The validity of the good spirit, good quality‐of‐life tool for older Aboriginal Australians

Abstract Background and Objectives The lack of appropriate quality of life (QoL) measures is a major barrier to planning and delivering health and aged care services for older Indigenous peoples worldwide. QoL is dependent on cultural values and priorities may vary between age groups. This project aims to develop a QoL tool for older Aboriginal Australians. Research Design and Methods The study was completed with Aboriginal Australians aged over 45 years living in Perth and Melbourne, Australia. Participatory Action Research methods were applied with an Indigenous research paradigm. Semistructured interviews were undertaken to identify the factors important to having a good life. Factors were further explored in yarning groups with older Aboriginal peoples to develop the draft QoL tool questions. Face validity of the tool was completed in two regions. Results The participants preferred the term “a good life” to QoL. Having a good spirit is at the core of having a good life. The protective factors for a good life were family and friends, health, culture, Elder role, respect, Country, spirituality, services and supports, community, future plans, safety and security, and basic needs. Discussion and Implications Twelve factors were identified and developed into key questions for the Good Spirit, Good Life tool. The draft tool will undergo quantitative validity testing, prior to embedding in service provision to inform care for older Aboriginal peoples. With local adaptation, the tool, accompanying framework, and participatory methods for development may have wider applicability to other Indigenous populations worldwide.

Download Full-text

P4-135: GOOD SPIRIT, GOOD LIFE: A QUALITY OF LIFE TOOL FOR ABORIGINAL AUSTRALIANS WITH COGNITIVE IMPAIRMENT AND DEMENTIA

Alzheimer s & Dementia ◽

10.1016/j.jalz.2018.06.2539 ◽

2006 ◽

Vol 14 (7S_Part_28) ◽

pp. P1490-P1491

Author(s):

Kate Smith ◽

Lianne Gilchrist ◽

Dawn Bessarab ◽

Dina LoGiudice ◽

Leon Flicker ◽

...

Keyword(s):

Quality Of Life ◽

Cognitive Impairment ◽

Good Life ◽

Aboriginal Australians ◽

Life Tool

Download Full-text

Reliability and validity of a disease-specific quality of life tool in Nigerian patients with heart failure

Nigerian Journal of Cardiology ◽

10.4103/njc.njc_5_19 ◽

2019 ◽

Vol 16 (1) ◽

pp. 43

Author(s):

IsekoIyoko Iseko ◽

AdewoleA Adebiyi ◽

AyodeleO Falase

Keyword(s):

Quality Of Life ◽

Heart Failure ◽

Reliability And Validity ◽

Life Tool ◽

Patients With Heart Failure ◽

Disease Specific

Download Full-text

Validation of the Hungarian version of the SRI Questionnaire

BMC Pulmonary Medicine ◽

10.1186/s12890-020-1171-5 ◽

2020 ◽

Vol 20 (1) ◽

Cited By ~ 1

Author(s):

Luca Valko ◽

Szabolcs Baglyas ◽

Laszlo Kunos ◽

Attila Terray-Horvath ◽

Andras Lorx ◽

...

Keyword(s):

Quality Of Life ◽

Mechanical Ventilation ◽

Respiratory Failure ◽

Chronic Respiratory Failure ◽

Life Questionnaire ◽

Home Mechanical Ventilation ◽

Life Tool ◽

Sf 36 ◽

Hungarian Version

Abstract Background Home mechanical ventilation is a reliable treatment for patients suffering from chronic respiratory failure, improving survival and quality of life. Prevalence has been increasing worldwide as a result of evolving technical possibilities, telemedicine and improving national guidelines. Projects to establish a national guideline and registry for patients treated with home mechanical ventilation are currently under way in Hungary and our aim was to validate a quality of life questionnaire suited for evaluation and follow up in this specific patient group. The Severe Respiratory Insufficiency Questionnaire (SRI) is a quality of life tool designed to evaluate patients receiving home mechanical ventilation and has been validated both in patient groups receiving invasive and noninvasive ventilation. Methods The Hungarian version of the SRI was created using the translation-backtranslation method, which was then tested for validity, viability and reliability in a cohort involving patients from three centers, receiving long-term home mechanical ventilation for chronic respiratory failure through an invasive or noninvasive interface. Patient data was collected (demographic data, lung function test, arterial blood gas, ventilation settings) and quality of life was measured with the previously validated SF-36 and newly created Hungarian SRI Questionnaires at two time points. Results One hundred four patients receiving home mechanical ventilation were enrolled. The time to complete the SRI Questionnaire was 8.6 (±3.1) minutes, 69.2% questionnaires were self-administered. Exploratory factor analysis explained 73.8% of the variance of the questionnaire, but resulted in 13 scales. We found correlations between the SRI subscale scores to corresponding scales of the previously validated general quality of life survey SF-36. The Cronbach alpha coefficient was 0.928 for the Summary Scale of the SRI Questionnaire, proving high internal consistency. Reproducibility was high for most scales, resulting in a high overall correlation for the summary score (0.877, p < 0.001). Conclusions The Hungarian version of the SRI Questionnaire is a viable, valid, reliable and reproduceable quality of life tool applicable for patients treated with home mechanical ventilation.

Download Full-text