approaches for practitioners and the local community.Design/methodology/approachThree focus groups with family carers of people (n = 27) with advanced dementia were undertaken with local communities in South India. One focus group was carried out in English and two in the local language (Kannada) and translated to English.FindingsThe findings of the focus groups are presented in four themes, conditions of caring, intersecting vulnerabilities, desperate acts of care and awareness of education and training needs. These themes highlight the challenges faced by family carers of people with advanced dementia and describe the potential harm, abuse and poor mental well-being facing both the person with dementia and the family carer as a result of their situation.Research limitations/implicationsThere is a need to explore ways to ensure inclusivity and sensitivity in the research process and enable equal participation from all participants.Practical implicationsThe findings highlight a lack of support for family carers of people with advanced dementia and demonstrate the need for dementia-specific integrated and palliative care approaches in India.Originality/valueThis paper provides insight into the experiences and challenges facing family caregivers of people living with advanced dementia in India to shape practitioner education in a way that will underpin effective dementia-specific palliation and integrated services.


Sign in / Sign up

Export Citation Format

Share Document