scholarly journals Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico

2016 ◽  
Vol 18 (1) ◽  
pp. 19-26 ◽  
Author(s):  
Gillian G. Leibach ◽  
Marilyn Stern ◽  
Adriana Aguayo Arelis ◽  
Miguel Angel Macias Islas ◽  
Brenda Viridiana Rábago Barajas
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Latin America ◽  
Satisfaction With Life ◽  
Self Esteem ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: Multiple sclerosis (MS) rates are increasing in Latin America, and caregiving for an individual with MS is associated with poorer mental and physical health outcomes. No existing research has examined the relation between mental health and health-related quality of life (HRQOL) in MS caregivers in Latin America. Methods: The present study examined the association between mental health (Patient Health Questionnaire-9, Satisfaction with Life Scale, Rosenberg Self-esteem Scale, State-Trait Anxiety Inventory) and HRQOL (36-item Short Form Health Status Survey) in 81 Mexican MS caregivers. Results: A canonical correlation analysis uncovered a large, significant overall association between mental health and HRQOL, with 52.7% of the variance shared between the two sets of constructs. When individual canonical loadings were examined in this analysis, the most substantial pattern that emerged was between depression and general health. Four regressions controlling for demographic variables found that HRQOL uniquely accounted for 19.0% of the variance in caregiver anxiety, 32.5% in depression, 13.5% in satisfaction with life, and 14.3% in self-esteem. Conclusions: These findings demonstrated a strong association between HRQOL and mental health, which points to directions for future studies on interventions for MS caregivers, particularly in Mexican and other Latino populations.

scholarly journals A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers

2015 ◽  
Vol 2015 ◽  
pp. 1-9 ◽  
Author(s):  
Paul B. Perrin ◽  
Ivan Panyavin ◽  
Alejandra Morlett Paredes ◽  
Adriana Aguayo ◽  
Miguel Angel Macias ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Social Support ◽  
Latin America ◽  
Women Caregivers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background. Multiple sclerosis (MS) rates in Latin America are increasing, and caregivers there experience reduced mental and physical health. Based on rigid gender roles in Latin America, women more often assume caregiving duties, yet the differential impact on women of these duties is unknown.Methods. This study examined gender differences in mental health (Patient Health Questionnaire-9, Satisfaction with Life Scale, Rosenberg Self-Esteem Scale, State-Trait Anxiety Inventory, and Zarit Burden Inventory), health-related quality of life (HRQOL; Short Form-36), and social support (Interpersonal Support Evaluation List-12) in 81 (66.7% women) Mexican MS caregivers.Results. As compared to men caregivers, women had lower mental health (p=0.006), HRQOL (p<0.001), and social support (p<0.001). This was partially explained by women caregivers providing care for nearly twice as many hours/week as men (79.28 versus 48.48,p=0.018) and for nearly three times as many months (66.31 versus 24.30,p=0.002).Conclusions. Because gender roles in Latin America influence women to assume more substantial caregiving duties, MS caregiver interventions in Latin America—particularly for women caregivers—should address the influence of gender-role conformity on care and psychosocial functioning.

Mental Health Status and Health-Related Quality of Life among Systemic Lupus Erythematosus (SLE) Patients in Thailand: A Multi-Site Study

2020 ◽  
Vol 103 (11) ◽  
pp. 1185-1193
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Health Status ◽  
Lupus Erythematosus ◽  
Self Esteem ◽  
Mental Health Status ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: The systemic lupus erythematosus (SLE) patients oftentimes suffer from both physical and psychosocial challenges that may lead to low health-related quality of life (HRQoL). However, limited research has been done in this area. Objective: To examined mental health status and HRQoL among SLE patients in Thailand. Materials and Methods: The present study was a cross-sectional study conducted at the rheumatology clinic of four major hospitals in Thailand. The paper-based questionnaire consisted of demographic, health history such as depression, anxiety, stress Scale (DASS-21), and the Rosenberg self-esteem scale (RSE), and the disease-specific Lupus Quality of Life scale (LupusQoL). Depending on the variable’s level of measurement such as categorical or continuous, Spearman’s Rho or Pearson’s product moment correlation coefficients were used to explore the relationships among the variables. Hierarchical multiple regression was used to identify the predictors of LupusQoL. Results: Among the 387 participants, many might have experienced depression, anxiety, and stress (30%, 51%, and 29%, respectively). Self-esteem among the participants was good (31.8 out of 40). All eight domains of LupusQoL were affected with intimate relationship domain being impacted the most. The overall LupusQoL was significantly associated with the number of prescribed medications (r=–0.23), depression (r=–0.70), anxiety (r=–0.58), stress (r=–0.67), and self-esteem (r=0.59), p<0.001. Significant predictors of the overall LupusQoL were mental health status (depression, anxiety, and stress) and self-esteem, F (3, 81)=43.10, p<0.001, adjusted R²=0.60. Conclusion: SLE patients should be holistically assessed in both physical and psychological aspects. In addition to proper medical treatments, healthcare providers should use a multidisciplinary team approach to resolve the patients’ psychosocial issues, which in turn, may increase the patients’ quality of life. Self-care education may be necessary to help the patients manage the condition and decrease the number of medications. Keywords: Mental health, Quality of life, SLE, Thailand

Deterioration in the health-related quality of life of persons with multiple sclerosis: the possible warning signs

2007 ◽  
Vol 13 (8) ◽  
pp. 1038-1045 ◽  
Author(s):  
K.V.L. Turpin ◽  
L.J. Carroll ◽  
J.D. Cassidy ◽  
W.J. Hader
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Health Related Quality ◽  
Illness Intrusiveness ◽  
Factors Associated ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

Baseline data from a population-based study examining the health-related quality of life (HRQL) of MS patients about to begin disease modifying therapy was used to determine the factors associated with the HRQL of Saskatchewan adults with relapsing-remitting MS. Participants completed a self-report questionnaire regarding demographic and socioeconomic status, fatigue, comorbid medical conditions, disability level (EDSS), number of attacks in past 6 months, illness intrusiveness (Illness Intrusiveness Ratings Scale), depression (Beck Depression Inventory), and HRQL (SF-36 Health Status Survey). Multiple linear regression models were used to identify the factors associated with the physical and mental health summary scores of the SF-36. We found poorer physical HRQL in those who are female; older; not working; have musculoskeletal or respiratory problems; greater fatigue, higher disability scores, and more MS attacks. High illness intrusiveness; digestive system problems; genitourinary problems; and headaches were associated with poorer mental HRQL. Interestingly, we found an interaction between sex and age in mental HRQL, with worse mental health in older men but better mental health in older women. These findings may assist health care providers in identifying patients who may be at risk for decline in their HRQL, permitting appropriate and timely interventions. Multiple Sclerosis 2007; 13: 1038—1045. http://msj.sagepub.com

Gender differences in health-related quality of life in multiple sclerosis

2009 ◽  
Vol 15 (11) ◽  
pp. 1339-1346 ◽  
Author(s):  
Ilaria Casetta ◽  
Trond Riise ◽  
Monica Wamme Nortvedt ◽  
Nicola Tiberio Economou ◽  
Riccardo De Gennaro ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Physical Functioning ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact ◽  
Gender Specific

Women have about twice the risk of developing multiple sclerosis (MS) compared with men, a ratio that seems to be increasing. Most studies show that female patients seem to have a more favourable outcome of the disease. We studied the gender-specific impact of MS on health-related quality of life. We surveyed the population prevalence of MS patients in Ferrara, Italy. Data were extracted from the MS registry of the study area. Health-related quality of life was assessed using the MSQOL54 questionnaire. We analysed 370 patients (105 men and 265 women). They had worse scores than the general population in all health-related quality of life dimensions, ranging from 2.5 standard deviations (SD) lower for physical functioning to less than 0.5 standard deviations for mental health. Health-related quality of life scores were inversely correlated with disability scores. The impact of disability on health-related quality of life was higher for men than women regarding physical functioning (p < 0.01), vitality (p < 0.001), social functioning (p < 0.001), emotional wellbeing (p < 0.05) and mental health (p < 0.01). For scales reflecting mental health, a marked reduction with increasing disability was seen for men, while a linear reduction in the range of Expanded Disability Status Scale score 0—5 was reported for women, followed by no clear decrease for higher scores. We conclude that MS affects health-related quality of life in all of its dimensions. The impact of disability seems to be stronger among men, in particular for scales related to mental well-being. This could indicate that interventions should to be gender specific in order to better meet patients’ needs.

The effect of a 16-week walking program on biomarkers, physical fitness, health related quality of life and self-perceptions of adults with schizophrenia

2016 ◽  
Vol 33 (S1) ◽  
pp. s260-s260
Author(s):  
E. Oliveira ◽  
M. Uba-Chupel ◽  
D. Sousa ◽  
C. Rocha ◽  
A. Teixeira ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Fitness ◽  
Satisfaction With Life ◽  
Self Esteem ◽  
Health Related Quality ◽  
Self Perceptions ◽  
Walking Program ◽  
Related Quality ◽  
Health Related

IntroductionPeople with schizophrenia exhibit low levels of physical activity, which have impact on physical and mental health as well as overall quality of life (QOL). Mental and physical benefits of exercise are known, although the mechanisms through which physical exercise improves schizophrenia symptoms are not fully understood.ObjectivesTo assess the effect of a 16-week exercise program (EP) on the expression of BDNF and S100B biomarkers, physical fitness, health related quality of life and self-perceptions of adults with schizophrenia.MethodsThirty-five patients with schizophrenia (PwSZ) were divided in three groups Institutionalized Patients (n = 11); Psychosocial Rehabilitation (n = 13); and Control Group (n = 11). The EP consisted of one-hour walking session three times a week during 16 weeks. All participants were assessed before and after EP using the six minutes walking test, a psychological tests battery including MOS Short Form 36, Rosenberg Self-Esteem Scale, Physical Self-Perception Profile, Satisfaction with Life Scale as well as the BDNF and S100B measurements using serum analysis.ResultsNo significant statistical differences were found both for BDNF and S100B levels as a result of exercise. Additionally, no significant statistical differences were found for Physical Self-concept and Global Self-esteem changes as a result of the walking program (WP). However, PwSZ showed significant statistical differences on the satisfaction with life (P < 0.05) and on the perceived health related QOL (P < 0.05) in all groups participating in the EP.ConclusionIn spite of the limited impact of the WP in PwSZ, this group may obtain positive outcomes of the exercise participation based on a more positive attitude towards life.Disclosure of interestThe authors have not supplied their declaration of competing interest.

scholarly journals Health related quality of life and self esteem of substance users in Bangladesh

2015 ◽  
Vol 24 (2) ◽  
pp. 199-207
Author(s):  
Md Azharul Islam ◽  
Mst Adiba Akter
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Effect Size ◽  
Health Effect ◽  
Self Esteem ◽  
Health Related Quality ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

This study explored health related quality of life (HRQoL) of substance users (SUs) in Bangladesh in comparison with healthy control groups (CGs). Additionally, role of self esteem and sex on HRQoL was investigated. A trained assistant counselling psychologist measured HRQoL and self‐esteem of 120 SUs and 120 CGs using SF‐36 questionnaire and Rosenberg Self Esteem scale, respectively. SUs were mostly male (79.2%) from middle socioeconomic class (94%). SUs scored poorer in all domains of SF‐36 than the CGs. The magnitude of the effect size was largest for the role physical (effect size = –0.79), general mental health (effect size = –0.76) and social functioning (effect size = –0.73) subscale. Overall mental health was lower than physical health (effect size = –0.897). Males in both groups were better in four sub‐scales while females reported less role limitation due to physical and emotional problems. Self esteem moderated HRQoL of both group with slightly higher magnitude for SUs. HRQoL of SU of Bangladesh was lower than the study population. Dhaka Univ. J. Biol. Sci. 24(2): 199-207, 2015 (July)

scholarly journals Health-Related Quality of Life in Cushing Disease: Discrepancy Between Parent and Child Reports

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A717-A718
Author(s):  
Margaret F Keil ◽  
Adela Leahu ◽  
Constantine A Stratakis
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Self Esteem ◽  
Health Related Quality ◽  
Cushing Disease ◽  
Related Quality ◽  
Health Related ◽  
The Impact ◽  
Parent Proxy

Abstract Background: Previously we reported impairment in quality of life (QoL) measures in children with Cushing disease (CD) by parent proxy; however, little is known about QoL measures from the affected child’s perspective. Method: Prospective study of 48 (26 females, Age:11.5±3.0 yr.) children diagnosed with CD. Prior to treatment, the Child Health Questionnaire (CHQ) was used to assess QoL by parent (proxy) and child report. Results: In children with active CD, there was a discrepancy between parent and child responses for mental health and self-esteem subscales. Child responses were significantly lower than parent responses (lower scores indicate poorer function) for mental health (56 ± 2 vs. 67 ± 2, p&lt0.001) and self-esteem (32.8 ±3 vs. 60.5 ±3, p&lt0.001). No significant differences were found between parent vs.child report for other subscale scores of the CHQ. Conclusion: This is the first study to compare child vs. parent report of health-related quality of life children with active CD. Parent reports underestimated the impact of CD on quality of life measures for mental health and self-esteem. It is important for clinicians to obtain information about health-related quality of life from the child’s perspective in order to guide management and take precautionary measures to alleviate negative outcomes.

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