scholarly journals THE EFFECT OF ANKLE LIMITATION ON DYNAMIC BALANCE AND FUNCTIONAL CAPACITY IN CHILDREN WITH DUCHENNE MUSCULAR DYSTROPHY

2022 ◽  
Author(s):  
Halil ALKAN ◽  
Mahsum EREN
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Functional Capacity ◽  
Dynamic Balance

scholarly journals Burden of caregivers of patients with duchenne muscular dystrophy: relationship to functional capacity / Sobrecarga de cuidadores de pacientes com Distrofia Muscular de Duchenne: relação com a capacidade funcional

2021 ◽  
Vol 13 ◽  
pp. 547-552
Author(s):  
Iriana Moraes Eduardo ◽  
Lorrane Caroline De Oliveira ◽  
Maysa Ferreira Martins Ribeiro ◽  
Cejane Oliveira Martins Prudente
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Functional Capacity

Objetivo: Relacionar a capacidade funcional de pacientes com Distrofia Muscular de Duchenne com a sobrecarga dos seus cuidadores familiares. Métodos: Estudo transversal com amostra composta por 35 pacientes e seus cuidadores familiares, de um centro de reabilitação de Goiânia-GO. Foram utilizados para avaliação da capacidade funcional a Escala de Vignos, Medida da Função Motora, Índice de Barthel e Escala Egen Klassification e para avaliação da sobrecarga o Burden Interview. Resultados: Os cuidadores estavam com sobrecarga moderada, com média de 23,6 (±10,3). A pontuação média dos instrumentos demonstrou que os pacientes estavam em fase avançada de estadiamento da doença e prejuízo da capacidade funcional. Não foi encontrada relação significativa entre a sobrecarga dos cuidadores e a capacidade funcional dos pacientes. Conclusão: O cuidador está diretamente ligado à função de zelar do paciente, portanto a equipe multiprofissional precisa se atentar também à saúde mental deste, oferecendo suporte para intervenções especializadas.

scholarly journals The association of hand grip strength with functional measures in non-ambulatory children with Duchenne muscular dystrophy

2019 ◽  
Vol 77 (11) ◽  
pp. 792-796 ◽  
Author(s):  
Numan Bulut ◽  
Ipek Gürbüz ◽  
Öznur Yilmaz ◽  
Güllü Aydin ◽  
Ayşe Karaduman
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Grip Strength ◽  
Upper Limb ◽  
Functional Capacity ◽  
Assessment Tool ◽  
Hand Grip Strength ◽  
Dominant Hand ◽  
Hand Grip ◽  
Functional Measures

ABSTRACT Duchenne muscular dystrophy (DMD) is a disease characterized by progressive loss of muscle fiber, gradually from proximal to distal. Although a few studies have investigated hand grip strength in non-ambulatory DMD patients, a lack of literature was found determining its relationship with functional capacity. Objective: The aim of this study was to determine the associations between hand grip strength and functional measures in non-ambulatory children with DMD. Methods: Hand grip strength was evaluated using a dynamometer in children with DMD. The children with DMD were evaluated with the Turkish version of the Egen Klassifikation Scale Version 2 (EK2) for global functional capacity, the Performance of Upper Limb (PUL) for upper limb functional performance and the ABILHAND-Kids for hand ability. Results: The mean age of 38 DMD children was 12.02 ± 1.99 years. Dominant hand grip strength of the children with DMD was higher than the non-dominant hand (p < 0.05). The EK2 was 13.02 ± 5.50, PUL was 49.86 ± 14.34 and ABILHAND-Kids was 26.81 ± 7.59. Hand grip strength was found to be correlated with the EK2 (p < 0.05). Conclusions: It is known that measuring functional ability and strength in very weak children with DMD has been difficult and complex for therapists/clinicians in the clinical environment. Although there is a moderate correlation, hand grip strength may be used in clinical practice as a practical assessment tool to have an immediate insight into the global functional capacity in non-ambulatory DMD children.

Growth and psychomotor development of patients with Duchenne Muscular Dystrophy

2012 ◽  
Vol 43 (02) ◽  
Author(s):  
E Sarrazin ◽  
M von der Hagen ◽  
U Schara ◽  
K von Au ◽  
A Kaindl
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Psychomotor Development
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