scholarly journals Comparison of two questionnaires measuring the health-related quality of life in patients with idiopathic interstitial pulmonary fibrosis

2022 ◽  
Vol 71 (1) ◽  
pp. 108
Author(s):  
AmrA Elsheikh ◽  
AmalA Abdelaziz ◽  
NouraneY Azab ◽  
RababA Elwahsh
Keyword(s):  
Quality Of Life ◽  
Pulmonary Fibrosis ◽  
Health Related Quality ◽  
Interstitial Pulmonary Fibrosis ◽  
Related Quality ◽  
Health Related

scholarly journals Health related quality of life in patients with idiopathic pulmonary fibrosis in clinical practice: insights-IPF registry

2017 ◽  
Vol 18 (1) ◽  
Author(s):  
Michael Kreuter ◽  
Jeff Swigris ◽  
David Pittrow ◽  
Silke Geier ◽  
Jens Klotsche ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Clinical Practice ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Health-Related Quality of Life Among Patients With Idiopathic Pulmonary Fibrosis

CHEST Journal ◽  
2005 ◽  
Vol 127 (1) ◽  
pp. 284-294 ◽  
Author(s):  
Jeffrey J. Swigris ◽  
Michael K. Gould ◽  
Sandra R. Wilson
Keyword(s):  
Quality Of Life ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Health-Related Quality of Life Does Not Predict Survival in Idiopathic Pulmonary Fibrosis

CHEST Journal ◽  
2010 ◽  
Vol 138 (4) ◽  
pp. 528A
Author(s):  
Osamu Nishiyama ◽  
Hiroyuki Taniguchi ◽  
Yasuhiro Kondoh ◽  
Tomoki Kimura ◽  
Kensuke Kataoka ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

HEALTH-RELATED QUALITY OF LIFE MEASURES IN IDIOPATHIC PULMONARY FIBROSIS: DATA FROM THE IPF-PRO REGISTRY

CHEST Journal ◽  
2019 ◽  
Vol 156 (4) ◽  
pp. A180-A181
Author(s):  
Aparna Swaminathan ◽  
Emily O'Brien ◽  
Anne Hellkamp ◽  
Megan Neely ◽  
Shaun Bender ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Health Related Quality ◽  
Quality Of Life Measures ◽  
Related Quality ◽  
Health Related

R-Scale for Pulmonary Fibrosis (PF): a simple, visual tool for the assessment of health-related quality of life

2021 ◽  
pp. 2100917
Author(s):  
Ciaran Scallan ◽  
Lauren Strand ◽  
Jennifer Hayes ◽  
Suha Kadura ◽  
Bridget Collins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Clinical Practice ◽  
Pulmonary Fibrosis ◽  
Concurrent Validity ◽  
Rating Scale ◽  
Routine Clinical Practice ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

RationalePatients with Idiopathic Pulmonary Fibrosis (IPF) experience impaired health related quality of life (HRQoL). Several tools have been developed to objectively assess HRQoL in this patient population, but none are in use in routine clinical practice.ObjectivesTo develop a rapid, specific tool that can be used for patients with IPF during routine clinic visits.MethodsA novel and simple 5-item numerical rating scale (NRS) was developed and compared with two other previously validated tools. 100 consecutive patients with IPF managed at the center for ILD, were recruited to complete the R-Scale-PF, the Kings Brief Interstitial Lung Disease Questionnaire (K-BILD), and the EuroQol 5-Dimensional 5-Level Questionnaire (EQ-5D-5 L) in addition to pulmonary function and 6-min walk tests.Measurements and Main ResultsAll 100 patients successfully completed the three HRQoL tools with 53 completing them again at follow up visits. Internal consistency was high (Cronbach's α 0.825) with minimal floor/ceiling effect. Concurrent validity of the R-Scale-PF was moderate to high compared with the K-BILD (r=−0.713) and the EQ-5D-5 L (r=−0.665). Concurrent validity was moderate with physiologic measures (forced vital capacity, r=−0.307, 6-min walk distance, r=−0.383). The R-Scale-PF demonstrated good known-groups validity when comparing scores across stages of disease severity.ConclusionsThe R-Scale-PF correlates well with the K-BILD and EQ-5D-5 L. It is hoped that this novel simple NRS tool subject to validation in patients from other centers will provide the opportunity to objectively measure HRQoL in routine clinical practice for patients with IPF.

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