Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

2019 ◽  
Vol 13 (2) ◽  
pp. 284-297 ◽  
Author(s):  
Aliya Naheed ◽  
Md. Saimul Islam ◽  
Saima Wazed Hossain ◽  
Helal Uddin Ahmed ◽  
M. M. Jalal Uddin ◽  
...  
Autism ◽  
2019 ◽  
Vol 23 (7) ◽  
pp. 1645-1654 ◽  
Author(s):  
Jamal M Al Khateeb ◽  
Louise Kaczmarek ◽  
Muna S Al Hadidi

Four databases were searched to identify studies published by Arab researchers on parents’ perceptions of autism spectrum disorder and studies conducted by US researchers and published in systematic reviews of this topic. The electronic search resulted in 14 studies published by Arab researchers and 55 studies published by US researchers. The results showed that autism spectrum disorder has many of the same effects on Arab and American families. Six major areas were identified in the results. Financial difficulties associated with raising children with autism spectrum disorder were mentioned more in Arab studies than in US studies. Arab studies had more emphasis on gender than US studies. The results related to quality of life of parents of children with autism spectrum disorder in Arab studies were equivocal. US studies included comparisons with families without a child with autism spectrum disorder, and addressed factors that were associated with quality of life indicators. More health, educational, and social services were available in United States than in Arab countries, but some frustration was reported by US parents in obtaining appropriate services in some studies. A higher percentage of Arab studies mentioned the role of religious faith than US studies. Finally, social stigma was evidenced in both cultures, but not much research was available.


2020 ◽  
Vol 58 (5) ◽  
pp. 393-408
Author(s):  
Laura E. Gómez ◽  
M. Lucía Morán ◽  
M. Ángeles Alcedo ◽  
Víctor B. Arias ◽  
Miguel-Ángel Verdugo

Abstract Despite the advances on the assessment of quality of life, this concept is barely studied and is riddled with important limitations for those with autism spectrum disorder (ASD). This article is aimed at validating a questionnaire to assess quality of life of children with ASD and intellectual disability (ID). Based on the KidsLife Scale, geared toward people with ID, the most reliable items for those with ASD were selected. Study participants were 420 persons, from 4 to 21 years old. Results indicated that the KidsLife-ASD Scale measured eight intercorrelated domains, had good reliability, and exhibited adequate evidences of validity. KidsLife-ASD emerges as a helpful tool to guide person-centered planning addressed at improving quality of life.


Author(s):  
Amily Fikry ◽  
◽  
Siti Fatahiyah Mahamood ◽  
Mohd Nor Mamat ◽  
Hamizah Hassan ◽  
...  

Autism Spectrum Disorder (ASD) is a developmental disorder that encompasses varieties of disorder with impairments in social relationships, communication and imaginative display. In an attempt to reduce the severity of the said symptoms, these ASD children have been given either pharmacological or non-pharmacological treatment. The treatment given is hope to improve quality of life of the ASD children and their respective family. Thus, by using Rasch Model, this paper attempts to look at the significant effect of pharmacological and non-pharmacological treatment on quality of life of Malaysian’s children with Autism and their respective family. A total of 31 questionnaires (with 16 returned and usable questionnaires) were distributed to parents of ASD child at public rehab center located in Eastern and Central Region of Malaysia. By using Bond and Fox Steps of Rasch Measurement Model, reliability analysis of responses were analyzed and research questions were answered. Conclusions and recommendations were discussed at the end of the paper.


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