scholarly journals Parents perceptions of school nurses roles: The impact of communication on students with autism spectrum disorder

2022 ◽  
Vol 12 (5) ◽  
pp. 55
Author(s):  
Constance McIntosh ◽  
Jayanthi Kandiah ◽  
Lesie J. Remache
Keyword(s):  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
School Nurses ◽  
Spectrum Disorder ◽  
Children With Asd ◽  
Students With Autism ◽  
The Impact ◽  
The Relationship ◽  
Perceptions Of School ◽  
Parents Experiences

This qualitative study used the nursing grounding theory to describe parents' experiences working with school nurses to elevate their child’s healthcare. Seventeen interviews were conducted with parents/primary caregivers (P/PCG) who had children with autism spectrum disorder (ASD; ages six to ten). Through centering parents’ voices, the investigators were able to identify gaps in P/CG understanding of their school nurses’ roles through thematic analyses. We found that P/CG lacked the understanding of school nurses' roles and how school nurses could aid their child’s healthcare. The oversight of school nurses contributed to miscommunication, which constrained the relationship between the parent and the school nurse. These findings provide insight into the importance of enhancing communication between the parents of children with ASD and school nurses and was the catalyst to why this article was written. When healthcare professionals provide clarity and expertise to parents as to their respective roles, incorporate perspective-taking, and tailor their approaches based on their concerns, it may enhance parents’ experiences with their school nurses. In addition, school nurses should consider various routes of engaging parents so they have a deeper understanding of their responsibilities in enhancing the healthcare of children with ASD.

scholarly journals Review of Cognitive Characteristics of Autism Spectrum Disorder Using Performance on Six Subtests on Four Versions of the Wechsler Intelligence Scale for Children

2021 ◽  
Author(s):  
Mizuho Takayanagi ◽  
Yoko Kawasaki ◽  
Mieko Shinomiya ◽  
Hoshino Hiroshi ◽  
Satoshi Okada ◽  
...  
Keyword(s):  
Systematic Review ◽  
Autism Spectrum Disorder ◽  
Block Design ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Intelligence Scale ◽  
Cognitive Characteristics ◽  
Children With Asd ◽  
The Right ◽  
The Impact

AbstractThis study was a systematic review of research using the Wechsler Intelligence Scale for Children (WISC) with Autism Spectrum Disorder (ASD) to examine cognitive characteristics of children with ASD beyond the impact of revisions based on WISC and diagnostic criteria changes. The classic “islets of ability” was found in individuals with full-scale IQs < 100. The “right-descending profiles” were observed among high IQ score individuals. High levels on the Block Design and low Coding levels were consistently found regardless of the variation in intellectual functioning or diagnosis. This review identified patterns of cognitive characteristics in ASD individuals using empirical data that researchers may have previously been aware of, based on their experiences, owing to the increased prevalence of ASD.

scholarly journals Including Children with Autism Spectrum Disorder in Regular Schools: A Mother’s Perspective

2020 ◽  
pp. 137-142
Author(s):  
Low Hui Min ◽  
Lee Lay Wah
Keyword(s):  
Autism Spectrum Disorder ◽  
Inclusive Education ◽  
Structured Interview ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Ministry Of Education ◽  
Learning Aids ◽  
Children With Asd ◽  
Students With Autism

Since the implementation of 'Educational Blueprint 2013-2025' and 'Zero Reject Policy' in Malaysia, there are increasingly efforts from the Malaysian Ministry of Education to include students with Autism Spectrum Disorder(ASD) into regular mainstream education. A case study investigation was conducted with a mother with two children with different severity levels of ASD. In a semi-structured interview, the mother described her experiences and aspirations of education arrangements for both her children. Through the eyes of a mother, we find a strong belief that children with ASD could learn like others when given adequate opportunities and learning aids. This unique case study offers an archetypical representation of issues and challenges faced by parents of children with ASD in Malaysia, in advocating for inclusive education for their children.

The Impact of Funding Models on the Education of Students With Autism Spectrum Disorder

2019 ◽  
Vol 43 (01) ◽  
pp. 1-11
Author(s):  
Umesh Sharma ◽  
Brett Furlonger ◽  
Chris Forlin
Keyword(s):  
Autism Spectrum Disorder ◽  
Best Practices ◽  
Inclusive Education ◽  
Relevant Information ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Policy Documents ◽  
Students With Autism ◽  
Education Of Students ◽  
The Impact

AbstractCurrently, there is no consensus as how best to fund inclusive education for students with autism spectrum disorder. In this narrative review, we examined a range of funding models internationally in an attempt to identify the range of best practices for resourcing inclusive education. Three databases were searched along with various policy documents to identify the range of existing funding models. Three models of input, throughput, and output funding were identified from which 7 key considerations were extrapolated to provide what was expected to be relevant information to policymakers, researchers, and educators seeking to discover effective ways to fund inclusive education for students with autism spectrum disorder.

scholarly journals Quality of Life among Parents of Children with Autism Spectrum Disorder in Riyadh

2016 ◽  
Vol 4 (2) ◽  
pp. 76 ◽  
Author(s):  
Khaled Yousef Asi
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autistic Child ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Autistic Children ◽  
The Impact ◽  
The Relationship

<p>The current study aimed to identify the level of quality of life among parents of children with autism spectrum disorder and the differences according to the relationship with the autistic child, gender, severity of disability. The sample consisted of (100) parents of children with autism spectrum disorder, enrolled in the program of autism, intentionally selected in Riyadh, Saudi Arabia. Quality of life scale prepared and utilized by the author after verification of validity and reliability. The results showed that the level of quality of life among the participants was medium, and the results showed statistically significant differences in the level of quality of life among the participants due to the impact of the relationship with autistic children, where differences were in favor of the parents, and the variable of gender of the autistic child, where differences were in favor of the males, and severity of the disability, where the differences were in favor of the mild group. The study recommended the need to draw the attention of officials in the care and service centers for children with autism spectrum to provide training programs and activities for parents of autistic children to raise the level of quality of life, especially mothers.</p>

scholarly journals Grief Experiences in Family Caregivers of Children with Autism Spectrum Disorder (ASD)

2019 ◽  
Vol 16 (23) ◽  
pp. 4821 ◽  
Author(s):  
Jorge Bravo-Benítez ◽  
María Nieves Pérez-Marfil ◽  
Belén Román-Alegre ◽  
Francisco Cruz-Quintana
Keyword(s):  
Autism Spectrum Disorder ◽  
Family Caregivers ◽  
Family Members ◽  
Well Being ◽  
Structured Interview ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Children With Asd ◽  
Caregiver Role ◽  
The Impact

The main objective of this study was to analyse the experience of grief and feelings of loss in family caregivers of children diagnosed with autism spectrum disorder (ASD), as well as the perceived overload from taking on the primary caregiver role. Twenty family caregivers of children with ASD participated. The family members were assessed using an ad-hoc semi-structured interview that addressed the families’ reactions to the diagnosis, implications for daily functioning, and concerns for the immediate and long-term future of their relatives with ASD. The results indicate that family caregivers of children with ASD endure intense and continuous sorrow and grief due to the impact that having and caring for a child with these characteristics has on all aspects of their lives. These data highlight the importance of creating support and intervention programmes and services focused on the feelings and manifestations of ambiguous grief that occur in these family members, in order to improve their well-being and quality of life and reduce caregiver role overload.

scholarly journals A wearable heart rate measurement device for children with autism spectrum disorder

2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Francesca Fioriello ◽  
Andrea Maugeri ◽  
Livio D’Alvia ◽  
Erika Pittella ◽  
Emanuele Piuzzi ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Heart Rate ◽  
Language Disorder ◽  
Statistical Significance ◽  
Autism Spectrum ◽  
Free Play ◽  
Spectrum Disorder ◽  
Measurement Device ◽  
Children With Asd ◽  
The Impact

Abstract Autism spectrum disorder (ASD) is a neurodevelopmental condition characterized by early impairment in social and communication domains and autonomic nervous system unbalance. This study evaluated heart rate (HR) as a possible indicator of stress response in children with ASD as compared to children with language disorder (LD). Twenty-four patients [mean age = 42.62 months; SD = 8.14 months,12 with ASD (10 M/2F) and 12 with LD (8 M/4F)] underwent clinical [Leiter International Performance Scale-Revised, Autism Diagnostic Observation Schedule, second edition (ADOS-2)] and physiological evaluation (HR monitoring) during five interactive activities, while wearing an HR measurement device. IQ (ASD:IQ = 103.33 ± 12.85 vs. LD:IQ = 111.00 ± 8.88, p = 0.103) and fluid reasoning on the Leiter-R Scale were within the normal range in all subjects. Increased HR during the third activity (ADOS-2 bubble play) significantly correlated with autistic symptoms (r = 0.415; p = 0.044), while correlations between ADOS-2 total score and HR during the first activity (ADOS-2 free play; r = 0.368; p = 0.077), second activity (Leiter-R figure ground subscale; r = 0.373, p = 0.073), and fifth activity (ADOS-2 anticipation of a routine with objects; r = 0.368; p = 0.076) did not quite reach statistical significance. Applying a linear regression model, we found that the ADOS-2 total score significantly influenced HR variations (p = 0.023). HR monitoring may provide a better understanding of the stress-provoking situations for children with ASD. Furthermore, it could help clinicians detect the impact of the stressful condition on the autistic core and adress treatment strategy.

Temperament influences the relationship between symptom severity and adaptive functioning in children with autism spectrum disorder

Autism ◽  
2020 ◽  
Vol 24 (8) ◽  
pp. 2057-2070
Author(s):  
Vivian Lee ◽  
Eric Duku ◽  
Lonnie Zwaigenbaum ◽  
Teresa Bennett ◽  
Peter Szatmari ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Symptom Severity ◽  
Adaptive Functioning ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Autism Symptoms ◽  
Adaptive Functioning Skills ◽  
The Impact ◽  
The Relationship

Temperament is a construct that is relatively stable over time but varies between individuals. Research suggests that children with autism spectrum disorder have a ‘reactive’ temperament profile when compared to peers with or without disabilities. However, our understanding of how temperament varies within children with autism and how it relates to child symptoms and outcomes is limited. This study aimed to (a) explore the variation of individual temperament traits within a sample of school-aged children with autism to determine whether subgroups of children with similar trait profiles emerge and (b) examine whether temperament influences the relationship between autism symptoms and adaptive functioning outcomes. Results revealed that children with autism can be classified empirically into two distinct profiles – ‘Even’ and ‘Reactive’ temperaments. Correlational and hierarchical regression analyses indicated that both temperament profiles and baseline symptom severity predicted adaptive functioning outcomes 1 year later. There was a significant interaction between temperament and symptom severity, suggesting temperament can influence the impact of increasing symptom severity on adaptive functioning skills in children with autism. Study findings highlight the importance of considering temperament in understanding the individual differences that influence the development of daily functioning and developmental outcomes in children with autism. Lay Abstract Temperament is often thought of as behavioural traits that are relatively stable over time but can vary between individuals. Children diagnosed with autism spectrum disorder are often characterized as having ‘reactive’ and ‘negative’ temperaments when compared to same-aged peers with or without disabilities, which can negatively impact the development of adaptive functioning skills but little is known about variations of temperament between individual children diagnosed with autism spectrum disorder. This study aimed to (a) explore the variation of individual temperament traits within a sample of school-aged children with autism spectrum disorder to determine whether subgroups with similar trait profiles emerge and (b) examine whether temperament influences the relationship between autism symptoms and adaptive functioning outcomes. Results from our dataset suggest that children diagnosed with autism spectrum disorder fit under two profiles: ‘even’ and ‘reactive’. Furthermore, our analysis shows that temperament can influence the impact of increasing symptom severity on adaptive functioning skills in children with autism spectrum disorder. Study findings highlight the importance of considering temperament when trying to understand the individual differences that influence the development of functioning and developmental outcomes in children with autism spectrum disorder.

Husband’s Social Support for Mother of Children With Autism Spectrum Disorder

2021 ◽  
pp. 106648072110050
Author(s):  
Dinie Ratri Desiningrum ◽  
Dewi Retno Suminar ◽  
Endang Retno Surjaningrum ◽  
Suryanto ◽  
Wiwin Hendriani
Keyword(s):  
Social Support ◽  
Autism Spectrum Disorder ◽  
Interpretative Phenomenological Analysis ◽  
Qualitative Method ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Children With Asd ◽  
The Impact

Purpose: The purpose of the research is to find husband’s social support for mother of children with autism spectrum disorder (ASD). The problem of this study is how the forms of husband’s social support are perceived by mothers of children with ASD, and what are the factors and impacts for mothers perceived about husband’s social support. Method: The research was conducted on family having children with autism aged 5–14 years, employing a qualitative method by interviewing 10 mother participants. Data were analyzed using interpretative phenomenological analysis (IPA). Results: The analysis resulted in five themes. First, the impact of disability of children with ASD on marriage relationship; second, the role of husband in parenting children with ASD; third, the perception of mother for husband’s social support; fourth, some factors influences to husband social supports; and fifth, the effects of husband’s social support for mother, children with ASD, and family. The discussion and limitations of this study are considered. Applications/Originality/Value: The results of this study are expected to be a reference for scientists, especially in the field of psychology of children with special needs, and can also contribute to the application of science to institutions related to ASD and observers of children with ASD.

scholarly journals Autism Spectrum Disorder and screen time during lockdown: an Italian study.

F1000Research ◽  
2021 ◽  
Vol 10 ◽  
pp. 1263
Author(s):  
Maria Grazia Logrieco ◽  
Laura Casula ◽  
Giuseppe Niccolò Ciuffreda ◽  
Ilaria Nicolì ◽  
Maria Spinelli ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Screen Time ◽  
Online Survey ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Daily Lives ◽  
Children With Asd ◽  
Core Symptoms ◽  
The Relationship

Background: Lockdown due to Covid-19 pandemic brought deep changes to the daily lives of children with Autism Spectrum Disorder (ASD), greatly increasing their amount of time spent at home. Methods: A cohort of 243 parents of children with ASD (2-15 years old) completed an original online survey regarding the child’s screen time and the modification of the ASD symptomatology during lockdown to investigate the relationship between them. Results: The data show that high solitary screen time is related with the worsening of ASD core symptoms. Conclusions: This study may help to increase awareness in the excessive use of screen in children with ASD during the lockdown, both during the pandemic as well as after it ends.

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