Good Spirit, Good Life: A Quality of Life Tool and Framework for Older Aboriginal Peoples

2020 ◽  
Author(s):  
Kate Smith ◽  
Lianne Gilchrist ◽  
Kevin Taylor ◽  
Christine Clinch ◽  
Dina Logiudice ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cultural Values ◽  
Good Life ◽  
Indigenous Populations ◽  
Face Validity ◽  
Aboriginal Peoples ◽  
Aboriginal Australians ◽  
Major Barrier ◽  
Life Tool

Abstract Background and Objectives The lack of appropriate quality of life (QoL) measures is a major barrier to planning and delivering health and aged care services for older Indigenous peoples worldwide. QoL is dependent on cultural values and priorities may vary between age groups. This project aims to develop a QoL tool for older Aboriginal Australians. Research Design and Methods The study was completed with Aboriginal Australians aged over 45 years living in Perth and Melbourne, Australia. Participatory Action Research methods were applied with an Indigenous research paradigm. Semistructured interviews were undertaken to identify the factors important to having a good life. Factors were further explored in yarning groups with older Aboriginal peoples to develop the draft QoL tool questions. Face validity of the tool was completed in two regions. Results The participants preferred the term “a good life” to QoL. Having a good spirit is at the core of having a good life. The protective factors for a good life were family and friends, health, culture, Elder role, respect, Country, spirituality, services and supports, community, future plans, safety and security, and basic needs. Discussion and Implications Twelve factors were identified and developed into key questions for the Good Spirit, Good Life tool. The draft tool will undergo quantitative validity testing, prior to embedding in service provision to inform care for older Aboriginal peoples. With local adaptation, the tool, accompanying framework, and participatory methods for development may have wider applicability to other Indigenous populations worldwide.

P4-135: GOOD SPIRIT, GOOD LIFE: A QUALITY OF LIFE TOOL FOR ABORIGINAL AUSTRALIANS WITH COGNITIVE IMPAIRMENT AND DEMENTIA

2006 ◽  
Vol 14 (7S_Part_28) ◽  
pp. P1490-P1491
Author(s):  
Kate Smith ◽  
Lianne Gilchrist ◽  
Dawn Bessarab ◽  
Dina LoGiudice ◽  
Leon Flicker ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Impairment ◽  
Good Life ◽  
Aboriginal Australians ◽  
Life Tool

scholarly journals The validity of the good spirit, good quality‐of‐life tool for older Aboriginal Australians

2020 ◽  
Vol 16 (S7) ◽  
Author(s):  
Lianne Gilchrist ◽  
Dawn Bessarab ◽  
Harry Douglas ◽  
Dina LoGiudice ◽  
Julie Ratcliffe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Aboriginal Australians ◽  
Life Tool

Formerly Detained Adolescents’ Narratives: On the Interplay between Quality of Life and Desistance

2021 ◽  
pp. 0306624X2110239
Author(s):  
Nele Van Hecke ◽  
Florien Meulewaeter ◽  
Wouter Vanderplasschen ◽  
Lore Van Damme ◽  
Jan Naert ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Young People ◽  
Good Life ◽  
Individual Responsibility ◽  
Barriers And Opportunities ◽  
Ambivalent Relationship ◽  
Desistance From Crime ◽  
Good Lives

In recent years, a growing trend to consider strengths and protective factors in studies on desistance from crime has emerged. The present study explores three formerly detained adolescents’ narratives, aiming to tease out how Quality of Life (QoL) and desistance interact in pathways towards a “better life.” The narratives suggest that the journey towards a better life is highly individual, and may unfold via multiple pathways characterized by an ambivalent relationship between QoL and desistance. Alongside the importance of individual aspects and social support, societal barriers and opportunities play a significant role in creating new chances to re-build a life and prosocial identities. This reflects earlier findings that desistance is not an individual responsibility. It is essential to support young people to overcome societal barriers that impede participation in society and living a good life. This research adds to growing evidence of strengths-based approaches to rehabilitation, such as the Good Lives Model (GLM).

scholarly journals Quality of Life and Philosophy of Life Determines Physical and Mental Health: Status Over Research Findings From The Quality of Life Research Center, Copenhagen, 1991-2007

2007 ◽  
Vol 7 ◽  
pp. 1743-1751 ◽  
Author(s):  
Søren Ventegodt ◽  
Isack Kandel ◽  
Joav Merrick
Keyword(s):  
Quality Of Life ◽  
Good Life ◽  
Public Awareness ◽  
Social Indicators ◽  
Health Science ◽  
Physical And Mental Health ◽  
Quality Of Life Research ◽  
Global Quality Of Life ◽  
The Individual

Quality of life (QOL) has over the past decade become an important part of health science and also increased public awareness. It has become increasingly apparent that illness is closely related to the individual perception of a good life, and therefore the exploration of indicators related to quality of life appears to be of broad importance for the prevention and treatment of diseases. Identifying, which factors constitute a good life may reveal an understanding about what areas in life should be encouraged, in order to enhance the global quality of life, health, and ability. In this paper we present results from studies initiated in 1989 to examine quality of life in relation to disease. The purpose of this presentation was to assemble the results from the study carried out in the years between 1993 and 1997, examining a total of 11.500 Danes, to show the association between quality of life and a wide series of social indicators.

Exercise Improves Quality of Life in Indigenous Polynesian Peoples With Type 2 Diabetes and Visceral Obesity

2013 ◽  
Vol 10 (5) ◽  
pp. 699-707 ◽  
Author(s):  
William R. Sukala ◽  
Rachel Page ◽  
Chris Lonsdale ◽  
Isabelle Lys ◽  
David Rowlands ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 2 Diabetes ◽  
Short Form ◽  
Bodily Pain ◽  
Visceral Obesity ◽  
Indigenous Populations ◽  
Post Intervention ◽  
Group Post

Background:To evaluate the differential effect of 2, group-based exercise modalities on quality of life (QoL) in indigenous Polynesian peoples with type 2 diabetes (T2DM) and visceral obesity.Methods:Participants were randomized to resistance training or aerobic training performed 3 times per for 16 weeks. The Short-Form 36 was administered at baseline and post intervention to assess 8 domains and physical and mental component scales (PCS and MCS) of QoL.Results:With the exception of Mental Health and MCS, all scores were lower at baseline than general population norms. Significant improvements were documented in several QoL scores in each group post intervention. No group × time interactions were noted. Pooled analyses of the total cohort indicated significantly improved Physical Functioning, Role-Physical, Bodily Pain, General Health, Vitality, Role-Emotional, PCS and MCS. Adaptation ranged from 5%−22%, and demonstrated a moderate-to-large effect (Cohen’s d = 0.64−1.29). All measures of QoL increased to near equivalent, or greater than general norms.Conclusion:Exercise, regardless of specific modality, can improve many aspects of QoL in this population. Robust trials are required to investigate factors mediating improvements in QoL, and create greater advocacy for exercise as a QoL intervention in this and other indigenous populations with T2DM.

scholarly journals Variation in the Quality of Life within Punjab: Evidence from MICS, 2007-08

2010 ◽  
Vol 49 (4II) ◽  
pp. 863-879
Author(s):  
Rashida Haq Rashida Haq ◽  
Azkar Ahmed ◽  
Siama Shafique
Keyword(s):  
Quality Of Life ◽  
Good Life ◽  
Well Being ◽  
Living Conditions ◽  
Final Outcome ◽  
Subjective Well Being ◽  
Quality Of Life Research ◽  
Level Of Living ◽  
Broad Continuum

Since quality of life research is essentially concerned with measuring and monitoring welfare. In order to measure quality of life, one must have a theory of what makes up a good life [Cobb (2000)]. There is a variety of such theories and notions of what constitutes a ‗good life‘ and correspondingly different concepts of welfare and quality of life have been developed. Various approaches and operationalisations are to be distinguished, each of which reveals a different concept of welfare and thus highlights different components and dimensions [Noll (2000)]. Among the various efforts to operationalise welfare in general and the quality of life concept in particular, two contrary approaches are to be distinguished, which define the two extreme positions on a broad continuum of concepts currently available: the Scandinavian level of living approach [Erickson (1993)] and the American quality of life approach [Campbell (1976)]. The Scandinavian approach focuses almost exclusively on resources and objective living conditions, whereas the American approach emphasises the subjective well-being of individuals as a final outcome of conditions and processes.

scholarly journals Validation of the Hungarian version of the SRI Questionnaire

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Luca Valko ◽  
Szabolcs Baglyas ◽  
Laszlo Kunos ◽  
Attila Terray-Horvath ◽  
Andras Lorx ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Respiratory Failure ◽  
Chronic Respiratory Failure ◽  
Life Questionnaire ◽  
Home Mechanical Ventilation ◽  
Life Tool ◽  
Sf 36 ◽  
Hungarian Version

Abstract Background Home mechanical ventilation is a reliable treatment for patients suffering from chronic respiratory failure, improving survival and quality of life. Prevalence has been increasing worldwide as a result of evolving technical possibilities, telemedicine and improving national guidelines. Projects to establish a national guideline and registry for patients treated with home mechanical ventilation are currently under way in Hungary and our aim was to validate a quality of life questionnaire suited for evaluation and follow up in this specific patient group. The Severe Respiratory Insufficiency Questionnaire (SRI) is a quality of life tool designed to evaluate patients receiving home mechanical ventilation and has been validated both in patient groups receiving invasive and noninvasive ventilation. Methods The Hungarian version of the SRI was created using the translation-backtranslation method, which was then tested for validity, viability and reliability in a cohort involving patients from three centers, receiving long-term home mechanical ventilation for chronic respiratory failure through an invasive or noninvasive interface. Patient data was collected (demographic data, lung function test, arterial blood gas, ventilation settings) and quality of life was measured with the previously validated SF-36 and newly created Hungarian SRI Questionnaires at two time points. Results One hundred four patients receiving home mechanical ventilation were enrolled. The time to complete the SRI Questionnaire was 8.6 (±3.1) minutes, 69.2% questionnaires were self-administered. Exploratory factor analysis explained 73.8% of the variance of the questionnaire, but resulted in 13 scales. We found correlations between the SRI subscale scores to corresponding scales of the previously validated general quality of life survey SF-36. The Cronbach alpha coefficient was 0.928 for the Summary Scale of the SRI Questionnaire, proving high internal consistency. Reproducibility was high for most scales, resulting in a high overall correlation for the summary score (0.877, p < 0.001). Conclusions The Hungarian version of the SRI Questionnaire is a viable, valid, reliable and reproduceable quality of life tool applicable for patients treated with home mechanical ventilation.

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