Improving health care and welfare services for individuals with epilepsy and intellectual disabilities focusing on transition from child care to adult care: A father of a daughter with Dravet syndrome speaks out

2016 ◽  
Vol 8 (1) ◽  
pp. 14-20
Author(s):  
Yoshiharu Hirano
Author(s):  
Sally-Ann Cooper

In high-income countries, about 5/1000 adults have intellectual disabilities. Population prevalence of intellectual disabilities is higher in children/young persons than adults, and prevalence decreases in older age groups to about 2/1000 over the age of 65. Intellectual disabilities are more common in boys/men, and in low-income countries; prevalence varies with geography and over time. Mental ill health is more common in people with intellectual disabilities than in the general population, with a point prevalence of 41% in adults and 36% in children/young people. Physical health problems and disabilities are common, and multi-morbidity and polypharmacy typical in people with intellectual disabilities; hence, clinical assessment and management are complex. The lifespan of people with intellectual disabilities is currently about 20 years less than that of other people, and more than 37% of their deaths are preventable deaths amenable to high-quality health care. Improving health care for people with intellectual disabilities needs to become a priority for clinicians, service commissioners, and policymakers.


2020 ◽  
Author(s):  
Krishna Krishna Prasad Pathak

BACKGROUND Health professionals (HPs) play a key role in dementia management and detection. However, there is a gap in the literature as to what represents best practice with regard to educating HPs to improve their dementia detection practices and management. OBJECTIVE The objective of this scoping review is to synthesize the aggregated studies aimed at improving health care knowledge, detection practices and management of dementia among HPs. METHODS We searched electronically published relevant articles with inclusion criteria; (1) intervention studies aimed at improving HPs practices concerning dementia care and (2) educational interventions focused on nurses and doctors’ knowledge, detection practice and management of dementia. Twenty-five articles fit the inclusion criteria. RESULTS Collaborative programs of practice based workshops, interactive learning activities with community and multi-faced educational program were the most effective. CONCLUSIONS HPs should be supported to improve their knowledge, tackle behavioural problems associated with dementia, be made aware of services and be enabled to engage in more early diagnosis. CLINICALTRIAL no applicable


2019 ◽  
Vol 30 (3) ◽  
pp. 184-184
Author(s):  
Niels Kristian Kjær ◽  
Lone Grønbæk ◽  
Karl Martin Lind

2016 ◽  
Vol 28 (3) ◽  
pp. 420-424 ◽  
Author(s):  
M. Rashad Massoud ◽  
Danika Barry ◽  
Andrew Murphy ◽  
Yvonne Albrecht ◽  
Sylvia Sax ◽  
...  

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