scholarly journals Do current cancer follow-up care practices meet the needs of young adult cancer survivors in Canada? A qualitative inquiry

2013 ◽  
Vol 20 (1) ◽  
Author(s):  
B. Miedema ◽  
J. Easley ◽  
L.M. Robinson
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Qualitative Inquiry ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Care Practices ◽  
Young Adult Cancer

scholarly journals Follow-Up Care Provider Preferences of Adolescent and Young Adult Cancer Survivors

2018 ◽  
Vol 7 (2) ◽  
pp. 204-209 ◽  
Author(s):  
Joemy M. Ramsay ◽  
Karely Mann ◽  
Sapna Kaul ◽  
Eduardo R. Zamora ◽  
Rochelle R. Smits-Seemann ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Care Provider ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Young Adult Cancer

scholarly journals Long-term Follow-up Care for Childhood, Adolescent, and Young Adult Cancer Survivors

PEDIATRICS ◽  
2021 ◽  
Vol 148 (3) ◽  
pp. e2021053127
Author(s):  
Melissa M. Hudson ◽  
Smita Bhatia ◽  
Jacqueline Casillas ◽  
Wendy Landier
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Long Term Follow Up ◽  
Young Adult Cancer

Young adult cancer survivors’ follow-up care expectations of oncologists and primary care physicians

2016 ◽  
Vol 11 (3) ◽  
pp. 295-301 ◽  
Author(s):  
Kiara Hugh-Yeun ◽  
Divjot Kumar ◽  
Ali Moghaddamjou ◽  
Jenny Y. Ruan ◽  
Winson Y. Cheung
Keyword(s):  
Primary Care ◽  
Young Adult ◽  
Cancer Survivors ◽  
Primary Care Physicians ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Young Adult Cancer

scholarly journals Self-reported late effects and long-term follow-up care among 1889 long-term Norwegian Childhood, Adolescent, and Young Adult Cancer Survivors (the NOR-CAYACS study)

2020 ◽  
Author(s):  
A. V. Mellblom ◽  
C. E. Kiserud ◽  
C. S. Rueegg ◽  
E. Ruud ◽  
J. H. Loge ◽  
...  
Keyword(s):  
Young Adult ◽  
Late Effects ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Long Term Follow Up ◽  
Young Adult Cancer

Abstract Purpose The majority of childhood, adolescent, and young adult cancer survivors (CAYACS) are at risk of late effects but may not receive long-term follow-up care for these. Here, we investigated (1) self-reported late effects, (2) long-term follow-up care, and (3) factors associated with receiving follow-up care in a population-based sample of Norwegian long-term CAYACS. Methods Survivors were identified by the Cancer Registry of Norway. All > 5-year survivors diagnosed between 1985 and 2009 with childhood cancer (CCS, 0–18 years old, excluding CNS), breast cancer (BC, stages I–III), colorectal cancer (CRC), leukemias (LEUK), non-Hodgkin lymphoma (NHL), or malignant melanoma (MM) at age 19–39 years were mailed a questionnaire (NOR-CAYACS study). Descriptive statistics and logistic regression models were used to analyze occurrence of late effects, long-term follow-up care for these, and associated factors. Results Of 2104 responding survivors, 1889 were eligible for analyses. Of these, 68% were females, with a mean age of 43 years at survey, on average 17 years since diagnosis, and diagnosed with CCS (31%), BC (26%), CRC (8%), NHL (12%), LEUK (7%), and MM (16%). Overall, 61.5% reported the experience of at least one late effect, the most common being concentration/memory problems (28.1%) and fatigue (25.2%). Sixty-nine percent reported not having received long-term follow-up care focusing on late effects. Lower age at survey (p = 0.001), higher education (p = 0.012), and increasing number of late effects (p = < 0.001) were associated with increased likelihood of follow-up care in the multivariate model. Conclusions The majority of survivors reported at least one late effect, but not receiving specific follow-up care for these. This indicates a need for structured models of long-term follow-up to ensure adequate access to care.

scholarly journals Preferences for the organization of long-term follow-up in adolescent and young adult cancer survivors

2016 ◽  
Vol 24 (8) ◽  
pp. 3425-3436 ◽  
Author(s):  
Salome Christen ◽  
Janine Vetsch ◽  
Luzius Mader ◽  
Silvia Dehler ◽  
Dimitri Korol ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Long Term Follow Up ◽  
Young Adult Cancer

scholarly journals Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescent and Young Adult Cancer Survivors? A Mixed-Methods Pilot Study

Cancers ◽  
2021 ◽  
Vol 13 (16) ◽  
pp. 4076
Author(s):  
Lena Fauske ◽  
Øyvind S. Bruland ◽  
Alv A. Dahl ◽  
Aase Myklebostad ◽  
Silje E. Reme
Keyword(s):  
Mixed Methods ◽  
Young Adult ◽  
Cancer Survivors ◽  
Chronic Fatigue ◽  
Training Programme ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer

Background: We report on a pilot intervention study exploring the efficacy of the Lightning Process® training programme for reducing chronic fatigue and improving health-related quality of life in cancer survivors. Methods: 13 adolescent and young adult cancer survivors previously treated for sarcoma or Hodgkin lymphoma were enrolled. A mixed-methods approach was applied. This involved the use of five validated patient-reported outcome measure (PROM) questionnaires at baseline and the three- and six-month follow-up points to obtain quantitative data. Semi-structured interviews were conducted after the intervention with emphasis on the participants’ experiences and outcomes. A reflexive thematic analysis was applied to the transcripts. Results: A significant reduction (p < 0.001) in the total fatigue score from baseline to the three- and six-month follow-up points was documented. The correlation coefficients between the various PROMs at baseline and the six-month follow-up point indicated considerable overlap between the measures. The qualitative findings of the interviews corresponded well with the PROM findings. Most participants experienced both less fatigue and explicit improvement in their energy level. The aspects of the intervention found to be particularly helpful were the theoretical rationale and the coping techniques mediated. Conclusion: These encouraging results here reported should be of interest to the general oncological community, although they require confirmation through a larger and controlled study.

scholarly journals Trekstock RENEW: evaluation of a 12-week exercise referral programme for young adult cancer survivors delivered by a cancer charity

2020 ◽  
Vol 28 (12) ◽  
pp. 5803-5812 ◽  
Author(s):  
G. Pugh ◽  
N. Below ◽  
A. Fisher ◽  
J. Reynolds ◽  
S. Epstone
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Cancer Survivors ◽  
Physical Function ◽  
Well Being ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer ◽  
Exercise Referral

Abstract Purpose To evaluate the uptake and effect of RENEW, a 12-week exercise referral programme for young adult cancer survivors delivered by Trekstock, a UK-based cancer charity. Methods The RENEW programme provides one-to-one individually tailored support from a level-4 cancer-rehabilitation-qualified gym instructor, free gym membership and access to information resources online. Objective and self-report data on cardiorespiratory function, strength, body composition, fatigue, sleep quality and general health-related quality of life (HRQoL) was collected from participants before the programme (week 0), immediately after (week 12) and 1 month later (week 16). Results Forty-eight young adults (83% female; mean age, 29 years) with a history of cancer took part within the 12-week programme and completed the evaluation measures. Physical activity (PA) levels significantly increased following the programme and remained raised at follow-up. Improvements in physical function were significant: peak expiratory flow (mean change, 30.96, p = 0.003), sit-and-reach test (mean change, 6.55 ± 4.54, p < 0.0001), and 6-mine-walk test (mean change, 0.12 ± 0.04, p < 0.0001). No significant changes in BMI, weight or muscle mass were observed. Improvements in fatigue, sleep and HRQoL were observed across the programme and at follow-up (mean change, weeks 0–16; 8.04 ± 1.49 p < 0.01; 1.05 ± 0.49 p < 0.05; and − 0.9 ± 0.46 p = 0.051, respectively). Changes in self-efficacy to exercise and motivations to exercise were not observed at 12 weeks or at follow-up. Conclusions Results suggest that the RENEW exercise referral programme has a positive impact upon some domains of physical function and well-being among young adult cancer survivors. Implication for cancer survivors Exercise referral programmes delivered by charity organisations are one means by which PA behaviour change support may be widely disseminated to young adult cancer survivors. Health professionals and charitable bodies specialising in the care of young adults with cancer should look to address factors which prevent engagement and uptake of ‘real-world’ PA interventions such as the RENEW programme.

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