Family caregiver adaptation to HIV/AIDS family caregiving: a review of literature

2010 ◽  
Vol 10 (2) ◽  
Author(s):  
TR Mathunjwa-Dlamini ◽  
M Mathunjwa ◽  
F Gary
Keyword(s):  
Family Caregiver ◽  
Family Caregiving ◽  
Review Of Literature ◽  
Hiv Aids

Interventions for Women As Family Caregivers

2001 ◽  
Vol 19 (1) ◽  
pp. 125-142 ◽  
Author(s):  
MARGARET J. BULL
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiver ◽  
Family Caregiving ◽  
Nursing Practice ◽  
Long Term Care ◽  
Chronically Ill ◽  
Term Care ◽  
Family Caregiver Burden

Family caregivers are the mainstay of long-term care, as they enable chronically ill elders and children to remain at home. The majority of family caregivers are women and historically their caregiving role has been viewed as an extension of their roles as wife and mother. Although numerous studies report the stresses associated with family caregiving and are predictors of burden, less attention has been given to interventions for family caregivers. The objective of this review is to examine reports of interventions to reduce family caregiver burden, to consider their implications for nursing practice, and to identify directions for future nursing research.

scholarly journals Disability and HIV/AIDS - a systematic review of literature on Africa

2009 ◽  
Vol 12 (1) ◽  
pp. 34-34 ◽  
Author(s):  
Jill Hanass-Hancock
Keyword(s):  
Systematic Review ◽  
Review Of Literature ◽  
Hiv Aids

Palliative Care at Home: Reflections on HIV/AIDS Family Caregiving Experiences

1998 ◽  
Vol 14 (2) ◽  
pp. 14-22 ◽  
Author(s):  
Kelli I. Stajduhar ◽  
Betty Davies
Keyword(s):  
Palliative Care ◽  
Qualitative Methods ◽  
Family Caregiving ◽  
Family Members ◽  
Loved One ◽  
The Family ◽  
Care At Home ◽  
Depth Interviews ◽  
Hiv Aids ◽  
At Home

This study explored the day-to-day experiences of family members providing care at home for their dying loved one with HIV/AIDS. In-depth interviews with seven caregivers were analyzed using grounded theory qualitative methods. A conceptualization of the family caregiving experience portrays HIV/AIDS caregiving as an intense, emotional, and powerful experience filled with pride and enrichment, and conversely, with anger and disillusionment. Findings reflected a significant need for interventions designed to provide direct and effective support for family members caring for a loved one with HIV/AIDS.

scholarly journals Culture, Caregiving, and Health: Exploring the Influence of Culture on Family Caregiver Experiences

2014 ◽  
Vol 2014 ◽  
pp. 1-8 ◽  
Author(s):  
Jennifer R. Pharr ◽  
Carolee Dodge Francis ◽  
Christine Terry ◽  
Michele C. Clark
Keyword(s):  
Cultural Values ◽  
Ethnic Groups ◽  
Asian American ◽  
Family Caregiver ◽  
Family Caregiving ◽  
Cultural Influences ◽  
European American ◽  
Hispanic American ◽  
Cultural Determinants ◽  
Caregiver Experiences

Ethnic minorities are expected to experience a greater demand for family caregiving than non-Latino Whites due to their projected population growth. Although the consensus of researchers on caregiving and culture finds that the caregiving experience differs significantly among cultural/ethnic groups, the question remains as to how cultural values and norms influence the caregiver experiences. We conducted an interpretative, phenomenological qualitative analysis of focus group transcripts from four groups (African American, Asian American, Hispanic American, and European American) for cultural influences on caregiving. Data were collected in Nevada between December 7, 2009, and August 20, 2010. Thirty-five caregivers participated in this study. We found commonalities among all of the cultural/ethnic groups in their experiences of the difficulties of caregiving. However, there were some significant differences in the cultural values and norms that shaped the caregiving experience. We categorized these differences as: (a) cultural embeddedness of caregiving, (b) cultural determinants of caregiving responsibilities or taxonomy of caregiving, and (c) cultural values and norms underlying the decision to provide care. The significance of this study is that it highlights the culturally perceived mandate to provide care in the African, Asian, and Hispanic American cultures.

scholarly journals The Family Context of Care in HIV/AIDS: A Study from Mumbai, India

2015 ◽  
Author(s):  
Premilla D'Cruz
Keyword(s):  
Family Caregiving ◽  
Program Planning ◽  
Empirical Work ◽  
Family Values ◽  
Family Context ◽  
Caregiving System ◽  
The Family ◽  
Depth Interviews ◽  
The Continuum ◽  
Hiv Aids

Though the continuum of care model has been adopted in HIV/AIDS intervention, there is little empirical work documenting the experiences of caregiving families. Addressing this gap, a study on family caregiving and care receiving was undertaken in Mumbai, India. In-depth interviews were conducted with seven seropositive caregivers, seven seropositive care receivers and five seronegative caregivers. Thematic analysis of the data was conducted, yielding a number of key themes. This paper discusses the key theme of the family context of care which includes the caregiving system, family values, perceived mode of infection, gender of the seropositive person, and class. Implications of the findings for policy and program planning are discussed.

scholarly journals Senior knowledge about vulnerabilities to HIV/aids: an integrative review of literature Conhecimento de idosos sobre vulnerabilidades ao HIV/aids: uma revisão integrativa da literatura

2015 ◽  
Vol 7 (5) ◽  
pp. 95
Author(s):  
Lindiane Constâncio da Silva ◽  
Kalline Silva de Morais ◽  
Jordana De Almeida Nogueira ◽  
Antonia Oliveira Silva ◽  
Greicy Kelly Gouveia Dias Bittencourt
Keyword(s):  
Integrative Review ◽  
Review Of Literature ◽  
Hiv Aids

Objetivo: Descrever o conhecimento de idosos sobre vulnerabilidades ao HIV/Aids. Métodos: Revisão integrativa realizada na LILACS, SciELO e BDENF com os descritores envelhecimento e aids.  Resultados: Encontraram-se 11 publicações, destacando-se cinco categorias temáticas sobre conhecimento em relação: ao conceito de HIV/Aids; ao acesso a informações; às medidas preventivas; à transmissão do HIV; ao comportamento de prevenção. Discussão: O levantamento revelou reduzido nível de conhecimento dos idosos sobre a temática, insuficiente para gerar comportamentos de proteção contra o vírus. Observou-se que os aspectos relacionados ao HIV/Aids em idosos têm sido pouco abordados pelas políticas públicas de saúde e pelos profissionais de saúde. Conclusão: Esses achados levantam reflexões acerca de ações de saúde que considerem a vulnerabilidade ao HIV/Aids na população idosa. Descritores: Idoso; Vulnerabilidade em Saúde; Síndrome de Imunodeficiência Adquirida.

scholarly journals Family Caregiver Health in a Pandemic

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1013-1013
Author(s):  
Kimberly Cassie
Keyword(s):  
Family Caregiver ◽  
Family Caregiving ◽  
Well Being ◽  
Good Health ◽  
Future Research ◽  
Convenience Sample ◽  
Older Americans ◽  
Caregiver Health ◽  
Health Decline ◽  
Exploratory Survey

Abstract Each year family caregivers provide care and services worth billions of dollars to support the needs of older Americans. Their support is invaluable to keep individuals in the community for as long as possible and to allow individuals to attain and maintain their highest practicable level of well-being. But what impact does caregiving have on one’s health? Does caregiver health decline with the assumption of caregiving duties? Did caregiver health change during the pandemic? If so, how and what factors are associated with declines in caregiver health? To answer these questions, an exploratory survey was conducted among a convenience sample of 195 family caregiver. Almost a third of those sampled reported excellent or very good health, while 44% reported good health, and almost a quarter reported poor or fair health. Forty-eight percent reported their health had declined since they assumed caregiving duties and 29% reported their health had declined during the pandemic. Employed caregivers and those experiencing less depression/anxiety reported better health. Those experiencing a decline in health with caregiving were more likely to be female, not employed, experienced more stress and more depression/anxiety. Those experiencing a decline in health during the pandemic reported less spirituality, greater attachment related avoidance, and greater depression/anxiety. Findings from this research can be used to inform future research on the effect of the pandemic on family caregiving and to plan interventions to protect caregiver health as they provide vital services to maintain individuals in the community for as long as possible.

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