scholarly journals The Function of Ritualized Acts of Memory Making after Death in the Neonatal Intensive Care Unit

Religions ◽  
2021 ◽  
Vol 12 (12) ◽  
pp. 1046
Author(s):  
Inger Emilie Værland ◽  
Anne Beth Gilja Johansen ◽  
Marta Høyland Lavik
Keyword(s):  
Support Group ◽  
Neonatal Intensive Care ◽  
Parent Support ◽  
Focus Group Interviews ◽  
Experienced Nurses ◽  
Bereaved Parents ◽  
Parent Support Group ◽  
The Status ◽  
Local Parent ◽  
Group Interviews

(1) Background: Some infants die shortly after birth, leaving both parents and nurses in grief. In the specific setting where the data were collected, the bereaved parents receive a scrapbook made by the nursing staff in the NICU, and a box made by a local parent support group. Making a scrapbook and a box when an infant dies in the NICU can be regarded as ritualized acts. The aim of this study is to explore the functions of these ritualized acts of making a scrapbook and memory box when an infant dies in the NICU. (2) Methods: Focus group interviews were performed with experienced nurses in the NICU, and with members of a parent support group. Reflexive thematic analysis was used to interpret the data. (3) Three main themes were constructed: “Making memories”, “showing evidence of the infant’s life and of the parenthood”, and “controlling chaos”. (4) Conclusions: Through the ritualized acts of making scrapbooks and boxes, nurses and members of the parent support group collect and create memories and ascribe the infant with personhood, and the parents with the status of parenthood. In addition, the ritualizing functions to construct meaning, repair loss, relieve sorrow, and offer a sense of closure for the makers of these items.

Organizing a Parent Support Group

G/C/T ◽  
1979 ◽  
Vol 2 (1) ◽  
pp. 38-68
Author(s):  
Jackie Buisman
Keyword(s):  
Support Group ◽  
Parent Support ◽  
Parent Support Group

Extending the Home-School Partnership— Starting a Parent Support Group

1987 ◽  
Vol 71 (499) ◽  
pp. 123-125
Author(s):  
Douglas Berman ◽  
Donald Freeman ◽  
Linda Siegmund ◽  
Cecilia L. Cullen
Keyword(s):  
Support Group ◽  
Parent Support ◽  
Home School ◽  
Parent Support Group ◽  
School Partnership ◽  
Home School Partnership

Latina Mothers' Views of a Parent-to-Parent Support Group in the Special Education System

2009 ◽  
Vol 34 (3-4) ◽  
pp. 113-122 ◽  
Author(s):  
Tracy Gershwin Mueller ◽  
Madeline Milian ◽  
Maria Islas Lopez
Keyword(s):  
Support Group ◽  
Local Community ◽  
Severe Disabilities ◽  
Parent Support ◽  
Future Research ◽  
Latina Mothers ◽  
Qualitative Interview Study ◽  
Parent Support Group ◽  
Community Board ◽  
Source Of Information

Parent–professional partnership literature continues to emphasize the importance of including the parent voice. Spanish-speaking families are often excluded from such studies because of the language barrier. This article presents a qualitative interview study of eight Latina mothers of children with severe disabilities. All participants were members of a parent-to-parent support group available through a local community board. Data analysis revealed that the mothers identified three major benefits of the parent-to-parent support group, including (a) feeling like a family, (b) having a source of information, and (c) receiving emotional support. Findings indicated that information and assistance the parents were missing from the school system were offered through their group. Implications for educational providers and future research will be presented and discussed.

scholarly journals PENGASUHAN (GOOD PARENTING) BAGI ANAK DENGAN DISABILITAS

2015 ◽  
Vol 2 (1) ◽  
Author(s):  
Gabriela Chrisnita Vani ◽  
Santoso Tri Raharjo ◽  
Eva Nuriyah Hidayat
Keyword(s):  
Support Group ◽  
Family Life ◽  
Parent Support ◽  
Family Life Education ◽  
Parent Support Group ◽  
Life Education

Setiap anak tidak terkecuali anak dengan disabilitas mempunyai hak untuk tumbuh dan berkembang, mendapatkan pendidikan, dan hak-hak lainnya. Akan tetapi jumlah anak disabilitas di Indonesia yang ternyata tidak sedikit harus diperhatikan bersama terutama oleh lingkungan terdekat atau orangtua. Hal ini dibuktikan dengan adanya jumlah anak penyandang disabilitas yang semakin meningkat dari tahun ke tahun menurut Pendataan Direktorat Rehabilitasi Sosial Penyandang Cacat Kementerian Sosial (2009) , terdapat 65.727 anak, yang terdiri dari 78.412 anak dengan kedisabilitasan ringan, 74.603 anak dengan kedisabilitasan sedang dan 46.148 anak dengan kedisabilitasan berat. Lalu berdasarkan Susenas Triwulan 1 Maret 2011, jumlah anak Indonesia sebanyak 82.980.000. Dari populasi tersebut, 9.957.600 anak adalah anak berkebutuhan khusus dalam kategori penyandang disabilitas. Anak dengan disabilitas memerlukan penanganan khusus, tetapi tidak semua orangtua yang tulus menerima anak dengan disabilitas dan memberikan kasih sayang secara penuh hal ini dapat terlihat dari penerimaan orangtua yang sedih, malu, dan terkejut. Dengan penerimaan tersebut, akan mengakibatkan orangtua tidak memperdulikan anak dengan disabilitas dan kurangnya perhatian atau kasih sayang orangtua kepada anak dengan disabilitas. Belum banyak orangtua yang menerima anak dengan disabilitas dengan hati yang tulus, yang mengakibatkan kurang terpenuhinya hak dan kebutuhan anak dengan disabilitas. Dalam hal ini, perlu adanya pengasuhan baik dari keluarga terutama kedua orangtua anak. Pengasuhan yang baik akan menghasilkan anak dengan disabilitas dapat memenuhi kebutuhan dan mendapatkan hak mereka sehingga dapat berfungsi secara sosial. Perlunya edukasi akan fungsi keluarga yang memang harus dipenuhi yaitu afeksi, keamanan, identitas,afiliasi, sosialisasi, kontrol harus diberikan orangtua kepada anak penyandang disabilitas. Pelayanan sosial bagi keluarga juga dapat diterapkan diadakan misalnya dengan pelayanan konseling keluarga, family life education (pendidikan kehidupan keluarga), dan parent support group dapat dilakukan oleh pekerja sosial dalam memberdayakan orangtua serta anak dengan disabilitas.

Cultural Considerations in Serving Children With ASD and Their Families: Asian American Perspective

2013 ◽  
Vol 20 (1) ◽  
pp. 14-19 ◽  
Author(s):  
HyeKyeung Seung
Keyword(s):  
Support Group ◽  
Asian American ◽  
Children With Autism ◽  
Parent Support ◽  
Direct Experience ◽  
Cultural Considerations ◽  
American Perspective ◽  
Parent Support Group ◽  
Culturally Based ◽  
American Children

The author of this article reviews cultural differences that will guide clinicians when providing services to Asian American children with autism and discusses culturally based clinical issues/suggestions for working successfully with Asian American families. Theory is followed using examples from three sources: (a) the author’s direct experience, (b) a Korean parent support group, and (c) a one-time open dialogue event among Asian parents of children with autism and professionals who serve them.

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