The Limits of Care: A Case Study of Legal and Ethical Issues in Filial Responsibility: Roma Stovall Hanks

2012 ◽  
pp. 248-266
2016 ◽  
Vol 30 (44) ◽  
pp. 48-53
Author(s):  
Victoria Hagger ◽  
Catherine Ellis ◽  
Laura Strumidlo

Author(s):  
A. S.C. Hooper

In any cooperative database the participants contribute their data for their own as well as the benefit of the other members, usually with incentives from the database administrators. A South African library network company (LIBNET) provided a networked service to participating libraries. Member benefits included conversion of their catalogues into machine-readable form, significantly reduced costs through cooperative cataloguing and more efficient interlibrary loans through a union catalogue of the holdings of the participant libraries. This case study explores some of the issues influencing tariff determination in a cooperative database. Questions of data ownership and the provision of incentives for the uploading of data also raise legal and ethical issues. The case study provides a basis for exploring business strategy in collaborative database management.


Author(s):  
Ana R Martins ◽  
Inês C. R Henriques ◽  
Andre Brunoni ◽  
Felipe Fregni

This chapter discusses the most important aspects of designing, administrating, and analyzing surveys in clinical research. It highlights the different topics of the main stages of survey research. It reviews the design and planning phase, especially focusing on the definition of the survey research question. It discusses the process of instrument design, from planning and development to pre-test and validation, types of sampling, and methods for survey administration. It also reviews the importance of the data analysis plan and report. Furthermore, it refers to potential problems and pitfalls, as well as legal and ethical issues encountered when conducting surveys, and strategies to address them. Finally, it includes a case study and explores different questions to be addressed when using surveys in clinical research.


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